I learned something new...for me at least : )

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Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 2/3/2009 7:37 AM (GMT -6)   
So, I've decreased my prednisone to 15 from 20mg...and have felt/seen some pretty bad changes.  However, I am also 'starting' this week, and it seems that each month I do get worse the week before.  So, yesterday I was in so much pain it brought me to tears, and I refuse to go back up on the prednisone b/c the end is almost here and I've worked hard to get down from the 40mg.
Well, my husband brought me 2 vicadin (sp...sorry!) and I slept all night!  I did!!!!  Then this morning I was sick a little, but nothing like yesterday!  So...I'm just going to take one in the morning and one in the evening to get me through till Thursday afternoon b/c that's when my prep starts and then Friday is the big day! 
I just wanted to share my little narcotic story...I am amazed that I slept all night...well, till 4:15am...that's good enough for me! 
: )  Robin
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
"Your mind is like a parachute, it only works when it is open."
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!

Mommy pooh
Regular Member

Date Joined Apr 2008
Total Posts : 131
   Posted 2/3/2009 7:56 AM (GMT -6)   
I see your surgery is later this week. Good luck and we'll be thinking about you. Hopefully things will get better.
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Maxalt for migraines and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.


Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 2/3/2009 8:19 AM (GMT -6)   
Yes, vicodin can slow your bowel down so it's no wonder you were able to sleep all night. Good luck on your surgery and I hope all goes well.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
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Veteran Member

Date Joined Mar 2008
Total Posts : 1202
   Posted 2/3/2009 9:34 AM (GMT -6)   
My daughter's first fun drug experience(hospital and mom supervised) was with Morphine. It was a temp. cure for UC, as it too slows the bowel down. Not a long term option, unfortunately!
Good luck with the surgery. We will be rooting for you.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.

Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 2/3/2009 10:02 AM (GMT -6)   
I figured my good experience was b/c of the slowing of the bowels...my poor tummy needed a break...anything that goes through me is just excrutiating.

In fact, after my last hospital stay I was on pain killers for quite some time b/c of my open wounds, and I was also furthering in my Remicade treatments...so when I was seeing a positive change in my frequency my husband commented that he didn't want me to get my hopes up too high in case it was the pain killers doing the trick. He was right. : )

So, for my short term need I will keep up with the vicodin and hope for the best!

Thanks for you thoughts and wishes!!! Friday is going to be the start of my disease free life!!!!!
: )  Robin
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
"Your mind is like a parachute, it only works when it is open."
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!

Regular Member

Date Joined Feb 2008
Total Posts : 21
   Posted 2/3/2009 5:21 PM (GMT -6)   
 Good luck On the 6th with your surgery. I hope everything turns out great for you it sounds like you have suffered so much.  I will be having my second Remicade infusion on that day I hope it works nothing else has. I will be sending good thoughts your way.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 2/3/2009 5:26 PM (GMT -6)   
Just note that vicodin, being a narcotic, also slows down digestion. It might make your prep all the worse if you're backed up because of the vicodin!

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

New Member

Date Joined Feb 2009
Total Posts : 5
   Posted 2/3/2009 9:25 PM (GMT -6)   

Robin please let us know how every thing goes in the next week or so.  I feel for you being a mom of a little one trying to deal with this flare up.  I remember it all too well.  My thoughts and prayers are with you.  I'm glad you got some sleep. 

I hope you have some help with your little one.  I was diagnosed in 1994 and had one flare up in 2001.  I have had three in the past 9 months and this last checkup revealed "pancolitis" and it use to be left-sided. 

I will keep you and your family in my thoughts and prayers.



Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 2/4/2009 5:23 PM (GMT -6)   
     I'll keep you in my prayers Robin.  Good luck!!!  Keep us all posted.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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