I think the reason that people are so open on here right from the start is because we are an ONLINE support group. Most of us will never actually meet anyone in real life from here, so we can be open and honest from the start. Even though after a while we do form friendships, for the most part it is still going to be online, not in real life. I for one am not as open in real life as I am on here. Of course the people I see everyday have no help to give because they don't have this disease. People on here do. Don't get me wrong, my family and friends who I do talk to are supportive, but they really can't relate. People on here can. And I agree with ryan, You don't truly get the answers and help you need if you hold back certain key elements of your particular disease.
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet
as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol