I have pancolitis and am currently taking Asacol (3 tablets - 4 times a day). Have been taking it since I was diagnosed in Oct 08.
I took pred when I was first diagnosed and that amlost immediately took I'd say 95% of my symptoms away (20+ D bm's a day to 3-5 solidish bm's a day, lots of blood and mucus to very little blood and no mucus, excruciating cramping pain to no cramping pain at all, very urgent to no urgency...)
Since I tapered off pred in November 08 I have been slowly getting worse again. I have never been able to get rid of the blood in my stool - but now i have more urgency, some cramping everytime I eat, sore colon pain, loose mucusy bm's with blood... My bloodwork came back great a couple of weeks ago, but my symptoms seem to be getting worse.
I am in the midst of a referral to a GI - I only have a Gerneral Surgeon for a specialist right now. I'd like to try changing my meds befoer my flare gets worse and I have to go on pred again... I DO NOT want to do that...
Any suggestions for what types of 5 ASA drugs might work differently for me other then Asacol?? I thought Pentasa might be worth a shot - but I heard it is released farther up into the terminal illeum (which I don't need). Then I though Mezevant might be worth a try too (Canada's version of Liada), but I don't know enough about it....
Can anyone relate??
23 years old
Diagnosed October 2008
12 Asacol (3 pills 4 times a day)
Entocort enemas nightly since Dec 2008
Daily Fibre intake - 1 tbsp Metamucil
Protec Probiotics - I pill at bedtime