Prednisone users- pressure in your head, neck, shoulders NORMAL??

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Regular Member

Date Joined Jul 2008
Total Posts : 35
   Posted 1/25/2009 2:16 PM (GMT -6)   
I have been on Prednisone for 11 weeks starting at 60 mg and on Thursday I dropped from 20 to 10 b/c I just felt awful!  Right now, I feel like my head, neck, and shoulders are going to pop off!  I feel so much pressure b/c of the water retention.  I am so swollen and puffy...please tell me this is normal?  I also feel emotionally unstable.  Help and suggestions please....  thank you.
Current Meds:
4 Lialda daily
Rowasa nightly

Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 1/25/2009 2:40 PM (GMT -6)   
Unfortunately what you're feeling is normal. I think the 10mg drop from 20 to 10 may also cause withdrawl symptoms. Normally it's safer to go down in 5mg intervals. Then after 5mg you can go to 2.5mg.

I was on 40mg for almost 2 years and was on 20mg for a few months recently and I started my taper last Wednesday. I now am at 15mg and will go to 10mg this upcoming Wednesday. In the past if I had difficulty tapering I would maintain the same dosage for an additional week or two until the effects subsided. Isn't Prednisone the best yet the worst medication ever?! I too am extremely swollen and ucky looking. During the summer I was miserable and had horribly swollen ankles and joints. At least when I had the swelling during pregnancy I knew it was for a good cause, but when the steriods cause it and I still wasn't in remission, it was very hard to maintain a positive attitude.

Prednisone also causes emotional difficulties. I was stressed and super sensitive before starting Paxil. Of course each medication effects everyone a little different, but my experiences with Prednisone have not been pleasant and I am looking forward to never being on it again. In fact, once I'm cured and if my doctor EVER suggests prednisone for poison ivy or any other reason I will run screaming from his office. Never again will I consume those little white pills!!!!

I hope you start feeling better soon!!!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!

Veteran Member

Date Joined Mar 2007
Total Posts : 2832
   Posted 1/25/2009 3:01 PM (GMT -6)   
Very normal at and above 30 mg or so. I was overjoyed recently when, as I tapered below 15 mg, I finally stopped feeling back, ankle and knee stiffness and pain. Now down to 10 mg and hoping to be to zero before the summer (it's up to you, Remi!) and never on it again... or else heading to the man (or woman) with the knife.

Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM (acupuncture & herbs)
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade

Regular Member

Date Joined Dec 2008
Total Posts : 274
   Posted 1/25/2009 5:18 PM (GMT -6)   

OK, i just tapered to 25mg yesterday, and I've been walking around today like my head is going to just fall off. I don't know why, I didn't put it together with the pred, since I've been having a bit of vertigo lately too (which my dr. thinks MIGHT be related to the pred as well). I bet that is yes, pressure in my neck and head are probably the pred. You're not alone.

Good times.

Chuck - 28 yrs and counting
Diagnosed w/ UC Dec 08 - pancolitis
Pentasa 500mg 2pills-4x daily
Prednisone 50mg tapering ... 25mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"

Regular Member

Date Joined Dec 2008
Total Posts : 254
   Posted 1/25/2009 7:01 PM (GMT -6)   
My symptoms are joint pain in my knees and extremely irritable. I guess based on what you describe I should consider myself lucky. Best wishes that it gets better.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 1/26/2009 6:41 AM (GMT -6)   
     I know prednisone made my blood pressure soar.  As a matter of fact while in the hospital, and one of the reasons I was admitted to the hospital, it was 210/110.  I was on three BP meds and still had a problem lowering it.  Even when I got home.  So I called a cardiologist and he put me on a water pill in addition to the BP meds.  That finally did the trick.  So...get your blood pressure checked if you are having headaches.   That is the first sign that I get when my blood pressure goes up...headaches.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/ see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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