New girl to UC with a couple of questions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ready4it2stop
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/28/2009 1:06 AM (GMT -6)   

Hi All,

 

I am a 27 year old female who was diagnosed with UC about 6 months ago but have had the symptoms for 15 years. I am on Asacol (3*twice a day) and am having some interesting things happen.

1) The other day I was at a friend's dinner party and after dinner my stomach started to hurt (which happens 80% of the time after I eat). about 30 minutes later I got really light headed and almost passed. I went to the bathroom and had a violent episode. Does any one know what causes my stomach to hurt after dinner as well as the light headedness?

2) For the past month I have had to go #2 many times a day. Usually it is a large stool followed by a lot of small soft stools but sometimes bloody mucus comes out. I have also been experiencing bloody mucus coming out randomly while I am peeing. Why does this happen? Is it ok, normal?

 

Thanks for the help!

 

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 1/28/2009 2:37 AM (GMT -6)   

HI there-

Unfortunately, those are all symptoms of UC and typical of a flare. I am assuming that you were getting sicker and that is how they finally diagnosed you. I have even thrown up from the pain while I am on the toilet, so the lightheadness could be from pain.

Something that helped me early on was the enemas. They helped the lower part of my colon to heal somewhat. Might want to ask doctor about this.
 
Good luck
Jackie, 43
Pancolitis, DX October 06

Lexapro, colazal 3x3, Synthroid, Protonix, 6MP (75 mg)
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/28/2009 7:40 AM (GMT -6)   
It all sounds pretty normal to me. I have had similar problems for the past few months. I take 3 Asacol 3x a day. Maybe you could increase your dose? How long have you been taking Asacol? Do you use any other meds? I use Canasa suppositories before bed and Asacol. If you have been on the medication for a while with no results, you should talk to your doctor about increasing the dose or about other medications you can try. Maybe your UC is at the end of your GI tract and the Asacol isn't helping it. That is why rectal meds help me.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/28/2009 11:22 AM (GMT -6)   
Yep, it does sound like the normal course for a Uc flare. The stomach pain though - well you might want to ask your doc about that. That can, of course, be from the Uc but it can also indicate a sensitivity to the Asacol or even a stomach issue such as gastritis. When was the last time you've had your blood checked for anemia if ever?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ready4it2stop
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/28/2009 1:15 PM (GMT -6)   
Thank you everyone! I am glad to hear that my questions are just part of UC. In the beginning I was taking 4*twice a day but then he cut me back. So I think I need to talk to my Doc about bumping me back up. I don’t take any other meds just Asacol but I will take to him about Canasa. I have never even thought of enemas or anemia...I will certainly bring that up to my doc. What would be a symptoms of anemia? and why do enemas help?

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/28/2009 1:24 PM (GMT -6)   
Sometimes oral medication can not reach the rectum so that is where rectal meds come in. The rectal meds reduce the inflammation in the rectum to the sigmoid and it can promote healing.

The symptoms of anemia are: headache, dizziness, weakness, sometimes sweating and nausea.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 1/28/2009 1:51 PM (GMT -6)   
I am anemic and I was in terrible health. I probably still am but I feel a little better. My heartrate was way too high and I would get winded so easily. I could get winded from rolling the vacuum from the closet to the living room. I was also tired ALL the time and sometimes I would get very lightheaded. This was going on while I was flaring really bad and probably losing a lot of blood.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


ready4it2stop
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/28/2009 2:07 PM (GMT -6)   
Thank you for the info on anemia. I will certainly look into all of these options.

I really appreciate being able to talk to people about a difficult and unpleasant subject. People who don’t have UC really don’t understand the day to day situations we go through. And to know that I am not alone is amazing. This site is great!

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/28/2009 5:37 PM (GMT -6)   
Is the pain in your stomach or down lower, in what I call the gut? Your pain might be a spasm, and it can be so severe to make you feel like you might pass out. When you are flaring, it can be triggered with just one bite. Did you know eating stimulate your bowels? Most people wouldn't even notice, but that's why so many of us avoid eating if we know there are no convenient bathrooms available! Anyway, what you describe is pretty typical UC, unfortunately.

Anemia leaves me tired and cold all the time. If you are anemic, try Slo-FE, it's less harsh on your gut because it's slow-release. Regular iron supplements are very irritating.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


ready4it2stop
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/28/2009 5:50 PM (GMT -6)   
My pain is in both my stomach and in my lower "gut". It varies. In my stomach it is like I ate to much and then when it gets lower it is a spasm. I did not know that eating one bit will stimulate your bowels. I always wondered why my bowels would start working when I just began to eat!!! Thank you for the realization!

beachlife
Regular Member


Date Joined Feb 2009
Total Posts : 473
   Posted 2/8/2009 10:14 PM (GMT -6)   
i'd recommend making a list of what you ate and see if you can figure out what it was. I've had it happen before but now that I've figured out what is bad for my body it's rare for that to happen(thankfully)
---
Proctitis/UC since July 2000
Was Asacol and Rowasa when bad
Now Colazol and Canasa when bad


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/10/2009 9:11 AM (GMT -6)   
Well enemas are very helpful in case the UC has affected the lower part of the colon or the last portion of the colon, because in this region, the oral medications do not help much. Moreover, because of frequent BMs the medicine does not stay there longer. So try enemas. You may give a try to Vitamin E enema. You may see my posting on that on this forum. Mr. Sheldon had recommended me the same. He is 82 and still strong. got cured with Vitamin E enema only and hale and hearty for the last 20 years now. At times in patients with UC, there are other infections like amoebasis, which are mistaken as flare ups. It happens quite often with my sister, who is also a patient of UC. Infact one naturopath / physio comes to her house and gives a soft massage or acupressure on toe thumb and the bleeding / BMs stop. She goes into remission with this acuprssure. I don't know how. But now her husband and my mother can also do that acupressure.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 2/10/2009 12:53 PM (GMT -6)   
Hi, It sounds like you are having a full flare up. I have had two bad flares since I was diagnosed. The first calmed down with a combination or oral and rectal meds. Just one or the other alone - did not wark AT ALL!

I don't believe I ever 100% came out of the first flare though and a few months later I flared again, much worse that time. I ended up on oral pred., Lialda and Canasa BUT it stopped the flare! I agree - look into adding some rectal medication. If you need oral pred. to get this stopped it is better than continuing to bleed and feel miserable! After you get it controlled learn to watch for early warning signs of a flare and treat immediately - hopefully this will keep you from having to take oral pred often. I also suggest looking into strong probiotics.
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 7:31 PM (GMT -6)
There are a total of 2,974,305 posts in 326,165 threads.
View Active Threads


Who's Online
This forum has 161236 registered members. Please welcome our newest member, Althea F. Phillips.
395 Guest(s), 10 Registered Member(s) are currently online.  Details
rocketphd, PAPUN, Girlie, Elizabeth Weaver, Pratoman, DCCrohns, P34, Tall Allen, Jack & Diane, Lanie G