Eva Lou said...
Joy, I know you've had success with that before- do you plan to do it again? It intrigues me a bit, but not enough to give it a whirl. I don't think I could ask my husband to be the donor... I could get it from my 6 year-old daughter. But isn't there a chance of getting some awful bacteris or pathogen or something into your body, causing a massive infection? I have a fistula- if I did this procedure, isn't there a chance the enemas contents could get into the fistula & possible spread thruout the tissues, causing serious issues? I'm still stuck in old-world Western medicine thinking- if it really helps, why does NO ONE in the US practice it? Just seems bizarre- you can get almost anything anywhere these days, ya know?
Hi Eva Lou,
Why does no one in the United States practice it? It's relatively new. The technique was developed in Australia. Apparently, there are some doctors trying it in Canada. I think there are even some testing it in the United States (http://bodyodd.msnbc.msn.com/archive/2008/12/09/1704381.aspx).
Yes. I do plan to do fecal transplantation again if I have another flare or if one of my kids has another baby. I didn't do it with the last flare, because I was able to buy Probiotics. But the Probiotics took longer. The effect from fecal transplantation was immediate.
I get infections all the time--skin infections, bladder infections, ear infections, sinus infections. If I get a cut, the cut gets infected. I didn't even think about
the possibility of getting an infection from fecal transplantation though. What kind of awful bacteris or pathogen is a baby going to have? I guess that's the way I perceived it. But you are right; there could be something. I just didn't see it as a risk with my baby granddaughter. The only negatives for me are the grossness in asking for someone's poo and the possibility that it won't work.
There is a way to get the stool and blood tested if you are worried about
pathogens. According to MAD (another poster on this forum), you would need to test both the patient and donor for the following:
B) HEP A IgM, HEP B,C
C) FBC,ESR,CLOTTING SCREEN, TSH,
ANA, U&E, CREAT, GLUC, LFT, RhF,
HLA – B 27, RED CELL FOLATE, B12,
ANTIGLIADIN Abs, ENDOMYSIAL Abs, CRP
D) H. PYLORI Abs.
C) CULTURE INCLUDING CL DIFFICILE + TOXIN
YERSINIA, AEROMONAS, KLEBSIELLA OXYTOCA, CAMP JEJUNI, STAPH AUREUS.
ANTI-ADHESIN ANTIBODY TEST FOR E. HISTOLYTICA.
The fissure might be an issue. You might want to ask about
that if you ever think of doing it.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission
Lexapro (for stress)
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners