tail bone and lower back pain

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EdwardC
Regular Member


Date Joined May 2008
Total Posts : 48
   Posted 1/22/2009 9:08 AM (GMT -6)   
Hi,

I am a 41 year old guy and was diagnosed with UC last April. My Gi characterized by condition as mild-to-moderate and my symptoms are pretty much under control with 2.4 g of Asacol daily. However, as of late, I am experiencing lower back and tail bone pain that I really feel after I have been sitting down for some time. It's not enough to effect my day-to-day activities but it is definitely an annoyance. I do exercise and have lost 40 lbs since my diagnosis (intentionally). What can I do to address this problem? Thank you for any suggestions.

PS.

My am of Puerto Rican descent and am still trying to figure out how I ended up with this condition. None of my immediate or extended family have any gastrointestinal problems and we are not exactly of northern European descent. confused

madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 1/22/2009 10:14 AM (GMT -6)   
I also get pain in tailbone and lower back. The tailbone pain I definietely attribute to colitis in the rectum area. Once during a flare the doc did a digital exam and touched an area of my rectum that sent such a burst of pain through my tailbone that I almost jumped off the table. It also hurt for day or so after the exam. Right now I am in a flare and am experiencing tailbone pain often. I use the heating pad.

The cause of my lower back pain, is harder to judge, but I use heating pad for this as well and tylenol arthritis. I do believe there is kind of arthritis common in ibd that causes lower back pain, but I can't recall the name.

Congrats on losing all that weight. It gets harder to do after 40 years. Did you take up a lot of new exercises to lose it. Might something in your workout be causing the pain?
UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


EdwardC
Regular Member


Date Joined May 2008
Total Posts : 48
   Posted 1/22/2009 3:20 PM (GMT -6)   
Thanks for your insights madabs,

Sorry that I didn't spell check the original post. When I was originally diagnosed via a colonoscopy, there was very little inflammation present in the rectum but mild-to-moderate inflammation throughout the rest of the colon. It could be that I have now developed proctitis. I'll wait to see the next colonoscopy results. I am grateful, however, that my illness hasn't led to hospitalization yet or even interfering with work. Asacol has been a lifesaver for me. But I am under no illusion that it can't get worse. So I hope to learn as much as possible from others experiencing similar problems.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/22/2009 6:43 PM (GMT -6)   
I've been suffering from tailbone pain for the last two weeks...I attribute it to all the weight I've lost as there is not as much padding arounfdthat area as before my flair, lost 14 lbs down to 145 : ( I am having my neuro doc check it out for me Friday along with my other spinal issues. Feel better : )
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/25/2009 6:07 PM (GMT -6)   

^BUMP^


I spoke with my proctologist this weekend about the tail bone pain (I had to make an emergency call because I think I ripped open my fissure with these donkey sized BM I get) and he said it could be an infection that got started by the open fissure. Hope this was helpful.


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 1/28/2009 11:32 AM (GMT -6)   
I started my flare mid-May of last year and officially diagnosised August 25th when they did my scope. I am still flaring, even though the worst part is over. My bottom and the upper part of the back of my legs ache still. I have lost some weight about 14 lbs thus far. The achy bottom is aggrevating, but I have decided this is just something I will have to put up w/ for a good while as I have been told that is the last to heal. When I sit for too long it really bothers me, so most of the time I sit on my heating pad.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/28/2009 12:24 PM (GMT -6)   
Gigi, why are you off oral 5asa? Do you think the canasa is enough on it's own? If youre still flaring and are instructed to only take rectals then try cortifoam. I've also developed a red ring around the inside of my butt cheeks probably because I can no longer sit comfortably anymore due to the sore tailbone and weight loss. I am seeing a new GI tomorrow and if I cannot get relief from whatever he suggests I will request to meet with a surgeon. Hope you get into total remission soon.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 1/28/2009 3:23 PM (GMT -6)   
I was told my tail-bone pain is arthritis. I bring a "tush cush" with me when I am not sure about the padding situation of the seating if I am heading somewhere I'll need to sit for awhile, but even with good cushioning I simply cannot sit for very long at all.

It's really quite painful and most time the pain is WORSE when I start to get up. I find Tylenol Arthritis formula works well to control the pain.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
12 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; 12/20/98; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/28/2009 5:03 PM (GMT -6)   
We have this heat/ice discussion before, but I'll weigh in again.
Ice works better for me on my aching back. Even though it feels good, heat makes it worse.
Cold relieves inflammation, heat promotes healing.

I use Aleve, it works although I think it causes me to bleed more when I use it daily.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 

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