Flaring again ugh - Some Sunflower and Spinach content

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sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/29/2009 8:43 PM (GMT -6)   
Hey all-

So I'm having my third flare right now...

Instead of eating the spinach and sunflower seeds I've been taking beta carotene and magnesium which obviously isnt working as well.

How much do you think I'm supposed to be eating so I can figure out how much I'm supposed to take in pill form - if that makes sense??

Does anyone know a way to get asacol and/or canasa for cheap?? My insurnace barely covers it so canasa is almost 600 bucks!

What are you thoughts on using Imodium - I have so much work to get done right now and most of the time as Realtor that means I'm not close to a toilet all the time ugh...

I'm really not feeling too well mentally or physically now..

Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 1/29/2009 8:50 PM (GMT -6)   
I get samples of anything I can get my hands on from my GI.  I have insurance issues as well and the GI's office has always been very nice about giving me lots of samples.

KTM


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 1/29/2009 8:52 PM (GMT -6)   
I order from Canada. Canasa is called Salofalk there. I get like 60 suppositories for 130 or so. It's not bad compared to what they charge in the US imo.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/29/2009 9:34 PM (GMT -6)   
Is it safe to use Imodium while flaring??

I think I might need it tomorrow while showing 15 properties and going to a concert...

sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/29/2009 10:13 PM (GMT -6)   
Just took two Immodium because I can't stop going to the bathroom and the bleeding is just not fun...

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 1/29/2009 10:57 PM (GMT -6)   
Time to try something a bit stronger than canasa perhaps
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/29/2009 11:57 PM (GMT -6)   
I have rowasa as well. The meds work great for me, but once my cycle of them is over, I seem to start flaring within a month or 2 again..

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 1/30/2009 8:32 AM (GMT -6)   
I wouldn't recommend using the Immodium regularly, but as an occasional way to get through an important event or busy work day it should be fine.

I tried using magnesium supplements and they did not work nearly as well as getting my nutrients right from the source. Matter of fact, I'd say the mag supplement actually gave me diarrhea. I had a hard time eating the amount of spinach needed at first, but once I switched to frozen instead of canned, it became much easier for me to enjoy.
 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, Wellbutrin XL, fluoxetine, and vit B-12.
Spinach/sunflower seed diet for over two months with positive results!


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/30/2009 11:22 AM (GMT -6)   
Ill have to get back onto the diet I suppose.

Last night was miserable.

I was able to tolerate Rowasa at bed time and slept decently.

Grumbly stomach this morning but so far so good...

I'm off to show 15 properties back to back now! Wish me luck that my stomach and I can make it through it!!

quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 1/30/2009 1:00 PM (GMT -6)   
You aren't supposed to stop a course of Rowasa..you should be tapering it to help keep your symptoms to a minimum and continue to maintain a remission.

Gut rumbling is normal for most anyone just before a bm anyway.

I agree to not use the imodium a lot...maybe you could ask the doc for dicyclomine or an antispasmodic rather than that...or maybe a half might help without imobilising your gut.

What asacol dosage are you on?

Hope you feel better soon!
q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 1/30/2009 2:12 PM (GMT -6)   
If you're bleeding, my GI said it's not safe to use Immodium. He said I could use it with my current symptoms: no blood, 3-6 BMs/day, mostly formed, mild rectal inflammation. But check with your doctor first! Hope you feel better soon.

You should use the Rowasa as maintenance. You can taper them down to every few days or even once a week, whatever works for you.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/31/2009 1:04 AM (GMT -6)   
It weird, my doctor never had me taper any of my meds.

I'm using one Rowasa at night now.

I was on Asacol 2 pills 3 times a day.

I am meeting my Doc this coming thursday to discuss how I can deal with the miserable price of pills.

He prescribed something else this time other than Asacol - thinking it might be a bit cheaper for me. Something like Lialda??

Blah

Feeling okay after just ONE night of Rowasa though.

quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 1/31/2009 4:24 AM (GMT -6)   
Well, we discuss tapering the rectal meds often. It's unfortunate your doc didn't suggest it...but...did he suggest you only take a course of enemas then stop them abruptly?

It's good you're feeling better.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 1/31/2009 11:39 AM (GMT -6)   
No he suggested pills and enemas, but I was out of pills, enemas I have plenty of - my last flare I bought both canasa and rowasa, but only used the canasa thus I have a full course of Rowasa just sitting here so I figured I'd get started on that right away until my doc could call in the pills.

Is that new pill he prescribed any better or worse than asacol??


Also, my doctor himself has UC - in fact to the same extent that I do, however he has only had 3 flares in like 7 years so hes been luckier than I.

I'm hoping I can get into a solid remission soon :(

I react really well to the meds, but can't manage to stay in remission - maybe it has something to do with not tailoring off the meds??

Sweetpea17
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 1/31/2009 11:49 AM (GMT -6)   
Hey sgtpeper

I know how hard it is to pay for Asacol. So i found out that if you have a low income you can get it for free for a year. Procter & Gamble have this program or whatever you call it. You just call a number to get a app. and fill it out. you have to have your dr. help you because there are parts on it that they need to fill out. But let me tell you it has been the best thing about all this UC stuff. I dont know what i would have done if i had to keep paying for it. So here is the number.

1-800-830-9049 between 8:00am and 5:30pm central time, monday through friday.

I hope this helps

RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 1/31/2009 1:29 PM (GMT -6)   
sgtpeper--


I highly suggest tapering as Heather suggested. I did not taper at first, either, until I read heather describe tapering processes she used-- and it works well for me. My doctors never mentioned tapering except for pred-- but it makes sense to taper any of those bottom-up meds. And when I mentioned that I taper the enemas, I often got weird looks-- but I'm sold on the idea. The last time I flared I used these enemas and I tapered and enjoyed a long period of remission.

I don't know if it is in my head or if this really is happening-- but whenever I aggressively treat my UC (I have lower left side UC) with the enemas, my symptoms will improve dramatically and quickly but even when the bleeding and mucus stop, the cramping is still pretty awful for a while-- and that is my clue not to stop the enemas but to keep going despite the improvement. When and only when the cramping is gone will I begin to taper-- and the tapering can last for several weeks. Slow is good. Give your body time to pick up the healing process while slowly decreasing those meds.
Ryan


Meds:

Began Humira on 10 Jan 2009

Second injection: two pens on 24 Jan 2009

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