ileoanal anastomosis surgery

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Pancake1
Regular Member


Date Joined Oct 2008
Total Posts : 28
   Posted 1/20/2009 3:03 PM (GMT -6)   
Hi,
 
Ok, so I must be living in a bubble.  I didn't know that they had a precedure out there for UC, that involved not having the pouch on the outside of your body.
 
I have been fine (knock on wood) with my UC.  Some people have said oh I would get the pouch and I always said "hell no, not having a bag straped to my side".  Sorry, I don't mean to sound rude or offend anyone.  I just could not deal with that.
 
Good to know that you can have the precedure done, with the pouch on the inside of your body.  And you can also control when you need to go to the washroom.
 
Anyone have this surgery done?  If so, how was it? 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/20/2009 3:08 PM (GMT -6)   
Yes, I have had the jpouch surgery. It's been great, the last 7 years without UC have been the best of my life. Yes, you have control without pain, without meds. Life has been very good.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Pancake1
Regular Member


Date Joined Oct 2008
Total Posts : 28
   Posted 1/20/2009 3:14 PM (GMT -6)   
Do you have to go in every few years and have the pouch removed and inserted again?  I am not sure how it works.  I know it is in two sugeries.  How long do you have to wait in between and what is the recovery time?  Work rise.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/20/2009 4:02 PM (GMT -6)   
No, the jpouch is made with 9 inches of the small intestine. It is never removed but it is biopsied every two years-which is very similar to a colonoscopy but not nearly as invasive. The first surgery removes the colon and rectum and the jpouch is created. A temporary ostomy is created to divert waste until the patient recovers some. Surgeons usually wait 6 weeks to 3 months for the patient to revcover from that surgery before closing the ileostomy and giving birth to the pouch. The jpouch really functions as a false rectum. I was off work for 3 weeks after each surgery. That's typically a very fast recovery most people take 6 weeks after the first surgery and anywhere from 2-4 weeks after the second surgery.

This surgery can be done in one step (no temp ostomy) but only when the patient has not recently been on pred and is in very good health.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1251
   Posted 1/20/2009 5:15 PM (GMT -6)   
You will still need a temporary ileostomy (unless you have the lot done in one surgery), so will have a bag for a few weeks. Btw, it's not strapped to your side :) It's actually just stuck to side of your stomach (not right on your side) with an adhesive, a bit stronger than bandaid adhesive, You can peel it off as it needs changing :)
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 1/20/2009 9:54 PM (GMT -6)   
It seems you are asking about ileoanal anastomosis, but people are describing j-pouch surgery to you. There is another member, UC Rick, who had the i.a. surgery about a yr-18 months ago & reported on it, in case you want to look up his posts. His surgeon thought it best to save a short section of rectum which was not diseased & connect the ileum to that. I think that type of surgery predates the j-pouch procedure. The caveat with i.a. is that UC meds may still be required because what's left of the rectum still runs a risk of inflammation recurring. / Old Hat (nearly 30 yrs with left-sided UC; original Colazal is most helpful for me)

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/20/2009 9:57 PM (GMT -6)   

Ileoanal anastomosis = jpouch

Ileorectal anastomosis= straight hook up to the rectum.  Not recommend for UC patients due to disease returning to the rectum.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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