Thank you all for your advice and care/concerns. I just got so confused because one Dr. said left-sided colitis and one Dr. said it was proctosigmoiditis. It really looks like anytime inflammation passes the rectum it is on the left side.
I am more alarmed that I am not on any rectal meds. I have an appt Friday as a follow up so I will ask. So far still no appetite from the prednisone. I am keeping my fingers crossed. Last time I was on steriods I gained a TON of weight!!!
I had a bowel movement this morning and there was blood. I know I have to give the 6MP time. I still can't believe that regardless of where it is located, I need such a powerful drug to get me in remission. I tried rectal meds for the past year with asacol and a few doses of prednisone. I become resistant to pred and I had to choice but to take an immune sup. drug. I tried to avoid it sooo badly. I was so scared and I stil am.
Elaine - I saw your post and will comment on that thread...but your case sounds a lot like mine. I tried the enemas for MONTHS and MONTHS and no improvement. Obviously taking 12 asacol as well and canasa with the enemas did not put me in remission. So I had to move on. I know your concern with your husband though and I would not wish prednisone on anybody. I am coming out of my skin right now. I have to take SLEEPING PILLS with klonopin to even sleep. I am wack job! Anyway, I wish you all the best and thank god everyday that you are all here!!!
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP (50 mgs)
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone
current meds: 6MP (50mgs), Asacol 12 pills, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12