question about probiotics

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cyn555
Regular Member


Date Joined Aug 2008
Total Posts : 306
   Posted 2/1/2009 2:42 PM (GMT -6)   
is it normal to get alot of gas when you start taking probiotics? does it last long?
 
- 23 year old female, Gatineau, Quebec
 -diagnosed with UC june 2007 panacolitis
- Asacol (6 daily)800mg
- Salofalk (1 at bedtime) 1000mg


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/1/2009 2:44 PM (GMT -6)   
Yep. It only lasted about a week or so for me.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 2/1/2009 5:24 PM (GMT -6)   
The first week or even first two weeks are kinda sucky, that's true. I started Probiotics while in a flare and it was no good idea. So I waited a bit for things to calm down and it kept getting better from there. Hang on in there!

Scarlett, 38 yo., TX
Pancolitis since 3/1997
Worst flare of my life from 8/2008 until mid 12/2008 - bye bye flare! Was about friggin' time ...
 
Meds
6 x Asacol a day
0 mg Prednisone (stopped Dec 14, 2008)
75mg 6-MP (started Dec 1, 2008)
Align
Flintstones Complete Vitamins


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/2/2009 12:38 AM (GMT -6)   
Some people notice symptoms like that, it's known as "die off" and some are more sensitive to die off than others...I'm sure things will be fine soon.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/7/2009 1:21 AM (GMT -6)   
Hi Peety. I am also an attorney. May be we suffer from UC because of stressful profession we chose. THat is what my first GI told me during the initial diagnosis. He said I am in wrong profession. Diagonsed with UC in 1989 - Well that way you are much senior considering the date of diagnosis. Had worst of times - been on and off on pred for over 16 years and finally gave in to J pouch surgery. Life became much more painful after this surgery related compliactions like incisional hernia, fistulas, allergies, food reactions. Can't have any food except home made cheese. MY advice to everybody is save your colon as long as you can and avoid surgeries through alternate remedies. I did try ayurvedic, unani, chinese, herbal, homoepathy and yoga too. Well even tried Vitamin E enemas - but that was at a very late stage. Anyway one can definitely try home grown fresh turmeric. Eat turmeric first thing in the morning, empty stomach. It is very healing and creates a lining in the entire system from food pipe down to the colon and protects it from all kinds of reactions and bleeding ulcers. One can also try Sallaki - bosenwalia. I did try and it helps. But try haldi/turmeric. it is very good being a natural anticeptic.
Good HEalth to you all.
If one becomes sick and patient, one thing one should never loose is patience.
Cheers.
PS - Mal - 45 years
Diagnosed UC Oc 1989
Had J Pouch November 2005

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/7/2009 3:54 AM (GMT -6)   
My gas never went away. I was pretty uncomfortable. But I couldn't "pass" without an accident.
I had to stop probiotics and try yogurt. Activia really helped me. and I noticed if I went a few days without eating it, I'd get gassy that way.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/7/2009 11:28 AM (GMT -6)   
PSA.Delhi said...
Hi Peety. I am also an attorney. May be we suffer from UC because of stressful profession we chose. THat is what my first GI told me during the initial diagnosis. He said I am in wrong profession. Diagonsed with UC in 1989 - Well that way you are much senior considering the date of diagnosis. Had worst of times - been on and off on pred for over 16 years and finally gave in to J pouch surgery. Life became much more painful after this surgery related compliactions like incisional hernia, fistulas, allergies, food reactions. Can't have any food except home made cheese. MY advice to everybody is save your colon as long as you can and avoid surgeries through alternate remedies. I did try ayurvedic, unani, chinese, herbal, homoepathy and yoga too. Well even tried Vitamin E enemas - but that was at a very late stage. Anyway one can definitely try home grown fresh turmeric. Eat turmeric first thing in the morning, empty stomach. It is very healing and creates a lining in the entire system from food pipe down to the colon and protects it from all kinds of reactions and bleeding ulcers. One can also try Sallaki - bosenwalia. I did try and it helps. But try haldi/turmeric. it is very good being a natural anticeptic.
Good HEalth to you all.
If one becomes sick and patient, one thing one should never loose is patience.
Cheers.
PS - Mal - 45 years
Diagnosed UC Oc 1989
Had J Pouch November 2005
 
Hi,
My first GI said he had lots of young DC lawyers as patients, so there is something to be said about that. But I don't find stress affects my UC, and I don't really have too much stress in my job or life anymore. I got UC from taking Accutane, but just recently figured that out and my medical records have been destroyed by now so I can't even prove I took it so I can't join the litigation.
 
It's not often that we hear that j pouch didn't go well, I have often wondered if I should have had it a long time ago. I manage OK, not great, but OK. Prednisone still works for me when I need it and the side effects have been temporary. I guess it's a very individual decision, depending on lots of factors.
 
The naturopathic doc gave me a supplement that is supposed to strenghthen my colon, but I can never remember to take it. I think it has some of that in it, as well as licorice root. I will give it another try.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/9/2009 12:44 AM (GMT -6)   
Hi Peety
I am pleasantly surprised after coming on this forum that most of the people with J pouch are doing fine. I wonder how come in India, I have yet to come across a person with J pouch who is doing well and not repenting. Everybody is cursing as to why did they go for surgery. May be the post op care here is not as good as abroad or the commercial issues with the Surgeons. God alone knows. I have been going to hospital for dressing after my first stage everyday for over 5 months and did not come across a single person who is doing well. I wish I had travelled to US and got it done over there.
Try alternate remedies and don't go in for J pouch unless it can't be avoided. Cheers and good health to you all.

Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/9/2009 8:09 AM (GMT -6)   
My first GI said he had lots of young DC lawyers as patients, so there is something to be said about that. But I don't find stress affects my UC,
Lot's of people have stress without getting UC. Actually most stressful people in the world don't have UC. So stress cannot be the reason for UC, but I'm sure it can contribute to falring once you got it.
 
and I don't really have too much stress in my job or life anymore.
Try to get 3 kids within 1½ years and you'll have it back. I know  tongue
 
 
It's not often that we hear that j pouch didn't go well, I have often wondered if I should have had it a long time ago.
As much as I appreciate this forum, this is also an example of the "danger". One guy having problems with something (or 100 people for that matter) and suddenly we fear this too. This is a global forum, and in the US alone there are millions of people with UC.
It is very easy to create a looong list in your head of what will make you sick if you think everything will apply to you.
To my - very limited - understand a lot of people who finally had surgery think it was a great decision and are doing fine.
 
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