Flaring when tapering off Asocol

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ldarcy
Regular Member


Date Joined Oct 2008
Total Posts : 32
   Posted 1/26/2009 3:33 PM (GMT -6)   
What are the first symptoms anyone experiences when they are starting to flare?    I'm currently tapering off Asocol, I started at 6/day, yesterday I went down from 5 to 4/day and suddenly I'm not feeling too good - I'm nauseous and I'm having frequent BM's - no blood, so I'm wondering if this could be a touch of the flu or if I ate something that's not sitting well? 
 
So much of this is still new to me, I've only flared twice (once badly) and I'm not sure what I should be watching for!
 
Thanks for any info/advice!!
 
 
Ldarcy
45, female
Diagnosed September 2008
Asocol (2 - 3 times / day)
 
 


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 1/26/2009 7:23 PM (GMT -6)   
Usually I start going to the washroom more with more pain. Sometimes I will have a little mucous. My tummy will hurt too.

You're only on 6 pills a day...I wouldn't be surprised if your tapering is causing a flare. Six pills isn't much.
I'd say you will know within the next couple of days if it's a flare.
Suffered my whole life before being diagnosed. Very bitter.
Diagnosed: August 2005
Health Status: In remission for the first time! IBS, Fatigue, Muscle/Joint pain, "Random Attacks"

Currently On:
Salofalk 1500mg x 4/day
Imuran 150mg x 1/day


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5181
   Posted 1/26/2009 8:39 PM (GMT -6)   
Did your gastro tell you to taper off Asacol? Were you in remission? You may need to stay on med most of the time to maintain remission. That's the way UC works its charms. Hang in there! / Old Hat (nearly 30 yrs with left-sided UC; original Colazal has been my best med for maintaining remission)

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/26/2009 9:01 PM (GMT -6)   
Why would you taper off Asacol? It's a maintenance drug, usually no side effects whatsoever.
I take 3/2x day. Have been ever since it became available.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


ldarcy
Regular Member


Date Joined Oct 2008
Total Posts : 32
   Posted 1/27/2009 9:32 AM (GMT -6)   

My GI told me to taper off Asocol, I was fine with taking it forever if need be but I admit I didn't ask him why I should stop taking it - it actually never occurred to me!  The last time I saw him I had a long list of questions for him, guess that one wasn't on the list smilewinkgrin .

I seem to be the same today as yesterday, no better, no worse, I guess at this point I'll have to wait a few days and see what happens.

 

 

 


Ldarcy
45, female
Diagnosed September 2008
Asocol (2 - 3 times / day)
 
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/27/2009 12:48 PM (GMT -6)   
I am also on 2x3 Asacol now. Early dec had a flare. Started to take a Mesasal supportie in the evening. After about 1½-2 weeks I was in remission again. GI told me to stop with the Mesasal - 1 week later flare again. Now I am on Mesasal again and in remission again. In about 2 weeks from now he wants me to get off the Mesasal and continue with the Asacols. He never mentioned that I should get off those. On the contrary he says it's important to keep the remission using Asacols.

I consider suggesting him to get of the Asacols and instead continue with the Mesasal supporties as my condition is only in the lower rectal. Would that make sense ??? (hmm maybe this should be a separate topic?)
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