NEWLY PREGNANT ON 6MP

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Lynn27
Regular Member


Date Joined May 2005
Total Posts : 351
   Posted 1/30/2009 3:14 PM (GMT -6)   
I have had UC for about 5 years now. I am taking 6mp and asacol. I just found out i am pregnant and i am truley scared. I was pregnant about 3 years ago and miscarried after seeing my high risk ob and was told it was okay to be on the 6mp. But now that i am looking online and seeing that maybe its not okay to be on this. I am really confused and don't know what to do. I have been in remission for awhile now but also had to quit smoking when finding out i was pregnant. so if i stop the smoking and 6mp is that going to be worse for me and the baby?? What to do???
Ulcerative colitis (whole colon)
since 2002
 Feeling well....as normal as we can I guess!
 
 
  • 6MP 50mg daily
  • Rowasa enemas when needed 
  • Flinstone vitamins
  • Asacol 3 pills 3 times a day


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/30/2009 3:19 PM (GMT -6)   
All I can say is that if it was me I would not risk the kid with the medication. Too many things they just don't know about long term side affects and stuff.
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day

Prednisone 10 mgs/day
Diagnosed UC Sept. 2007
Cal-Mag, CoQ10, L-glutamine and Iron supps. Also now trying probiotics Bio-K (acidophilus)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 1/30/2009 3:23 PM (GMT -6)   
Listen to your doctor's recommendations. You have to weigh any potential risk from the medications against the risks to you and the baby if you are flaring badly. Risk of miscarriage is higher in a really bad flare.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 1/30/2009 8:25 PM (GMT -6)   
Congratulations on your pregnancy!! I know how you feel with the info about 6MP and pregnancy online. It's really scary. If you have found a high-risk OB-GYN who you trust, I would go with their opinion over anything else. I am on imuran, and got conflicting advice about pregnancy. In the end, I spoke with two high-risk docs from Harvard who said that it is infinitely safer for me to be pregnant and healthy on my imuran than to come off the medicine and risk a flare-up.

A good high-risk OB will monitor your pregnancy really closely, and seeing good test results come back always does wonders for my anxiety.

Best of luck to you!
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/30/2009 8:37 PM (GMT -6)   

I agree with all that has been said, trust your OB/GYN.  It is far worse for you to go off medication and have your health fail.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 1/30/2009 9:59 PM (GMT -6)   
I was told by my GI and pharmacist that while on Imuran I was not to get pregnant and to avoid pregnancy for five years after I stop taking the medication.
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day

Prednisone 10 mgs/day
Diagnosed UC Sept. 2007
Cal-Mag, CoQ10, L-glutamine and Iron supps. Also now trying probiotics Bio-K (acidophilus)


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/30/2009 10:01 PM (GMT -6)   
I was on 25 mg of 6MP for my first trimester (34 weeks pregnant now). My dr. said anything 50 and under was safe. There is a separate thread about this a few weeks ago if you search for it and several people weighed in. Basically my doctor talked to some "expert" at a seminar she attended and he told her the concerns are for much higher doses than 50 mg. I mostly quit taking it because it did nothing for my UC.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 90
   Posted 1/30/2009 10:47 PM (GMT -6)   
Lynn - First of all congratulations! I know it's really hard to be excited when you are so scared and nervous. That was me 7 months ago. I'm currently 31 1/2 weeks pregnant and am on 6MP. Before getting pregnant I had talked to three different GI's about being being on 6MP if I were to get pregnant. All three were in agreement that it would be much better for me to stay healthy and in remission than to risk a flare in the first trimester. I also went to a conference were an "expert IBD specialist" GI from Chicago also said that newer research believed it was in the mother and baby's best interest to stay healthy and flare free if possible during pregnancy. It's easy to hear those things, but it's another thing to go through with it. I also consulted with my reguaar OB and and high-risk OB about this. The high risk OB concurred with the GI doctors and had previous patients on 6MP. She even said if I had to go on prednisone while pregnant that it would be okay too (just completed a 2 week, daily 20 mgs dose).

Despite hearing all of that I was still very nervous about getting pregnant while on 6MP. I got pregnant earlier than expected (GI had wanted me to wait a few more months until he could do a scope and confirm remission), but I accidentally got pregnant. I was terrified at first until I saw and heard my baby at 7 weeks. Ironically, at the time I found out I was pregnant was also the BEST I had been feeling UC wise and health wise in 2 years. All through my first trimester I felt GREAT. I had not a single UC issue at all and finally realized what "normal" people feel like. All my doctors were so pleased and said they didn't want me to go off the medication and the fact that I was feeling so good they said was a good sign and to not change anything.

I had all the first trimester screens recommended and everything came back fine. My 20 week ultrasound complete with and extensive look at the heart all looked good. All signs are pointing that the baby is healthy. I am having two more ultrasounds to check the baby's growth in the next two months. So far, I've gained the "appropriate" amount of weight and am measuring to size as my due date, so we believe the baby is growing and getting the nutrients she needs.

Having said all of that, I did start flaring in the second trimester, but it's manageable and my GI recently just increased my 6MP dose to 75 mgs (with my high-risk OB and OB's consent). It had been 50 mgs one night and 75 mg the next. But my GI seems to think that as I've gained weight in pregnancy my dose wasn't high enough. So that is something to keep in mind as you progress in your pregnancy.

I know you are nervous and there is so much conflicting information. I just wanted to share my story with you, because I was in your shoes not too long ago. I finally just accepted the fact that this was my situation and am making the best decisions I can given my situation. I also had to put my faith and trust in my doctors and believe they all have my and the baby's best interest in mind. Congratulations again and I wish you a happy and healthy 9 months.
Diagnosed UC - 1993
33 year old female, 29 weeks pregnant with second child

Current Meds:
6-MP - 75 Mgs
Colazal (3 pills two times a day)
Folic Acid, Prenatal, Omega 3 Fatty Acid (2 capsules)


Lynn27
Regular Member


Date Joined May 2005
Total Posts : 351
   Posted 1/31/2009 7:06 AM (GMT -6)   
Thank you all so much for your advice.....Jm21204 and LWW1993 thank you for your story. It is always so nice to hear of a success story to put your nerves to rest just alittle. I will try to keep you updated on how things are going. And please keep me updated on your pregnancies as well....good luck and congrats to you both.
Ulcerative colitis (whole colon)
since 2002
 Feeling well....as normal as we can I guess!
 
 
  • 6MP 50mg daily
  • Rowasa enemas when needed 
  • Flinstone vitamins
  • Asacol 3 pills 3 times a day


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 1/31/2009 8:51 AM (GMT -6)   
Congratulations and good luck to you too!  I'm glad I could help in any way. 
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


AHM2006
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/1/2009 10:37 AM (GMT -6)   
I was on 6MP when I got pregnant as well. It was a terribly stressful choice deciding whether or not to take it. I decided against it because I was so nervous that it was going to cause birth defects plus I was going to have to go off of it to breastfeed anyway.

Good luck with your decision.

AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 2/1/2009 11:57 AM (GMT -6)   
hi there,I was pregnant 2 years ago and my UC was not in remmission,so it was a bit of a nightmare,
having said that my consultant did tell me if you are in remmission when you find out your pregnant, the chances are that you'll stay that way,in some cases the uc even improves,best thing I think is to stay on all meds as that situation is although not ideal,is infinatly better than flaring when your pregnant.
You have every reason to be optomistic,if you have problems with loose bms and and diahrea you'll probably be very suprised to see this clear up,if you are prone to constipation as I was my advice is to take plenty of extra soluable fibre,prune juice extra to keep regular otherwise this can cause flares in pregnancy as your bowels tend to slow down and this in itself can agrivate the uc I'm only saying this as I wish someone had told me that.Anyway women have had successfull pregnancies,whilst taking,imuran and 6mp
and even if things get a bit difficult doctors can moniter you and baby,I had to have a ton of IV steriods when I was six months pregnant, to calm dowe a flare, but I'm fine now with a healthy toddler,try not to worry too much take it day by day,keep posting to let us know how you are doing take care and goodluck
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