Newly diagnosed...have questions

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Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 2/5/2009 12:18 PM (GMT -6)   
Hi everyone.
I was diagnosed with ulcerative pancolitis after a colonoscopy last week.  I have never had any symptoms of colitis prior to this.  I'm 30 years old and had my first child in October 2008.  I've basically been flaring since about 4 weeks after my son was born.  I guess I managed a brief remission in December as my symptoms got much better for about 3 weeks (still not normal, but definitely manageable).  My GP originally thought my symptoms were due to postpartum anxiety as I was definitely having problems in that area, too.  After I started Zoloft, things got better.  However, I was also taking probiotics, so that might explain why I got a bit better.
Anyway, the diarrhea came back in early January and I started seeing a GI.  After some testing to rule out infectious causes, he did the colonoscopy.  I've had blood in my stool, but no real pain or cramping, which seems a bit odd to me, especially considering I have pancolitis.  When I saw him last week on Friday, he prescribed Flagyl (the nausea was terrible, so I quit taking that) and Asacol (12 pills/day). 
By Monday, the bleeding had slowed somewhat, I was having fewer BMs/day than at my worst, and the urgency had declined.  However, things haven't gotten any better since then, and I'm still having about 10 BMs/day. 
I see him again tomorrw and think I'll ask about adding another medication in.  Any thoughts? 

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 2/5/2009 12:24 PM (GMT -6)   
Oh, and my doctor didn't say whether or not I was a mild, moderate, or severe case.  I did ask, but didn't get a clear answer on that, really.  I don't seem to fit into any of the categories.  I have a lot of BMs/day and the irritation is throughout my colon, but I haven't had pain or fever.  He said my entire colon looked like someone had taken sandpaper to it and had some small ulcers. 

Regular Member

Date Joined Jan 2008
Total Posts : 381
   Posted 2/5/2009 2:47 PM (GMT -6)   
It sounds like at least a moderate case--- but try to get your doctor to give you a better medical category than "it looks like sandpaper".

rectal meds might help--- I mean 10 bm's a day is not good even if you aren't having pain or cramping.

good luck
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain

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