A Letter to Imuran

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tiggertenn
Regular Member


Date Joined Jun 2007
Total Posts : 48
   Posted 1/22/2009 6:41 AM (GMT -6)   
Dear Imuran,
 
   When we first met I thought I was really going to like you, I thought you would be a great friend.  Now, just 28 days later you have caused so many problems in my life I wish I could rewind and never agree to meet you.  I HATE YOU IMURAN, YOU SUCK!!!!  skull mad You've made my hair fall out, left me exhausted, gave me a sore throat, swollen lymph nodes and I lost my voice because of you.  The worst thing you did was give me pancreatitis (again)!  Because of you I'm eating chicken broth 24/7 and waiting to hear about more bloodwork!  I hate you with all that I am Imuran, I never want to hear your name again.  You are the worst friend I ever thought I had!  I'm going to flush you down the toilet!!
 
skull Yours not so truly,
 
Tiggertenn
 
 
Diagnosed with UC March '07
Colazal 3 pills 3x a day
Prednisone - will never take it again!


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 1/22/2009 6:56 AM (GMT -6)   
You tell it, Tigger!

Sorry you had so many problems on the "drug-not-to-be-named". I hope at least your colon is feeling better.

Get well soon.
UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/22/2009 8:46 AM (GMT -6)   
Sorry you and Imuran aren't friends..lol. As a side note, don't flush your meds down the toilet. I was just reading something at the lab that said to properly dispose of meds, you should put enough water in the bottle to somewhat dissolve the pills, then tape the bottle shut (after removing your personal info), then throw in the trash! I never knew getting rid of drugs was such serious business..lol. I don't know how many meds I've thrown away without dissolving them or taping up the bottle...oh well!
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 1/22/2009 1:36 PM (GMT -6)   
Sorry to hear about your severe problems with Imuran. Not to rub it in, but can't you try taking 6-MP or is that totally out of the question? I have never taken Imuran, I am taking 6-MP since 7 weeks or so and so far, so good, although my last blood work showed that I had slightly elevated liver enzymes and therefore, I will have another test done later next week. Otherwise I feel great so far.

You can just simply give back your unused pills to the pharmacy. They recycle them for you or whatever they do to them.

Your letter to Imuran was kinda cute - not trying to belittle your condition by saying that, but I never read a letter before that was addressed to someone's drugs LOL. Glad you got it out of your system, but now pleeeaassssee get so much better soon!
Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/22/2009 3:46 PM (GMT -6)   
Never throw away your pills till they expire. A hard lesson I learned. Doc's want to switch up medicines. If its not expired, put it in a safe place and wait. You might just get put on it again and have to purchase it again. I keep a air tight tote in a closet in the bathroom, of course there are no kids in the house so....
Hope you start feeling better tiggertenn, funny letter. Least You have a "friend" to blame hairloss on. I guess MY mom's family gets the blame fo that one since I lost just about all my hair at around age 22 or so. Lot of years before UC. LOL Dang genetics.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/22/2009 5:10 PM (GMT -6)   
Sounds like my letter to 5ASA drugs, lol. Anti-inflammatories that make my colon explode with searing heat, excruciating pain, violent spasms and explsoive liquid D akin to a scope prep.... not for me. Good luck and sorry another one of these poisons has been mean to you.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/22/2009 8:12 PM (GMT -6)   
Is Imuran the reason my hair is coming out...I thought it was the Prednisone...
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day
[strike]Prednisone 15 mgs/day[/strike]
Prednisone 12.5mgs/day
Diagnosed UC Sept. 2007
Cal-Mag and Iron supps


kc70
Regular Member


Date Joined Nov 2008
Total Posts : 112
   Posted 1/26/2009 10:09 AM (GMT -6)   
When I opened this topic I was really hoping this would be a love letter. I've just started Imuran, am tapering Prednisone, and I have high hopes for this drug, since Asacol didn't work for me and Prednisone just sucks (plus it didn't really work that well for me either). So this "class" of drugs is my next great hope. Crossing my fingers I tolerate it a little better than you did, tigger. Sorry you're suffering.

ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 1/26/2009 10:42 AM (GMT -6)   
I am sorry to hear that Imuran is not working for you. I had high hopes with 6-MP but when that made me deathly ill and started damaging my liver they switched me to Imuran. I have been on it 45 days and so far i have not had any side effects and my bloodwork has been coming back fine. Not sure if it's really doing anything yet as they are trying to get me off of Prednisone (which they won't start until April so that the Imuran can kick in) so that will be my biggest test. I found i lost most of my hair when starting/and on higher doses of Prednisone. The only thing i have noticed is insomnia which i am not sure is from the Imuran, the prednisone (although i have been on Pred over a year now and this just started a couple of weeks ago) or just plain ol' stress....ugh.
First Diagnosed with Microscopic Colitis 10/07
Diagnosed with UC instead 3/2008
10mg Prednisone
50mg Imuran
75mg 6-MP
Calcium + Vit D
Probiotics
Entocort 9mg daily
800mg Asacol 3X daily
Bentyl
Lomotil
Dicyclomine
Prevacid
 


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 1/30/2009 2:08 PM (GMT -6)   
I have been on imuran for almost a year now and feel better than i have ever felt!!!!!

Lori
38/F
lower left UC diagnosed 1991
Asacal, zoloft, levoxyl, Azathioprine 100m (started 1/9/08)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 1/30/2009 5:37 PM (GMT -6)   
I'm with you tiggerten, my two weeks on Imuran nearly killed me. I bruised so badly and so darkly that even now, two full years later, if you look close you can still see a huge place on my upper arm that is slightly darker than the other skin from an enormous bruise. The headaches and nausea were unbearable. I got rid of all the pills; I wouldn't/couldn't take them again.

After we tried the Imuran my GI spent a few months trying to convince me to try Remicade. Since at that time it seemed like every medication I was trying gave me some sort of side-effect I was nervous as hell to try it, but I was at the point where I couldn't continue as I was. The Remicade took awhile to get me into full remission, but there was a decent improvement after the first infusion. I am currently in a pretty good remission with Remicade infusions every six weeks (next one is tomorrow morning), 4 Lialda each morning and 2 Canasa suppositories per day. I am dumb-founded at the costs of these medications that I will be on indefinitely. My medication co-pays for 2008 $580 thanks to good insurance, the insurance company ponied up nearly $9,000 for my prescription meds, plus $6,000 every six weeks for the Remicade. The Canasa that cost me a $25 copay recently increased to $780 for the insurance portion. I am shoving $800 up my butt every month. Unbelievable!!!!

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
12 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; 12/20/98; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro

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