Bone Density scores?

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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/20/2009 9:47 PM (GMT -6)   
I just got my bone mass density from a Walgreens mobile healthfair van for free. You have to put your foot in a machine and it reads it very quickly. My score was a .2
 
The T-score guages are as follows
Nomal = Above -1.0
Osteopenia = Between -1.0 and -2.5
Osteoperosis = Below -2.5
 
I was wondering if anyone else has taken one of these test and what kind of results did you all get after being on prednisone.
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 1/20/2009 10:20 PM (GMT -6)   
Hi Got2believe,
my mother took this test(she does not have any UC problem), and her reading was below 0.2 as well, her doc told her it is very important for her to start taking calcium + other Vitamins supplements immediately and also made some improvement in her diet. She was on heavy medicines for 2-3 months and her readings did improve. Just hope u have started taking medicines for this... it is important!
Sorry, i have no knowledge how prednisone is related to this.
Mucus & Blood in stools, Gas, Constipation sometimes - No D !
1st doctor visit scheduled Jan first week. Sigmoidoscopy shows mild inflamation. Still on no medication.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/20/2009 11:13 PM (GMT -6)   
Thanks for the reply. i wanted to see if if my t score warented any action. It probably does. I have a meeting in 3 days for my other spine and hip one which i will talk about the results with my general practitioner. Yeah prednisone can kill bone so it is imperative to get these tests. I can't wait to compare my test with the one I took of my hip and spine a couple years ago. I don't take any calcium pills but eat lots of veggies...
I researched on web after my initial post and saw a bell curve that had the standard deviation thing and it showed 50% of people are right at 0 (zero) with their scores... So maybe I am OK.
Anyone else know about this stuff?
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/21/2009 12:15 AM (GMT -6)   
I haven't had a bone density test, although I'd be interested in getting one.

I was on Prednisone once for three months. After two months of being on it, my teeth hurt when I drank cold water. Sensitive teeth is a known side effect of Prednisone. It means the underlying layer of the teeth, the dentin, has become exposed. That was two years ago. My teeth aren't as sensitive anymore.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 1/21/2009 9:21 AM (GMT -6)   
I think I was -1.9 but I've never been on pred before. My GI just told me to add a calcium supplement along with my multivitamin.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/21/2009 10:14 AM (GMT -6)   
The foot bone density test is not quite as accurate as the body scan so you should probably ask your GI to order a body scan to get the best results. My bone density remained unchanged after over 2 years of continual pred use of 10-40mgs. My GI credits my results to my daily participation of weight bearing exercise and the supplementation of calcium citrate. If you are not engaging in weight bearing exercise you shoud start a program. You don't have to join a gym to work on building bone but you do need a regular program that you can commit to.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 1/21/2009 11:37 AM (GMT -6)   
I have been on prednisone continuously for over a year now.  My mother has Osteopina (not sure of spelling, but its not osteoporosis, i guess it just means your predisposed to getting it eventually?) and my GI has just scheduled a Bone Density Scan for me beginning of February.  I am curious to see what level I am at. 

First Diagnosed with Microscopic Colitis 10/07
Diagnosed with UC instead 3/2008
10mg Prednisone
50mg Imuran
75mg 6-MP
Calcium + Vit D
Probiotics
Entocort 9mg daily
800mg Asacol 3X daily
Bentyl
Lomotil
Dicyclomine
Prevacid
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/21/2009 1:44 PM (GMT -6)   
I'd be suspicious of the results you get from a free, mobile health fair scanning. Have your GI order hip and spine bone scans. If you've been on pred for a while - and particularly if you're a small-boned white female - you could certainly have bone loss. I had osteopenia - the precursor to osteoporisis - but was able to reverse it with improved diet and weight training.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/21/2009 7:15 PM (GMT -6)   
I think those quick tests will help alert you to a problem, but I wouldn't trust it to decide you were OK.

Your doc should be watching your bone density if you take prednisone. I had the bone scans and fortunately, despite taking prednisone a lot over many years, my bones are fine. I attibute it to strength training, which I started doing in college and am doing about four days each week now.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 

Post Edited (Peety) : 1/22/2009 9:48:32 AM (GMT-7)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/21/2009 7:44 PM (GMT -6)   
I had one done almost 5 years ago, when I was 19, and I don't recall the exact score at the moment but it was already showing osteopenia in my left femur and lumbar spine. I haven't had one since but I plan on asking for one this year to see if things have gotten worse. I've been on prednisone a few times since then, and I'm not the best at remembering to take supplements, so I fear it might have.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 1/21/2009 8:23 PM (GMT -6)   
Bone density scans are VERY important for anyone who has been on prednisone for more than a short taper (2-3 months). I first learned of my decreased bone density when a chiropractor took x-rays. I then went to my GP who ordered the DEXA scan. The three I have had have shown Osteopenia.

It is important for anyone taking prednisone to be on calcium as well.

My last scan was in early December. My GP recommended increasing my calcium and adding more weight bearing exercise. I also hope to avoid pred use in my future.

To make sure I remember my calcium, I take it at night with a handful of other meds. I also get some from my multivitamin - I also LOVE milk :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission
Asacol 12 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: 2/3/09
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/21/2009 10:44 PM (GMT -6)   
I am going to have my GP go over my bone density of my spine and hip I took 12/4/08 with me Friday 1/23/09. I am going to put more emphasis on this test b/c it was from the big machine and cost $300 (although insurance paid for most)
I will post my results so we can see how accurate my free ankle reading was. I just saw the mobil van was in town and had to go get a free checkup. they also checked cholesterol, blood pressure, glucose, body composition, and body mass composition.

Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 1/23/2009 11:35 AM (GMT -6)   
I got my results today from my main scan i took last month. I have oseoperosis in both my hip and spine. :( I had taken this about 2 years ago and both were fine at the time so I can definately say prednisone has done this to me. Please everyone on prednisone take care of yourselves and try to get off of it and use it as little as possible. I would advice anyone on prednisone to monitor their bone density b/c it is scary to find out you have osteoperosis at age 29... My doc recommended another scan in 1 year so I will do my best to get stop the bone loss and try to rebuild.
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 1/23/2009 12:31 PM (GMT -6)   
That's a bummer... I forget what my actual scores were, but I too had a bone scan done, the full body one they do in the hospitals. My PC doc recommended it, after being on pred for about 18 months- my pred dose varied during that time, but overall I was on it at some dose for that long. The bone scan did show osteopenia, but my PC doc just recommended that I make sur I get plenty of calcium from food, as well as checking my multi-vitamin for calcium.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 1/23/2009 3:21 PM (GMT -6)   
     I had a dexa-scan done last month.  Both my GI doctor and family physician called me because they were both concerned.  It was -3.6.  I was never a milk drinker as a child (bad, bad, bad) and have been on prednisone off and on for the UC over a ten year period but the longest time I had to be on it was last year when I couldn't get off it for seven months.  The prior dexascan I had, done 4 yrs ago, read -3.5.  I already suffered a compressed fracture of the lumbar spine when I fell about four years ago.  Both doctors are pushing meds but for the time being, since I am on so MANY other meds for the UC and blood pressure and since Fosamax can cause ulcerations in the esophagus AND I read where there is an increase in esophageal cancer in women who have been taking Fosamax, I am just taking extra calcium with vitamin D.  I thought this would be okay since my scan hasn't shown much deteriation in four years.  I was told about the other meds...injections and Boniva for osteoporosis, but I don't think they have been on the market long enough to prove their safety.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 1/24/2009 12:29 PM (GMT -6)   
I can't remember my score, but I was classified as having osteopenia. I've never been on pred though, but I'm naturally very small-framed, so I wonder if it's somewhat normal for me to be in that range. I did start taking a calcium and vitamin D supplement daily after I found out I had osteopenia and I workout regularly. I first had the quick foot bone density scan and then a full DEXA scan. Both showed the same results.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops

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