UC and pain tolerance

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EdwardC
Regular Member


Date Joined May 2008
Total Posts : 48
   Posted 1/22/2009 7:30 PM (GMT -6)   
Is it possible that two people suffering from UC with nearly equivalent inflammation and disease extent could experience completely different outcomes where one person is bedridden from the pain and another is hardly effected since they have a much higher threshold of pain tolerance? I would imagine that the quality of life of people with UC might be largely determined by their individual pain tolerances if this were the case. I have pancolitis and I don't have too many bad days but then again, I broke my wrist before after a fall and went about my normal day thinking that I just had a sprain.

yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 1/23/2009 12:21 AM (GMT -6)   
We are all individuals, and some people can certainly tolerate more pain/discomfort than others. I am sure that goes for all types of pain, and not just UC. That is something I see in the hospital all the time.

----------------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily to remain in remission

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/23/2009 3:36 AM (GMT -6)   
I do feel that one's individual ability to handle pain makes a huge difference on their ability to cope and live with UC. I have pancolitis and been in a constant flare, losing and up-hill battle with treatments and medications. During this time I started grad school and continued a full-time job, and completed requirements of positions I hold for two other programs. Not to mention being a Mommy! : )

Now, I do feel that not everyone I know could keep a positive attitude like I have, nor continue with daily living such as I have. Though lately my quality of life has greatly dwindled and my abilities have lessened quite a bit. I've had to accept help from my mom and family for the completion of housework and additional support for the childcare of my son. However, this for me, will all be over soon and I can go back to ALL of my responsibilities and rituals. : ) Yea!!!

Note the time...I'm getting off prednisone and my son woke up an hour and a half ago and I'm still up. Though I'm awake, I wish I had the energy to be productive! : )

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/23/2009 7:43 AM (GMT -6)   
I think some people just don't have pain with UC. I don't ever have any pain except for some cramping when I'm having a BM. I think my threshold for pain is pretty high but I honestly think that I'm just one of the lucky ones who doesn't have pain with UC.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 1/23/2009 7:47 AM (GMT -6)   
I can tolerate a ton of pain, but I like to tell everyone around me about it. : )
Age: 31
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day
 
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/23/2009 7:56 AM (GMT -6)   
I have a huge pain tolerance for instance, last summer I had an ingrown toenail removed. The doc sticks a needle with Lidocaine into the tip of your toe several times to numb the toe. You know what? I barely even felt the needles! Since developing Uc my pain threshold has tripled and I know for a fact that if I didn't have such a high pain tolerance, I would of demanded years ago that they remove my colon. I've heard some people on here say that they don't have pain with their Uc and I think "Wow, those lucky ducks!!" I have always had pain with my Uc and when the pain gets bad and it bothers me, THEN I know that something is not right - not that it is anyway!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/23/2009 8:10 AM (GMT -6)   
I have a high tolerance to pain and a very low tolerance to misery. I was one of those UC patients who never had the abdominal cramping. My GI was perplexed. As ill as I was he thought I should be in severe pain. But I don't think the absence of pain made my UC any less miserable than those who experience pain. I did have surgery to remove the colon because I was unable to attain remission. My low tolerance of misery prevailed and I decided I wanted a life back. I do feel for those who have to suffer the other indignities of UC and have the pain thrown on top of it, it's got to be unbearable! I had surgery and was only on morphine for 12 hours post surgery. By the day of discharge I was off vicodin and driving. This is not the typical pain recovery from surgery.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/23/2009 8:25 AM (GMT -6)   
Have never really experienced pain with my UC just cramping and twinges. Of course I am one of the ones with a high pain tolerance. When I was 17 I cut my own plantar wart out of the sole of my foot with a fliet knife and an ice cube. Bled all over the carpet, my mom was P'ed. Never said I was a bright teen. LOL.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 1/23/2009 9:13 AM (GMT -6)   
I'm not sure what my pain tolerance is. I suppose it is average. But as I right this I'm in horrible, cramping pain. I do my best to stay pre-occupied but when I feel like this, there is no chance. Pain has been my biggest issue with UC and despite that, my doctors have never offered any means to control it. Does anyone else take/do anything for the pain? My only defense is a heating pad or my bed buddy (a bean-bag like thing that you heat up in the microwave).

Ryan
Ryan


Meds:

Began Humira on Jan 10 2009


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/23/2009 9:34 AM (GMT -6)   
I had UC eight months before I even knew I had it..I had lots of pain everyday but i guess I just got used to it and my mom got curious and told me to leave it after I used the bathroom and there were blood clots the size of her thumb and she freaked out bc she didnt think i was in as much pain as I was. She said she thought I was her wimpy babygirl lol And after my surgery if i get a headache or if my neck hurts shes like..after all the pain you went through with UC and having surgery, a headache bugs you? But its a different kind of pain then in my stomach so i guess i can take belly pain better.
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =]
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/23/2009 11:30 AM (GMT -6)   
I can withstand certain kinds of pain well; however, I don't find my UC to be that painful.

I only have pain when I'm cramping during a BM. It doesn't really hurt much. I have tons of blood and blood clots. They don't hurt.

I was bedridden once from Colitis. It was from being dehydrated and anemic, not from being in pain.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


builttoride
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 1/23/2009 12:17 PM (GMT -6)   
I think your pain threshold doesn't really work quite that way.

I'd say that 2 people, one with normal pain threshold and one with high pain threshhold would both feel the symptoms equally, but the person with the higher pain threshold would be able to cope longer as the conditions get worse and more painful.

People with high pain thresholds are not numbed, they can just take more pain before reaching their breaking point.

I'd say I had an unusually high pain threshhold for a man (yes womens pain thresholds are generally higher due to childbirth) but I have broken over 30 bones, dislocated my shoulder and my hip, skinned my face, snapped 3 ligaments and torn all the tendons in my right ankle and and left hand, I've also broken my neck and punctured a lung.

Now who is to say if my symptoms are more or less painful than anyone elses... but I'm close to my breaking point. I can cope with the sharp pains, but it is the constant discomfort and pain that I feel is wearing me down slowly. Surgery is fast approaching for me I think, I will be glad to be rid of the constant pain.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/23/2009 4:50 PM (GMT -6)   
WHO DOESN'T HAVE PAIN WITH UC????!!!!!!!!!!

WHAT????????????

Seriously. My UC can get to the point where I have extreme burning, stabbing pains all the time...and it gets to the point that I cannot stand, walk or do much of anything. Even laying hurts. If I bend over or twist it's absolutely horrible! I had no idea that pain was not a common occurance. So really...some only have pain or discomfort when going to the bathroom? Well then.

I'm really shocked. I guess that I just assumed that the pain I constantly feel is normal. I explain my pain as it being like a meat grinder going through my colon and then my body trying to use it. Does anyone else feel like that? My pain is a big factor in why I am so ready for this surgery...so maybe that's one way for me to explain this to others who do not understand why I am so excited. : )
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/23/2009 7:56 PM (GMT -6)   
Robin, I can very much relate! I have always had pain with mine but honestly I can say that I *think* I am in remission now and have had no pain in a while. Though I did see a bit of blood today - but I think that was from hemmies. I usually use the comparison that when I go to the bathroom it feels like there is an alien in me trying to rips it's way out with razor sharp claws! Now if I had that kind of pain all day every day for the past 16 years, either A) I would be insane by now or B) the ole colon would've been gone a long time ago. Luckily though that type of pain only comes when I am in a severe flare. I do however get a pinchy burning type pain on the upper left side fairly consistantly while coming out of a flare and it sticks around for a while. It's not too bad really, just annoying.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/23/2009 8:40 PM (GMT -6)   
Yep. It's true. I don't feel much pain from UC.

My arms went through glass when I was young, and I had to get stitches. I didn't feel anything when I got hurt. I think my nerves shut off (or got cut) and that's why I didn't feel anything. After that incident, I was no longer afraid of pain and could withstand much pain. It can be a problem having a high threshold for pain though. Sometimes I keep doing something even when it hurts. It doesn't seem to bother me.

Perhaps my nerve receptors aren't telling my brain that there is an ulcer and that I should feel pain. Perhaps that's why I only feel it when I'm cramping during a BM. And that pain that I feel when I'm cramping doesn't even hurt much. Sometimes I even like the feeling. I don't know why. Sometimes I like the way pain feels (as long as it's not too painful that is).

Oh yeah, giving birth is the most painful thing. I gave birth twice without any pain killers.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners

Post Edited (subdued) : 1/23/2009 7:43:44 PM (GMT-7)


fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 1/23/2009 9:23 PM (GMT -6)   
Robin -  Sorry to hear about your pain.  I'm going through a horrible flare right now, and although life is very tough for me right now (30 trips to the bathroom, constant accidents, bm cramps, fatigue, etc.), I don't have the pain you are talking about
 
I hadn't heard about the 'meat grinder' type pain before. It sounds awful. That's great news that it will all be over for you soon with your recent decision. 
Diagnosed '93. 
 
Asacol, Prednisone, Remicade, Imuran
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 1/23/2009 10:15 PM (GMT -6)   
When I was first diagnosed, I had a high pain tolerance, but when I was hospitalized, I ended up being a pain medicine patient. When the time frame was up with one dose of pain medicine, I needed another, and if it wasn't given to me immediately I'd be in tears. Now my tolerance is back up, but still rely on my pain medicine every once in a while.
26 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/23/2009 11:01 PM (GMT -6)   
I'm still shocked. Really. I had no idea that UC existed with cramping and some pain...or hardly any pain at all. I can honestly say that since experiencing this velocity of pain I can withstand a heck of a lot more than I could before. For instance, my last staph infection was very painful, and the doctor was numbing my shoulder for the abscess removal and he warned that it would hurt...nope. However, cleaning and packing the wound prior to lidocaine gel, now that was something comparible.

I really just can't believe it though. Some of you don't have 'pain'? What what kind of Crap Deal did we get? Pun intended. I'm always in some kind of pain...as I've never been in remission. Some days are better than others, and when my entire colon is flaring I'm told that I look green and literally dying. Which, I am. Not only do I lose an average of 8 or more ounces of blood a day, but the pain is just excruciating. I've only been in that situation two major times, and it was very difficult getting down from that point. Never again do I and will I feel that. Heck no. So yes, if you can imagine taking your colon through a meat grinder and then putting it back in and asking your body to use it...that's how I feel/felt...like I said...I will NEVER go back to that point again. I'd take 60mg of prednisone before that happens.

I actually just finished the chain part of my countdown chain for my surgery. : ) I'm going to put it in with my keepsakes things once I'm down to the final loop and the sign regarding the surgery date. You see...it pays off making those silly little Christmas countdown bells in elementary school. I was taught to countdown for other wonderful events! (I also used to make them for my healthy eating spurts...I gave myself reward days every so often, and I could have a reward day when I did well with calories for so many days in a row...I'd use the chain to keep me motivated...it works!)
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/24/2009 11:02 AM (GMT -6)   
Hi Robin,

That sounds awful--that your in so much pain that you look green and literally dying. I'll look white and dying due to all the blood I've lost. I also have issues with my blood pressure and heart rate dropping (even though I'm anemic). Your looking green sounds far worse.

I saw by your signature that you have a one-year old. Have you tried fecal transplantation? I know that you must have tried practically everything by now to get your Colitis under control to no avail. But if you have an imbalance of fecal bacteria, then fecal transplantation could help. It put me immediately into remission during my second flare when I was having trouble getting off Prednisone. I could have stopped taking the Prednisone cold turkey if it wasn't for the side effects from getting off the medication too quickly. Anyway, it's just a thought, there is no guarantee that fecal transplantation will work for you.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners

Post Edited (subdued) : 1/24/2009 10:11:06 AM (GMT-7)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/24/2009 11:37 AM (GMT -6)   
When I told my doc I used to have a lot of pain, but not as much anymore, he said, you have just gotten used to it. And I think he's right. I have forgotten that bowel movements are normally not painful.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 1/24/2009 1:38 PM (GMT -6)   
     I agree Peety, I think you just get used to it.  Frankly, I never had much pain, just what I would call "discomfort".  However, last year when I was hospitalized I had a LOT of discomfort radiating from my rectum into the vagina and down the inside of my legs to the knees.  My family doctor felt so bad for me.  He gave me a prescription for Hydrocodone.  I hate to take any med but believe me, I sure needed that.  It made me woozy but did help a lot with the pain. 
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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