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Sweetpea17
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 1/28/2009 9:18 PM (GMT -6)   
I have had UC for almost 2 years. I find it so hard to deal with. My boyfriend has been great through this hole thing. But its still hard to talk to him about it. Or more like anyone. I cant talk to my dr's about it because i dont have the money to see them. My family have been really understanding about the hole thing. But its still hard. I go over there for dinner or something and whatever it was they made i cant have. I have never been the kind of person that has to have it their way or that they wanted to make a big deal about something. One of the worst parts is going to my boyfriends moms for dinner. Mostly whatever she makes i cant have. She trys and i always feel bad that i have to say i cant have it. But i really dont have a choice. Its that or when my bf and i are driving home im going to poop in my pants. I just dont know what to do about any of this. People act like they know what im going through. Or sometimes that they care. But they really dont. They dont know what its like to be 24 and be pooping their pants, or running to the bathroom all the time, or not be able to do so many things because you might have to go, or even being in pain when your going to the bathroom. Im always praying to God to help me deal with this. I know i need to except this but I dont know how. There are so many foods I love that I can no longer have. More than most are my favorite kinds of food. I really dont know how my bf handles all this all the time. All i know is that I need help with this. I need someone to talk to that can help me deal. Someone that knows what i am going through day after day.

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 1/28/2009 9:35 PM (GMT -6)   

Yes, it is difficult especially if you are not seeing a doctor.  Is there some way you can go to a clinic or get help from your family.  Tell us a little more about what medications you take etc.  There is a lot of help here - very nice - young and old (like me).  We understand. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
January 9 - doctor changed me from Protofoam to hydrocortisone enemas for two weeks - wish me luck.
 
 
 
 
 


Samynic
Regular Member


Date Joined Aug 2008
Total Posts : 56
   Posted 1/28/2009 9:42 PM (GMT -6)   
I am almost 23 and I feel like you were speaking for me. Even down to the not being about to talk to a doctor about it... I dont have insurance :/ Life is hard and sometimes harder...we should be friends.
22 years old
Diagnosed with left-sided UC June 2005
First colonoscopy December 30, 2008- dx'd with Pancolitis

Have taken:
Cortifoam, Sulfasalazine, Cipro, Flagyl, Codine, Hydrocodone, Roxicodone, Canasa, Aloe Vera Juice

Currently:
Asacol, Dicyclomine,Zoloft, Presnisone, Calcium, Vitamin D, Zantac, Flintstones Vitamins with Iron


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16064
   Posted 1/28/2009 10:06 PM (GMT -6)   
I don't have insurance either but I had to suck it up and pay cash to see a GI. She gave me some meds that were helping but the past couple days have been rough. I feel like I am back at square one just on a lot of medication and losing hair. I know exactly how you feel. I was able to eat what I wanted a week ago when I was feeling good but now that I feel bad again, I have to be careful. If I were you, I would pay and go see a GI. If you can get this under control, you can stop worrying about pooing yourself. I was not at all worried about pooping myself a week ago but today I had some friends over for dinner and I Had to run to the toilet 3 or 4 times because I felt like I would crap myself. I guess I shouldn't entertain guests if I am flaring. At least I had a good time. I am happy I saw my friends, I am thankful we didn't go out and most thankful that I didn't poop my pants. I can't believe I worry about this stuff at my age, it is really backwards but I guess it is the cards I have been dealt so I have to deal with it and keep hoping I get better again soon. Appreciate each and every good day. Mine seem to be few and far between. 
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/28/2009 10:45 PM (GMT -6)   
UC is bad enough with meds...God bless you guys and I would check into a county hospital for treatment and meds...please get some help
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 1/29/2009 6:36 AM (GMT -6)   

I just wanted to let you know that you and all the others w/out insurance are in my thoughts and prayers.  This is a very difficult disease to live with and I am fortunate to have insurance right now.  Stay close to HW to learn and give and receive support.

 

gigi1227


Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 1/29/2009 7:16 AM (GMT -6)   

      I just cannot imagine having to go through this without insurance.  My daughter's boyfriend's brother just got diagnosed with Crohn's and was very sick last summer when he was between jobs with NO insurance.  This poor guy is married and the father of two.  He carried insurance on his daughters but none on his wife and himself, which I think was foolish, but anyway he now is paying $440 a month on a hospital bill which was over ten grand.

     Let's hope and pray this new administration will help people in your situation Sweetpea.  I think this new president has a LOT of great ideas.  Let's all pray that he is able to carry them through.


62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 1/29/2009 7:20 AM (GMT -6)   
Amen, Christine!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 1/29/2009 7:22 AM (GMT -6)   
Hi and welcome to Healingwell :) Hey guess what?! You are NOT alone anymore because you found us! :) Yes we are the ones that can actually TRULY relate to what you are going thru.
 
Feel free to vent, share your frustrations, cry on our cyber shoulders or ask questions.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


pom_mommy
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/29/2009 9:38 AM (GMT -6)   
I have been dealing with UC all my adult life. Diagnosed at 17 and im 35 now. This disease has no rhyme or reason. I have been exactly where you are at hundreds of time. My BF at the time , now my hubby of 15 years, dealt with it great. Probably better than I did and still do. Of course he isnt the one going through the symptom BUT I have crapped my pants in front of him, in his truck when we couldnt make it anywhere, had to interrupt lovemaking to run to the bathroom, and he has helped me clean up more times than I care to count. So I guess in a way, he does go thru the symptoms with me. If it wasnt for him letting me vent I dont know what I would do. But that is about where it ends. I cant talk to anyone else about all this. It is very humiliatling and unless someone is going thru it they cant possible understand. Thats why this forum is so great. Even if you dont post anything, just reading what others have to say is very helpful and comforting. I, and just about everyone else on here, have been thru just about anything that you can imagine so if you need any advice (I have found) this is the place to get it. Also, keep your faith! God listens. And remember, Character is built thru adversity.

Lisa

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/29/2009 9:47 AM (GMT -6)   
Sweetpea, one of the things I learned during a really long flare was to make sure I was always near a bathroom 10 minutes after I ate. That was routinely when I began to feel the urge. As soon as that happened, I would excuse myself, go to the bathroom and go. You might see if you have a pattern, and plan to be there long enough to go before you leave. Then you may be able to make it home.

If this doesn't work, you might explain to family members that you really don't eat or don't eat much when you're away from home because of your health issues. Then eat a couple of hours before you go and limit how much you eat while out. It's a pain in the butt, but sometimes the option is to become a recluse and never go anywhere.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Sweetpea17
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 1/29/2009 10:30 AM (GMT -6)   
Im on Asacol and I take Vitamins. I have tried getting some help but it dont really seem to work. When i was living in NC (where this all started) the dr i had out there i loved. She was willing to work with me. To help me see her and get help. But now that i have moved back to OR the dr. i see now is not to nice. I would rather go through all this than see her. But I do know one thing. that is everything works out in the end. Its just trying to get through thats the hard part.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 1/29/2009 2:36 PM (GMT -6)   
All doctor and hospital charges are negotiable.
See if you can pay what they usually get from insurance. The way insurance works, the insurance companies negotiate a smaller rate and then the doctors will try to "cost shift" it to those who don't have insurance. So an appointment might be $100, but they only get $40 from insurance, so see if they'll let you pay what they get from insurance. Be nice, show up in person to try to make an appointment, look pained, tell them you work but can't afford insurance. Ask to use the bathroom, use it, then a few minutes later ask to use it again. I'm serious, it's worth a try.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 

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