kidney stones along W/UC

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redbull
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 1/26/2009 9:59 PM (GMT -6)   
Does anybody have have kidney stones along with UC I have had UC since 2003 I have had 3 or 4 bouts with kidney stones.

Penguin21222
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/26/2009 11:16 PM (GMT -6)   
Hi redbull. I'm new here and I read your post and I've had kidney stones too. I'm 24 years old and I was diagnosed with UC when I was 12 years old and after two years with my body rejecting steriods my body started forming cancerous cells. At the age of 14 I had to have my large intestines removed and I had a ileostomy for two years and then at 16 I had a j-pouch done. Since having that j-pouch surgery done I have noticed that I passed kidney stones at least twice every couple of months.

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/26/2009 11:18 PM (GMT -6)   
Oh yes...as if UC wasnt enough!

I have had 4x since being dx with UC. I have had 1x blasted via lithotripsy. The others passed on their own. My last one was a few months ago.... I passed it at work into a paint strainer....yeeeeeooowwwch.... Actually it hurt worse in my backside before it passed. When it let loose inside, the pressure went away and the pain was gone in minutes. Actually passing it was painless, but I still strained into a paint strainer because I knew it was a stone.

I have learned a few things:
1.) Keep hydrated
2.) Avoid Coke and Pepsi...namely Coke
3.) Avoid caffinated drinks....I still cant drink coffee.\
4.) Drink crangrape, cranberry, or similar....but try to get natural instead of concentrate....too much sugar.
5.) Keep hydrated
6.) Drink lots of water
7.) Keep hydrated....

I am guessing that being dehydrated is a big contributor....add Coke in place of water, along with some UC meds like Sulfa and you have a kidney stone recipe.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 35mg pred (as of 1/20/09), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Flax oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"

Post Edited (mbx5) : 1/26/2009 9:22:08 PM (GMT-7)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 1/27/2009 5:05 AM (GMT -6)   
No, never had them.

mbx5...explain the Coke/Sulfa connection please?

Thnx,
q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


redbull
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 1/27/2009 2:18 PM (GMT -6)   
Thanks alot eveybody for your input. I have a 4.6 stone on its way I just have jabbing side pain when it gets real bad I will have to go to ER for stronger meds if my reg meds don't do the job.Sooner or later this baby will be delivered LOL!!!!

potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 1/27/2009 3:05 PM (GMT -6)   
I was dx with uc in 2003 and had my first kidney stone a couple of weeks ago, hope I dont have anymore. I always drink alot of mostly nothing but water and every now and then decafe tea. I havent drank any soda in years. I had most of my pain in the back in kidney area. didnt take any pain meds for it. just thought I had infection at first, by the time we figured out what it was I was passing it, it is not on my list of fun things to do. hope you deliver soon.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 1/27/2009 3:56 PM (GMT -6)   
I wasn't in a lot of pain with my stone. We discovered it by accident. I had blood in my urine at my yearly OBGYN visit, so my doctor sent off a culture. Never called me back because the culture didn't grow anything. Months laster my urine started looking very dark (the color of tea or coke). Went back to OBGYN thinking UTI and he said, "no there's blood again I'm sending you for an IVP (kidney x-ray with contrast)" Sure enough a 1cm stone in right kidney. Had it balsted and thought all was passed only to be in terrible pain and had to go to the ER where a CT revealed I then had a 4mm fragment I was passing. Very painful. Be careful with pain meds. THEY WILL CONSTIPATE YOU. I learned that the hard way. I actually thought I had an intestinal blockage due to being constipated from Lortab. It was just the 4mm fragment. My GI says there is no relation between UC and kidney Stones but there is between Chrons and kidney Stones. I rarely drink coke or tea and was also told to avoid spinach which I rarely eat anyway. My urine still looks like coke despite being negative for blood and I had a clean CT a few weeks ago. We are waiting on the results of more blood work and urine tests. My urologist has said he doesn't know what is going on, so we're just going to start running every test he can think of. Doesn't make me feel very optimistic.
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Maxalt for migraines and allergy shots once a month 
  • Past meds: Pred., Entocort, Dipentum, Asacol, and Canassa
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/27/2009 4:05 PM (GMT -6)   
I used to get bladder infections all the time but never any kidney stones. I don't drink much soda at all though, just mostly water and gatorade, so maybe that's why. But then again, I used to drink an energy drink every single day so I was always just waiting for a kidney stone, but never got them. Do you think some people are more predisposed to them than others?

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


tiggertenn
Regular Member


Date Joined Jun 2007
Total Posts : 48
   Posted 1/27/2009 8:24 PM (GMT -6)   

I've had kidney stones for the last 13 years, but was only diagnosed with UC 2 years ago.  My docs have explained that you can be predisopsed to stones because they can be genetic.  When I first started having them my doc sent some to be analyzed and the test showed they were made of citric acid ( I was drinking over a gallon of orange juice a day; I love that stuff tongue .  I stopped drinking OJ for about 4 years. A few years ago I had two others analyzed and they were made of calcium.  My doc ran some blood work and found that my body does not absorb calcium correctly so there is a build up in my kidneys.  Then they did an IVP and found that I have sediment in my kidneys...The moral to this story is to stay hydrated.  I find that I mostly end up passing stones in the summer when it is most hot.  I live in TX so the summers are hot, hot, hot!  I've always wondered if along with genetics if there is a link to UC, kidney stones, and gall stones...all of which I have or have had.   

 

Good luck with your stones!!

 


Diagnosed with UC March '07
Colazal 3 pills 3x a day
Prednisone - will never take it again!


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/27/2009 8:34 PM (GMT -6)   
I got kidney stones once. I was taking calcium supps because I was on prednisone and am trying to avoid getting any osteoporosis and stuff. But I was taking the wrong salt form so I got stones. Passed in 3 days. Never had so much pain in my life. Now I'm on a chelated form of calcium which isn't supposed to form stones as easily.
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day

Prednisone 10 mgs/day
Diagnosed UC Sept. 2007
Cal-Mag, CoQ10, L-glutamine and Iron supps. Also now trying probiotics Bio-K (acidophilus)


crazybirdman
Regular Member


Date Joined Jan 2009
Total Posts : 27
   Posted 1/27/2009 9:03 PM (GMT -6)   
Hello all
I have had 3 bouts with k-stones and 1 gallstone and there are more lurking around to cause trouble I have had U.C. or Crohns for 18 years and I have been bipassed with a ilieostomy 4 years and have had the stones within these 4 years so I am sure it has to do with dehidration. Going into the hospital jan 30th for a total colectomy. Fun Fun Fun

Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 1/27/2009 10:07 PM (GMT -6)   
I have kidney stones in both sides at this time. Been having them years before my UC showed up.
Had them blasted twice, but they always return.
Luckily they are "quiet" .

redbull
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 1/28/2009 5:39 PM (GMT -6)   
Still haven't passed this k/sone yet.It has been almost 2 weeks since I found out i had it from my reg medical Dr.its just giving me an achy feeling in my side and groin I dont know if I should wait it out or see a urologist. I have always passed them but it seems this one is taking longer maybe because it is a 4.6. Thanks for your input.

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 1/29/2009 9:30 PM (GMT -6)   
Have a huge one in my right kidney that will need to be cut out some day, they say, too big to blast.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder
  • Culturelle probiotic
  • Pentasa
  • Cortenema


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 1/30/2009 12:17 AM (GMT -6)   
i had one and went to a urologist after it passed. He said to drink lemonade...that the combinaton of sugar, acid etc. helps to keep them from forming. My mom had one a few years back and the ER doc said to drink beer.

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 1/30/2009 9:20 AM (GMT -6)   
quincy - i am not sure there is any hard proven medical significance....actually if you google it, coke is said to be a remedy along w/ asparagus...

here is some info i found on the web from various sites for what its worth:

http://consumerist.com/349287/national-institutes-of-health-cola-causes-kidney-problems

http://www.nytimes.com/2008/01/22/health/nutrition/22real.html?ex=1358658000&en=e916c4dd436a7fa2&ei=5088&partner=rssnyt&emc=rss

http://www.epidem.com/pt/re/epidemiology/abstract.00001648-200707000-00017.htm;jsessionid=JDMLJQMnMnYJYmZPFrcZSBNhXW3RtF5stNpn95GhDDCpFz12DT2l!-348297060!181195629!8091!-1

http://www.fitsugar.com/978734

and so on.....
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 35mg pred (as of 1/20/09), 12 pills Asacol per day, 1mg Atavan per day (anxiety) when needed, Fish oil pills, Flax oil pills, Culturelle probiotics, Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"

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