Hi everyone, sorry I didn’t get back to you sooner but I haven’t been feeling well up until now. I’ll post a little more about
my resent surgery.
I arrived in admitting at about
11:00 am for my 1:30 pm surgery on Wenday January 21, 2009. They wouldn’t admit me right away because they didn’t have a room available for me. I guess they won’t perform surgery unless a room is available. We waited almost an hour and a half before I was admitted. I then went up to the surgery prep room where they took my vitals and had me sign a few forms. I changed into the normal hospital clothing. The surgeon stopped by to great me a half hour before surgery. She has very go bedside manners.
If you remember at my last surgery in October I participated in a sleep apnea study before and after surgery. As a result of that study I received a letter just before Christmas that stated I have severe sleep apnea. I had no idea that I have it. Because of that they were reluctant to give me more pain killer than needed. I would also have to spend extra time in the recovery room and receive oxygen the first night.
At 1:30 pm they walked me into the operating room and I lied down on the stretcher. They connected the IV and took my vitals. They gave me oxygen and had me start counting. I don’t think I got very far and I was out cold. I woke up in the recovery room and had to stay there for 4 hours because of my sleep apnea. I finally got up to my room at about
8:00 pm and my wife and daughter were sleeping on the chair.
I was in a lot of pain for the first 2 days. They had to get a doctors permission to get extra pain killers. They ordered morphine but they were reluctant to give it to me at first because my blood pressure was low. When they contacted a doctor he said it was ok. I had to spend the first night with an oxygen line to my nose because of the sleep apnea. After my first surgery I had a morphine pump that continuously gave me pain killer and I had a button that I could press for extra pain killer if needed. This time I had to ask the nurse for it and it would take her 10 to 15 minutes to get it to me.
Most of Friday I felt very sick. I was on water only. I felt like I was going to throw up any time. My stomach was very bloated and I threw up once. I finally had my fist bowel movement that night. It was partly in my bed but only a small amount. I quickly went to the washroom and a flood of dark green liquid came out. I thought I was doing better then over night I went to the washroom every 1 ½ to 2 hours and I threw up once again. In the morning I was feeling terrible and they asked me if I wanted to start a clear liquid diet. I really didn’t want to. I am still on water only.
Saturday afternoon I managed to get some sleep and my bowel movements have slowed down. I am now feeling a lot better. As I said earlier I was in the same room I was before at my last surgery. At about
5:45 they came in and wanted to move me to another room. They wanted to setup my old room for women only. I told them I was willing to have a female room mate but they didn’t think that was a good idea. My new room is just 3 rooms down the hall on the same side. I no longer have a window and my phone number has changed. I had to call all my friends and family to let them know. Also the phone line in this room is shared with my roommate. The other room had separate lines. And to top it off I had a television in the other room but they couldn’t get the TV in my new room working until tomorrow morning. That is why I have the time to type this, no TV.
That is my story for now. Take care,
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect