I am having a full colectomy...everything is being removed! My surgeon explained the possibilities of future complications with not removing everything and it just seemed silly to leave any of it! : )
I just cannot tell you how comforting and relieved I feel after scheduling the surgery and knowing that it truly is going to happen! I've heard many people say that the moment you wake up you feel better! One lady told me that she felt 'clean'...how wonderful is that?! I've been fairly miserable the past few weeks and I just keep telling myself that the places where I feel all that pain will no longer be there. Then I also think about
the struggles my body goes through in general just trying to fight a diseased organ...so my body is in for a big awakening!!
I think part of the reason why surgery was such an easy decision is 1. my family and supports are amazing...they have made it very clear to my husband and I that we are not alone. Especially after them seeing my struggles lately...it just becomes more and more difficult to hide my misery. 2. I like control. UC has tried so hard to control so many aspects of my life, and I'm tired of the conflict. If I want to walk my son to sleep then hold on to him for another half hour, then I want to be able to do that. Currently I'm lucky if I can rock him to sleep or do anything longer than five or ten minutes to comfort him (he's teething...just finished the molars and working on the eye and stomach teeth). I also want to be in class and not worry about
having to run to bathroom...and then worry about
anyone else being in the bathroom! I want to go to the store and take my time and walk around without feeling the pains and the fear of urgency. I have lost control and had to adjust so much of my life b/c of this silly disease that I'm tired of it! Not to mention it hurts like hell!!! We all understand that!!! So, because of my family and my personal issues with control (I really have gotten much better with the control issue on a personal level with my husband!) our decision to go forward with the surgery was so so simple. The permanet ileo was a little more difficult, but in the end a breeze of a decision to make because it's what's going to give me back my life quicker and without many future complications.
So...I so wish you all luck with finding your remission and long-term treatments that work. I really am not trying to push the idea of surgery on anyone...that is not my intention at all! I just want to share my happiness with our decision. : ) We all understand how frustrating UC and Crohn's can be, and I feel that we have found our happy medium! It is such a big deal and huge decision to go with surgery and remove an organ! But when I weighed the pros and cons regarding how I live my life now...and how I will be living my life post-surgery...NO BRAINER! : )
Anyway, thank you all for your encouragement and support! I hope that I can be one to be there for you when/if you get to a point where your options are limited or you're just struggling to get by...I've been there too.
I wish the best to you all!!!
: ) Robin
Dx-May 2007 Asacol-2400mg bid Prednisone-20mg Remicade-5 Tx
Paxil-40mg Prilosec-bid Multivitamin Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet! I appreciate the small things in life...the little joys that occur every second of every day. Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Meeting with a surgeon next week...and hopefully scheduling the surgery by the end of the month!