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Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 1/24/2009 12:33 AM (GMT -6)   
I find that I need to sleep at least 10 hours a day when I have or am recovering from UC. My body must need the extra sleep to heal itself. Does anybody else have this problem?
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners

Regular Member

Date Joined Jan 2009
Total Posts : 413
   Posted 1/24/2009 8:07 AM (GMT -6)   
Oh yeah.  I actually missed a lot of work due to sleep deprivation and just being completely fatigued due to UC.  I was having like 10 BM's in the middle of the night and by the time the morning rolled around to go to work it was bad.  I am on medication now and things seem to be somewhat better and I find that i am sleeping a little more sound.  Your body is just letting you know that it needs to heal itself.  Hope ya feel better.

Regular Member

Date Joined May 2008
Total Posts : 388
   Posted 1/24/2009 8:53 AM (GMT -6)   

Yes, right now I am feeling unwell from colitis and I also require about 10 hours of sleep.  I do not nap because daytime sleep makes me feel awful, but I have some resting time in the day as well.  Even so I have that foggy tired feeling through the day and my eyes feel like they are stuck at half mast. 

When I make my bed in the morning I often wish the day was over and I was getting back in!

UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 1/24/2009 12:43 PM (GMT -6)   
I find it hard to give myself permission to sleep in or take naps, even when I'm worn out and there's nothing else I need to do. I feel guilty if I sleep too much, it's my mother whispering in my head that I need to get going, get outside, don't waste the day...
I'm trying to go to bed earlier. And I take a trazadone, small dose to help me stay asleep. It's a woman thing.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 

Veteran Member

Date Joined Mar 2007
Total Posts : 4538
   Posted 1/24/2009 12:48 PM (GMT -6)   
Yes, I need tons of sleep too! At least 9 hours a day and I'm barely flaring right now. When I was flaring really badly I needed even more sleep than that. I could barely stay awake during the day.

I also find since I've had UC that if I don't get enough sleep (even if I get 6 1/2 hours), I'm not just tired, but my whole body feels like crap. It feels like I have a hangover almost. My sinuses get all screwed up, I get a headache and my gut is upset. I never used to have this happen.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops

Regular Member

Date Joined Jan 2009
Total Posts : 135
   Posted 1/24/2009 10:39 PM (GMT -6)   
I find I'm tired all the time, even with 8 hours of sleep. But I can't stay asleep after 8am it seems. I usually have to get up once in the night to pee and when I was on lots and lots of prednisone I would be lucky to get back to sleep. Sometimes i'd be awake for 2 hours. It sucked. Makes going to school interesting when by noon I'm already half asleep. hehe
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day
[strike]Prednisone 15 mgs/day[/strike]
Prednisone 12.5mgs/day
Diagnosed UC Sept. 2007
Cal-Mag, CoQ10, L-glutamine and Iron supps. Also now trying probiotics Bio-K (acidophilus)

Regular Member

Date Joined Feb 2005
Total Posts : 239
   Posted 1/24/2009 11:54 PM (GMT -6)   

yes, I find that I do need to have at least 10 hours as well.  My work is very accomodating for me at the moment and will let me catch up my time when I'm able to.  (knock on wood) I am so glad my boss completely understands what i'm going through.  Most days I get into work by 10 am, supposed to start at 8 am, but i'm in my bathroom mode from about 7 to 9:30 am.  Or that I fell asleep again. 

Or a couple of times a week, I wake up at 2 am and can't get back to sleep, not sure why that happens.  But this are the times, when I fell back asleep and get up to rush to work.

My thought is our body is trying to tell us it's trying to heal and sleeping helps. 

44 yrs old, only 3rd experience with flare-up start oct29.08, Ont.Canada. was 140lbs now 118
current: asacol 400 mg - 2 4x/day
last flare in 2004 with c-diff, went into shock, hospitalized 2 wks, rec'd transfusion
prednisone, asacol, metronidazole
in 2000 rec'd antibiotics(sinuses),c-diff,ulcerative colitis 

Veteran Member

Date Joined Dec 2008
Total Posts : 510
   Posted 1/25/2009 12:12 AM (GMT -6)   
When I was on the high dose of Pred ( 40 mg ) I didn't need sleep at all. There were times when I would go 24-30 hours with no sleep. LOL. Probably why I had such a dramatic weight loss. As I started to taper, that went away. I am now at 17.5 mg. I find that I can function on 6 hours, but it is hard to get up then. My body is screaming for 8 plus hours. There just is not that kind of time in the day. We ( my body and I ) will have to learn to function on 6 -8 hours. Thats all the time I can allow for sleeping. I also detest sleeping through out the day, I always wake up cranky and then can't sleep at night. My normal is to go to bed, lie ther for less than 5 minutes and BE OUT. When on the high does of pred though, I would wake up after three hours and have to find something to do... GF got tired of me cleaning at 2 in the morning. And that is if I went to bed at all. I would even be so awake in the middle of the night that I would work out then. Part of me misses that kind of energy. Though the bad side effects of Pred out weigh the "good" ones. LOL.
I do know that no matter how late I sleep... or what time I get up... My "morning" started then. If I didn;t go to bed until 6 and slept until 9. then my morning bathroom trips started then. If I went to bed at 11 and got up at 2 or 3, thats when my morning bathroom trips started. Still kind of the same way, even though my Throne runs have evened out to 1-2 every morning... morning is a flexible time depending on when I wake up.
Of running myself ragged is the way I have always been. Not sure why, but I have always preferred to run and run till I drop. Always hated to go to bed until I was ready to SLEEP.
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol

Regular Member

Date Joined Dec 2008
Total Posts : 199
   Posted 1/25/2009 4:02 AM (GMT -6)   
It seems like sleep helps me too. Especially being consistent with sleep. If I get 8 hrs a night for a couple weeks my symptoms will subside. But I rarely find that possible. I think the sleeping doesn't really help the physical healing of the colon, as much as it controls stress. Sleep is more for the mind than the body, the more sleep you get the better your body can deal with stress.
Asacol-12 a day
Aloe vera gel-4 ounces twice daily
4 VSL#3
1 Canasa
2 Fish oil supplements

Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 1/25/2009 4:41 AM (GMT -6)   
Sleep has become a luxury for me. Normally I am up at least three times for my UC issues and while my son is teething (which he is finishing molars and starting on the eye and stomach teeth...poor little guy) I'm up with him at least once normally to walk him back to sleep. I would say that I get an average of 6-8 hours sleep, but that's with the interruptions, so really it's more like 3-4 of good sleep...maybe...b/c I could be up with UC issues every 30-45 minutes...and sometimes I don't make it back to bed before turning back around.

I too find that I feel my day is wasted if I'm not up by a certain time trying to get things done. My fatigue has forced me to lay back down when my son takes his morning nap, and lately I've just been a big blob of laziness...or I feel...b/c I haven't been well.

Someone mentioned on another thread that UC is just a fatiguing condition in and of itself...and I could not agree more. It could be that you may not even need to be in a flare to require the extra sleep and relaxation. Our bodies are going through some major issues with this disease. I sometimes feel like there's an alien life form in me that's jsut sucking my life force! : ) And honestly, no amount of sleep really helps me at times. Right now I'm up b/c I did get a few solid hours of deep sleep and I'm tapering prednisone so insomnia is setting in a bit. However, really, I am just tired all the time. All. The. Time.

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!

Regular Member

Date Joined Aug 2008
Total Posts : 327
   Posted 1/25/2009 10:17 PM (GMT -6)   
Wow, it's a relief to read this thread and realize I'm not the only one who's noticed an increased need for sleep. I thought maybe it was just the dark days of winter plus my insomnia medications...

Sarah14, I've also noticed that since UC, lack of sleep makes me physically ill -- it is kind of a hangover feeling, though I hadn't thought of it that way.
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments

Veteran Member

Date Joined Mar 2007
Total Posts : 4538
   Posted 1/27/2009 11:44 AM (GMT -6)   
Good to know I'm not alone in that, emory, though I'm sorry to hear you get that way, too1
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops

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