Pre surgery appointment and second surgery date

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Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 1/20/2009 1:09 PM (GMT -6)   
Yesterday I had my pre surgery appointment for my second and final J-pouch surgery. I had the first surgery Oct. 20, 2008. I went to the appointment not having a surgery date. I have been calling my surgeon’s secretary once a week for the last month asking for a date and she wasn’t able to give me one. She told me it looked like it wouldn’t be until at least March. She still wanted me to go to the pre surgery appointment without a surgery date.

I arrived at the hospital just before 1:00 pm and was called into an examination room a few minutes later. I was given several forms and questionnaires to fill out. While I was filling them out my surgeon’s secretary came in the room and told me she had a surgery cancellation for this Wednesday (tomorrow) and asked me if I wanted it. I said I would love the appointment but I was worried about a cold that I was just getting over. It was at its worst last Wednesday and Thursday. She told me to talk with the doctor about it when I see him and get back to her after the appointment.

The nurse then came in the room and went over the forms I filled out. She gave me 2 cotton swabs, one for my nostrils and the other for my bum. Not sure what they are looking for. She also took a blood sample. Next the pharmacist came in to talk about my current medications.

One of the doctors on my surgeon’s team came in next. He did a quick physical checkup, described the surgery and answered my questions. They are going to put a small incision next to my stoma to allow them to pull out my intestines far enough to reconnect them. They will then put it back inside and close up the stoma. It should take about one to one and a half hours to complete it. I asked him if my cold would interfere with the surgery and he said as long as I don’t have a fever or am coughing up phlegm, it shouldn’t mater. For this surgery I don’t need any prep other than not eating or drinking after midnight before the surgery.

The anesthesiologist came in next. Normally he wouldn’t visit me but because of my cold he did. He told me the same thing as the previous doctor and didn’t see my cold as a problem. After the appointment at about 3:45 pm I went to the surgeon’s secretary to tell her I’ll have the surgery this Wednesday, January 21, 2009 at 1:30 pm. I must be at the hospital by 11:00 am. I should be in the hospital for about 5 days. I’ll be glad to get rid of this bag. Wish me luck.
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/20/2009 2:18 PM (GMT -6)   
Wow- you are almost done- good for you-- good luck, have a quick recovery and thanks for posting!
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm, TSO again
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/20/2009 2:23 PM (GMT -6)   
Wow! You go in thinking you won't be having surgery possibly until March, and now you're having surgery tomorrow! That's pretty exciting. Keep us posted and I hope you have a smooth recovery and enjoy your new j-pouch. GOOD LUCK!! :D

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/20/2009 2:45 PM (GMT -6)   
Good luck Paul and I hope you have a very quick recovery! Let us know how it goes.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/20/2009 3:41 PM (GMT -6)   
God's Speed!
 
How have you been doing?


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 1/20/2009 6:20 PM (GMT -6)   
Good luck!
Age: 25 / Male / Florida
Diagnosed: 11/08
Currently on Asacol 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Started taking chamomile tea and multi vitamins (waiting for results)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5181
   Posted 1/20/2009 7:08 PM (GMT -6)   
Wow, you got shoved into the express line! What confuses me: didn't you post last month that the female surgeon wanted you to have Step 2 done in late Jan. or early Feb.? Then by her judgment, you're going in right on time. Best wishes for a smooth reconnect/hospital stay & please keep us posted when you can. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 1/20/2009 7:59 PM (GMT -6)   
Thanks everyone,

I really want to get this over with. Yes Old Hat, the surgeon wanted me to have the surgery late January or early February. It was up to her secretary to schedule the surgery. Unfortunately only emergency surgeries were performed over a 2 week period at Christmas. They are trying to clear the backlog. The surgery that was canceled was the first stage and the operating room was reserved for 4 hours. I guess someone chickened out. They are going to reschedule 2 second stage surgeries in that time. The first stage requires much more prep and tests that it would have been more difficult to reschedule a first sage surgery.
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 1/20/2009 9:07 PM (GMT -6)   
I sure love hearing how things just fall into place. I'm glad to hear that your's fell right where it was suppose to be. I will be praying that all goes well for the final step in the surgery process.
26 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


malachy72
Regular Member


Date Joined Oct 2005
Total Posts : 99
   Posted 1/20/2009 10:58 PM (GMT -6)   
They don't stitch you closed after the resection. Here's a good thought for quick healing.

Y2K Bug
Regular Member


Date Joined Jul 2008
Total Posts : 114
   Posted 1/21/2009 7:17 AM (GMT -6)   
Wow
 
Its all happening so quickly now!
 
Good Luck, hope it goes well.
 
PF
Peter
 
dx 1985
prednisolone 9mg tapering
gave up on meds after infliximab (remicade), humira, salofalk (5-asa enema), entocort, Azathioprine, steroid emenas, abadacept
 
have temp ileostomy, reversal probably in Mar/Apr 2009.
 
and I don't know where the nearest toilet is!


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 1/21/2009 7:31 AM (GMT -6)   
God bless you.
26m - Dx January 2005
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 1/21/2009 7:43 AM (GMT -6)   
Thanks everyone. We will be leaving home for the hospital in about half an hour. I’m bringing my laptop with me so I should be able to give updates after surgery.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 1/21/2009 8:35 AM (GMT -6)   
Good luck with the surgery Paul, let us know how you are doing when you can. Wow, it's been a long haul for you my friend, and I'm glad this journey is almost at the end for you. Tomorrow; it's a whole new way of life.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 1/21/2009 7:59 PM (GMT -6)   
I’m out of surgery and in my room. I’ll start a new thread tomorrow. I’m just too tired right now.
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/21/2009 8:10 PM (GMT -6)   
Glad it's finally all over...let the healing begin!!!!


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Y2K Bug
Regular Member


Date Joined Jul 2008
Total Posts : 114
   Posted 1/21/2009 8:17 PM (GMT -6)   
Paul
 
Great to hear that in a couple of weeks, life will become normal!
 
PF
Peter
 
dx 1985
prednisolone 9mg tapering
gave up on meds after infliximab (remicade), humira, salofalk (5-asa enema), entocort, Azathioprine, steroid emenas, abadacept
 
have temp ileostomy, reversal probably in Mar/Apr 2009.
 
and I don't know where the nearest toilet is!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5181
   Posted 1/22/2009 7:26 PM (GMT -6)   
Hope you had a chance to rest today! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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