Do you know what makes you flare?

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Qvist
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Date Joined Jan 2009
Total Posts : 145
   Posted 2/4/2009 4:29 PM (GMT -6)   
Do you have an idea of what makes you flare?
I do not mean what irritates your bowel when you are already flaring etc.
What I mean is - what makes you suddenly go from Remission to Flare?
 
Do you think....
- it is something you eat?
- something you don't eat
- phsycological?
- Stress
- Random
 
Could it be a build up over time of something you eat or ???
 
 
 

Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 2/4/2009 4:39 PM (GMT -6)   
I have no idea. I think it's random. Perhaps, seasonal as well?
I could understand a build up of bad food causing a flare over time too...too much irritation finally makes flare.
Suffered my whole life before being diagnosed. Very bitter.
Diagnosed: August 2005
Health Status: In remission for the first time! IBS, Fatigue, Muscle/Joint pain, "Random Attacks"

Currently On:
Salofalk 1500mg x 4/day
Imuran 150mg x 1/day


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 2/4/2009 4:42 PM (GMT -6)   
Great Question! But unfortunatley you won't hear anyone answer it convincingly b/c the fact is it's probably a factor off all those except Random. I have had UC for 4 years and don't think it is at all Random.
I'm interested to see what ppl think though...
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 2/4/2009 4:43 PM (GMT -6)   
lol. i just read Asia's comment after i posted. :)
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/4/2009 4:59 PM (GMT -6)   
Got2Believe said...
....you won't hear anyone answer it convincingly b/c the fact is it's probably a factor off all those except Random. ...........
 
I don't expect any clear answer/evidence. The people with a potential clear answer is probably not in this forum, as they would have moved on I guess. Just wnna hear some thoughts....
 
Personally I don't believe in random. I do believe combination of factors like genetics+bad food+stress or other combinations

saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 2/4/2009 5:02 PM (GMT -6)   
m too new to this but i think STRESS plays a great role for my flare up!
Dairy - i have totally cut off dairy products recently but apart from reduction in gas problem there is no other change
I make it a point to take high fiber food, else i get constipation, which irritates my already irritated colon.
I was reaching remission on my own just before my sigmoidoscopy last month, but after biopsy mucus /blood everything increased.... i guess this is what constipation does to me :-( So i guess constipation is trigger for me!! BTW, my problem started with constipation.
God... why have u given us this mysterious stuff to deal with :-)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly.
Symptoms: Mucus, blood, constipated (not always), Lots Gas & No D!
Also gifted with Hypothyroid & have calicum deficiency family history!


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/4/2009 5:14 PM (GMT -6)   
     I've had UC for over ten years.  It seems to strike with the changing of seasons....mostly spring into summer or fall into winter.  This is what makes me think it may be linked to allergies.  Asthma runs in my family although I don't have it.
     I cannot speak for others but for myself...eating crabcakes triggered two of my past flares.  Therefore, I stay away from them now.  My last flare started after my taking a bubble bath with cheap Dollar Store bought bubble bath.  The day after this bath I noticed little sores on the outside of my vaginal area.  Within two days I was in the WORSE flare ever.  It lasted seven months of which I spent ten days in the hospital.  My GI doctor explained to me that there could have been a bacterium in the bubble bath which would not bother someone with a healthy immune system, but since my immune system is compromised it doesn't take much to set UC off.  Needless to say, now I take showers.  LOL!
 

62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 2/4/2009 5:21 PM (GMT -6)   
I have only been diagnosed for a few months, but had symptoms off and on for four years prior. Every time I can remember having symptoms (blood and mucous), they came when I'd been sick. The first time I can remember (Oct 04), symptoms followed a garden-variety 24-hour stomach bug; the other times, it's been a cold. My last, best flare came when I had a cold and my period. All but the first and last flares resolved within days on their own.
41, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 1 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories (tapering) and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, and Trazodone 75 mg for sleep/anxiety (clonazepam as needed)
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 2/4/2009 6:15 PM (GMT -6)   
for me: "bad" food build up + stress = flare up
Male, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08 and then again remission in January 2009
Current Treament: Asacol® 2400 MG 2X daily, 1MG Folic Acid, , Remicade® 10mg/kg every 6 weeks, New Chapter® Only One, NSI® Probiotic 15-35 with NutraFlora® FOS, FutureProbiotics® Vegetarian Enzyme Complex 50+
Status: Remission :)


onebumgut
Regular Member


Date Joined Jul 2005
Total Posts : 201
   Posted 2/4/2009 6:26 PM (GMT -6)   
Having had UC for over 15 years, wholeheartedly attribute mine to the seasons. I will almost always have even a small flare in the late Fall that goes into
Winter months. Always. Period. Its usually done by the Spring and I am totally in remission through Summer into Fall.
UC - diagnosed in 1993
Pentasa - 4 - 500mgs /day
Probiotics
Accupuncture with herbal supplements
Canasa when needed


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/5/2009 2:45 AM (GMT -6)   
Hmm Chinese medicine/dietary advice tells you to eat in accordance with the season, e.g. heavier and warmer foods in the winter time etc. It's something about controlling the heat and cold in your stomach. .....

love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 2/5/2009 10:37 AM (GMT -6)   
I believe mine may be seasonal, I always flare in Feb/March during the snow melt.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/5/2009 10:52 AM (GMT -6)   
love4cats said...
I believe mine may be seasonal, I always flare in Feb/March during the snow melt.

Interesting indeed. However it must be something in the seasonal change that does something to you/your body.
Wonder what it can be? Humidity?

JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 2/5/2009 11:06 AM (GMT -6)   
SiCk-CoLoN said...
for me: "bad" food build up + stress = flare up

I can't prove it but I have the same theory for me.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 2/5/2009 11:36 AM (GMT -6)   
STRESS
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 2/5/2009 12:41 PM (GMT -6)   
Stress for me too.  Every flare up I've had can be linked to specific stressfull times in my life.  Diet has never been a big issue for me, and my flare ups have showed up in every season.
Diagnosed '93. 
 
Asacol, Prednisone, Remicade, Imuran
 


LondonGirl22
Veteran Member


Date Joined Jan 2006
Total Posts : 1629
   Posted 2/5/2009 1:35 PM (GMT -6)   
Stress!!!!

Victoria x

 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/5/2009 1:43 PM (GMT -6)   
       Stress makes my condition worse, but doesn't initiate a flare.  The very first time I became sick I was following the Atkins diet....no or very low carbs, high protein.  I was on that diet for two weeks when my symptoms first appeared.  Doctor said it was just a coincidence, but I wonder.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 2/5/2009 3:05 PM (GMT -6)   
I have no idea, but stress and cold weather might play a part in my flares. I seem to always get worse in January/February and when I'm really stressed out.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/5/2009 3:33 PM (GMT -6)   
Stress? immediate stress or long term stress?
What is it stress does physically? ...... Releases adrenaline and negatively impact (break down) the immune system right.

1) But isn't that what most UC medicine does? ...... limit the immunesystem reactions?
2) If you have done something beforehand to strenghten the immune system - will that work?

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/5/2009 11:10 PM (GMT -6)   
Never stress for me. I do better when I'm under stress.
Seasonal, I think.
And antibiotics and any kind of illness.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Chris'sColon
Regular Member


Date Joined Jun 2008
Total Posts : 237
   Posted 2/5/2009 11:19 PM (GMT -6)   
antibiotics and/or illnesses
Veronica (27), mommy to Chris (3.5 yr old, diagnosed november 2007 with left sided UC) and Emily 10 months
 
Chris current meds:
 Prevacid, Prednisone 20mg
 Pentasa 1000mg
 Culturelle 1x daily
 soon to start Imuran 25mg


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 2/5/2009 11:19 PM (GMT -6)   
Your stress may very well be keeping your mind off your UC! : )
Peety said...
Never stress for me. I do better when I'm under stress.
Seasonal, I think.
And antibiotics and any kind of illness.


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/5/2009 11:22 PM (GMT -6)   
You're right, I think that's entirely possible. Too bad my life is not very stressful, OTHER THAN the UC.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/6/2009 2:43 AM (GMT -6)   
Peety said...
You're right, I think that's entirely possible. Too bad my life is not very stressful, OTHER THAN the UC.

So an Attorney without stress? turn
 
I've had a couple of flares after a stressful work period. So not during the stressful period, but immediately after, when on holiday or when things are just cooling down.
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