Has anyone tried this?

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bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/21/2009 10:19 AM (GMT -6)   
 
My Niece's best friends Mom who lives in England tried this with great success...she also has UC that turned into Crohns : ( but she is doing very well with this.


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*

Post Edited (bbc) : 1/21/2009 9:35:55 AM (GMT-7)


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/21/2009 10:30 AM (GMT -6)   
I think I have a book on that...someone gave it to me and I havn't really looked at it...something about eating probiotic dirt?
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day
[strike]Prednisone 15 mgs/day[/strike]
Prednisone 12.5mgs/day
Diagnosed UC Sept. 2007
Cal-Mag and Iron supps


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/21/2009 10:35 AM (GMT -6)   
If you read the info in the link it seems to explain it for the most part...the person states he was spending lots of money on expensive probiotics and they did not work.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/21/2009 12:00 PM (GMT -6)   
just to note, UC doesn't turn into crohn's or vise versa, she more likely was misDX and had CD to begin with or she is in the 2% of patients that have both UC and CD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 1/21/2009 12:33 PM (GMT -6)   
Rubin is the guy behind Primal Defense, which contains soil based organisms. I tried PD. After a few days of seemingly feeling better, my symptoms got much worse and improved as soon as I quit taking it. The safety of SBOs has been called into question and no one knows what their long-term effects might be.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/21/2009 1:56 PM (GMT -6)   
thanks, why then do some that have surgery then develop crohns?
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/21/2009 7:00 PM (GMT -6)   
They had Crohns to begin with and after the surgery it reasserted itself in a different part of the colon. That's the main difference between UC and Crohns. Crohns can be the whole digestive tract and UC is just the large intestines
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day
[strike]Prednisone 15 mgs/day[/strike]
Prednisone 12.5mgs/day
Diagnosed UC Sept. 2007
Cal-Mag and Iron supps


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/21/2009 7:17 PM (GMT -6)   
Geez, UC and CD together : ((((
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 1/22/2009 9:43 AM (GMT -6)   
Is it right if I have UC and do the sergery, you will NEVER get it again? Or there is still a chance?
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 1/22/2009 10:07 AM (GMT -6)   
bbc said...
thanks, why then do some that have surgery then develop crohns?

Docs are suppose to inform their UC patients before surgery that DX is not always correct and that by having their colons removed doesn't mean that they will be cured of their IBD especially if it turns out they have CD (and were misDX) rather than UC.
 
2% of patients that do have both UC and CD is very rare...and alot of CDers get very confused when their docs tell them they have colitis and don't specify that it's actually crohn's colitis (which is still CD but it's affecting the colon) so that often leaves the patient thinking they have both UC and CD when infact they still only have CD....colitis is inflammation of the colon and too many throw the word "colitis" out there too loosely causing more confusion for others as well as themselves.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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