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pom_mommy
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/29/2009 7:23 AM (GMT -6)   
I was just reading an article in the NEMJ about a study of uc patients using nicotine patches. It sounds like, for some reason, that nicotine helps bring on remission and stay in remission longer than with normal (steriods, 5asa, 6mps) treatment. There are some side effects to the patches, lightheadedness, nausea, trouble sleeping. I think I could put up with these side effects better than what im going thru now. Does anyone have any other info. on this or has anyone tried it??
 
Thanks, Lisa

glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/29/2009 7:39 AM (GMT -6)   
I tried it briefly, on the lowest dose and it made me nauseous. It was at the same time I was trying other meds so I ended up giving up on the patches because of the side effects.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 1/29/2009 7:41 AM (GMT -6)   
This is a subject that has been posted many times. I came down w/ UC when I quit smoking. I quit smoking in March and began my first flare in mid-May. I tried the patch to see if it would help. For me it didn't. It was an extremely difficult decision for me to make, but I did go back to smoking last November. It has helped my UC tremendously even though I still am mildly flaring. I don't have the neausea, mild fatigue (sleep 10 hours at night), my joints don't ache as bad and the list goes on.

This is such in individualistic disease. What works for one may not work for another. I would never recommend going back to smoking. We just have to do what is best for ourself.

I hope I have been of some help.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


pom_mommy
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/29/2009 7:58 AM (GMT -6)   
Did your doctors put you on the patches or did you just try them at home on your own? How long did you try them for?

Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 1/29/2009 8:01 AM (GMT -6)   
I did this on my own and used them for 2 months.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


cheeky22
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 1/29/2009 9:33 AM (GMT -6)   
Hi
I was diagnosed with UC in May 07 after quitting smoking.  I was using the Nicotine patch but within 3 weeks of quitting I was hospitalized and then diagnosed.  My GI believes that the quitting smoking triggered the UC.  Since then I have smoked and then tried to quit.  Each time I try to quit I have used the patch again and I  start flaring.  I am currently taking Remicade (no other med :-) ) and smoking.
So it seems to me that my UC stays in remission with Nicotine, but the Nicotine patch doesnt seem to do the job.

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/29/2009 9:34 AM (GMT -6)   
I had been a lifelong non-smoker and I tried nicotine patches twice for 3-5 weeks each time; I also smoked from time to time when I was doing the patch. I went up to the max level of patch (22 mg or something like that) which must be like smoking a couple packs a day ... I did get some nausea, quickened pulse, increased blood pressure, and a general feeling of being ultra-wired and nervous. No benefit whatsoever- in fact I had more bowel movements (though not D) from increased motility from all that extra blood pressure- I was probably a temporary heart attack waiting to happen (I hear that if a smoker quits, their heart attack rate instantly drops by 70% or so on average no matter how long they have been smoking). I withdrew very quickly over the space of about a week without problems. It may be that I "really" have Crohn's or it may be that nicotine can mainly benefit former smokers who got UC after quitting. It is also likely that not just nicotine, but other elements of smoking play a role (though, like I said, I did try smoking). Now, if only chocolate would benefit UC.... (I am a former chocoholic and now cannot even touch it.)


Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM (acupuncture & herbs)
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 1/29/2009 2:03 PM (GMT -6)   
My doctor prescribed them for me. I used to smoke too but I quit about 3-4 years before getting UC. I don't think smoking was linked to my UC.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


BigApple
Regular Member


Date Joined Dec 2008
Total Posts : 20
   Posted 1/29/2009 3:52 PM (GMT -6)   
I used smokeless tobacco for years and a little more than a year ago I went cold turkey and a month later a came down with Pan Colitis and I've been flaring ever since. I've been thinking about trying the patch, but I haven’t yet. The other day I was doing some research on nicotine alternative and I found a plant called Lobelia, also called Indian tobacco. Lobelia is similar to nicotine in its effect on the body; however, the Mayo Clinic doesn’t recommend it for any medical condition.

I’ve been thinking about going to the herbal supplement store to see if they have it. Has anyone else come across this plant yet?
Ulcerative Pan Colitis since March 2008
 
Meds:
Balsalazide 3 750MGROX - 3 x per day
Cortenema
50mg 6MP      
Prednesone 2 occasions (hated it)
 
Probiotic:
VLS#3 1 pack 3 x per day
Acidophalis - 4 tables per day
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/29/2009 4:36 PM (GMT -6)   
Doctor says since I use smokeless tobacco, that my body is getting all the nicotene it can handle... LOL.. But he did tell me now was the wrong time to attempt to quit. LOL.. To wait till I had been in remission awhile before attempting to quit.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 1/29/2009 9:22 PM (GMT -6)   
For those using smokeless tobacco, I recommend snus, the no-spit tobacco pouches originally from Sweden. Some US companies make them, but the best are from Sweden over the internet. www.snuson.com is a fantastic discussion forum of snus users from all over. I have been using snus for a year and a half and it is better than nic patches for sure, but nowhere near as helpful for my UC and plain old pack a day king size cigs.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder
  • Culturelle probiotic
  • Pentasa
  • Cortenema


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 1/31/2009 2:10 PM (GMT -6)   
I quit smoking in Aug of '08...literally the same week i was hospitalized for an intense flare...I haven't had a smoke in 6 months and was diagnosed with UC in Nov of '08. 
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Currently on Asacol 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Daily Green Tea, de-shelled sunflower seeds and 1 Multi Vitamin a day

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