Proctitis has advanced to left-sided colitis

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WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 1/22/2009 10:22 AM (GMT -6)   

I was admitted to the hospital on Tuesday morning. The colonoscopy yesterday showed "left-sided" colitis. No more "one" inch in rectum inflamation. I was pretty out of it when the GI explained it to me. I am curious as to what if this difference between left sided and proctosigmoiditis? I am kinda in a bit of shock considered my last scope was in October and just showed "one" inch of inflamation.

The plan is to remain in the hospital for 1-2 more days....with no symptoms on the IV steriods plus the 50mgs of 6MP and 12 asacol pills. Then when I get released I will be on prednisone to a taper (no rectal meds -- Quincy don't you find that odd) and continue the 6MP and asacol. So this def. explains my abdominal pains now. I never had that with proctitis.

suggestions...thoughts...
 
He said the rectum area did look as bad as he saw it a year ago (it was the same covering GI that I saw last year when I was admitted)....but it now went from one inch to 9 inches.....is that alot?
 
Does does diet or alchohol now play a bigger role in staying in remission? The pain in my tummy really hurts. I am on pain meds here in the hospital.
 
Thanks everybody!
 

severe ulcerative proctitis - march 05 diagnosed
current status: In remission (first time no blood since June 08)!!!! -fingers crossed
hospitalized - 3/08 for 6 days of IV steriods
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa and prednisone 
current meds: asacol - 12 pills, 4 pills x3, nightly rowasa enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12
if i can't stay in remission....next up 6MP


Ontario_Girl
Regular Member


Date Joined Dec 2008
Total Posts : 28
   Posted 1/22/2009 10:38 AM (GMT -6)   
So sorry to hear about your latest developments! I am also quite shocked that 1 inch has turned into left sided UC so quickly.....

I don't know about this diet thing....when I was first diagnosed, the doctor said my diet has nothing to do with the disease...now I'm not so sure!

I hope you get better soon.....Oh, and yes, I would ask for rectal meds as well.....we all know that that area often needs extra help to heal..

Keep us updated!
Female
Can I see the light at the end of this flare-up tunnel????!! Fingers crossed..
Proctofoam
Pentassa Suppositories
Asacol
Diagnosed with UC (Proctitis) in 2003 (aged 24)
Green Tea
Digestive Enzimes
Metamucil


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/22/2009 10:46 AM (GMT -6)   
So sorry you are dealing with this. Please don't think what you ate caused it. Keep up with the probiotics! Did they talk about how they can help? Just curious about whether they are trying to get at why it is advancing, or just continuing to treat regardless.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5167
   Posted 1/22/2009 1:22 PM (GMT -6)   
"Left-sided" means that your descending colon is inflamed-- the section of colon between the splenic flexure & the sigmoid. It means that you need to stay on oral meds after you get off IVs. Try not to be alarmed about this because, at least in my experience, inflammation in the descending tends to come & go, whereas proctosigmoid usually flares more often. Before your discharge from hospital ask the doctor about resuming rectal meds. If you're thinking mesalamine enemas, they won't affect the descending colon, but cortenemas would after a few weeks-- thru systemic absorption. Best wishes! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/22/2009 1:29 PM (GMT -6)   
I agree that the inflammation of left sided can come and go because that is what has happened to me over the years. But one thing that is almost constant is my flares tend to be mainly rectal now. So when you flare in the future, hopefully this will be the case. I was originally diagnosed with proctosigmoiditis and it had progressed to left sided and one thing that has always bothered me was the pain. It seems that is usually the last thing to go for me while coming out of a flare. One thing that can help with that pain is a nice warm bath or a heating pad. Or if you have any animals, just the heat of them lying on your lap does wonders too! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 1/22/2009 3:20 PM (GMT -6)   
The colonoscopy Dr. messed up!!!!!!!!!!!!!!!! Yay!! I have Proctosigmoiditis.
I just had a visit for the GI (not my doctor) he brought the results in from my colonoscopy and he showed me the pictures. The picture said proctosigmoiditis....but at the bottom he wrote I had "left-sided colitis".
 
So the same questions:
 
1). can you use rectal meds for protosigmoiditis?
2). is this the start of full blown pancolitis?
 
Also i spoke to the dr. about be released. I have yet to have a bowel movement today shocked --they said its prob. from the pain pills. Anyway, I will no matter what be released on 60 mgs of pred tapered quick to 40mgs and then a slow taper down from there. PLUS my 12 asacol pills and 6MP at 50mgs.
 
Does that sound like a good plan to you all?
severe ulcerative proctitis - march 05 diagnosed
current status: In remission (first time no blood since June 08)!!!! -fingers crossed
hospitalized - 3/08 for 6 days of IV steriods
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa and prednisone 
current meds: asacol - 12 pills, 4 pills x3, nightly rowasa enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12
if i can't stay in remission....next up 6MP


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/22/2009 4:16 PM (GMT -6)   
Yes, it sounds like a good plan. 60mgs is an awfully high dose though...has it affected your sleep any?

As for the rectal meds, yes they are good for proctosigmoiditis. And as for you having pancolitis? Well no one can really say. The majority of people that has proctitis or sigmoiditis never have it spread and I believe it just depends on genetics.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 1/22/2009 7:01 PM (GMT -6)   

Do you mean when I go home and I am on 60mgs of prednisone or NOW being on 60mgs of the solumedrol? The 60 iv in the hospital has KILLED MY SLEEP. I am taking ambien and a klonopin and still not sleeping. It is the worst.

 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/22/2009 9:28 PM (GMT -6)   
If the IV steroid is affecting your sleep then the oral will as well. I can't sleep while on steroids either. The first time I was on pred was for my arthritis a month or so ago. I was only on 10mgs and it affected my sleep - I can't even imagine being at 60mgs! Yes, insomnia is absolutely horrible.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 1/22/2009 9:49 PM (GMT -6)   
it is the worst. i have not slept one night since being on the iv steriods, even with 10 mgs of ambien. though the CR is a much better pill and i hope tonight that works. my dearest husband brought me a few that i had at the house. and i am going to ask for a Rx before they release me.

so basically NO BODY can prevent UC from spreading. mine went from 1 inch to 9 inches since October.
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP (50 mgs)
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa and prednisone 
current meds: asacol - 12 pills, 4 pills x3, nightly rowasa enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12
 

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