When I was on the high dose of Pred ( 40 mg ) I didn't need sleep at all. There were times when I would go 24-30 hours with no sleep. LOL. Probably why I had such a dramatic weight loss. As I started to taper, that went away. I am now at 17.5 mg. I find that I can function on 6 hours, but it is hard to get up then. My body is screaming for 8 plus hours. There just is not that kind of time in the day. We ( my body and I ) will have to learn to function on 6 -8 hours. Thats all the time I can allow for sleeping. I also detest sleeping through out the day, I always wake up cranky and then can't sleep at night. My normal is to go to bed, lie ther for less than 5 minutes and BE OUT. When on the high does of pred though, I would wake up after three hours and have to find something to do... GF got tired of me cleaning at 2 in the morning. And that is if I went to bed at all. I would even be so awake in the middle of the night that I would work out then. Part of me misses that kind of energy. Though the bad side effects of Pred out weigh the "good" ones. LOL.
I do know that no matter how late I sleep... or what time I get up... My "morning" started then. If I didn;t go to bed until 6 and slept until 9. then my morning bathroom trips started then. If I went to bed at 11 and got up at 2 or 3, thats when my morning bathroom trips started. Still kind of the same way, even though my Throne runs have evened out to 1-2 every morning... morning is a flexible time depending on when I wake up.
Of running myself ragged is the way I have always been. Not sure why, but I have always preferred to run and run till I drop. Always hated to go to bed until I was ready to SLEEP.
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet
as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol