Just received 1st infusion of Remicade - now what?

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SoCal-UC
New Member


Date Joined Jun 2008
Total Posts : 14
   Posted 2/6/2009 1:56 PM (GMT -6)   
24 hours since my 1st infusion. Did the magic drip work?
 
Seriously - how many infusions does it take to show some
normalcy (if at all) so I can start tapering off of Asacol & Prednisone?
 
I know everybody is different. Just looking for some experiences.
 
~ Sean
 
____________________________________
Male - 42, San Diego, CA
Diagnosed May 2002 with Ulcerative Colitis
Medications: 
Asacol = 400mg X 6/day
Prednisone = 10mg/day
Omeprazole = 20mg/day
Lisinopril = 10mg/day (blood pressure)
 
Supplements:
Caltrate + D = 600mg/day
Vitamin D (50,000 units) = 1X per week
CO Q10 = 1/day
Metamucil Capsules = 2/day
Align Probiotic = 1/day


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/6/2009 2:04 PM (GMT -6)   
Hi SoCal-UC; well everyone has a different story -- some say it takes several infusions before they are feeling a difference. My story is a bit different; I had pretty much immediate effects from it and felt different the next day. The bloody d was gone, and the urgency subsided within a couple of weeks. How are you feeling today?

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 2/6/2009 2:14 PM (GMT -6)   
It's been 24 hours since my first infusion too- yay for us! All I know is my joint pain is completely gone, but I haven't noticed much change otherwise. I had less bathroom trips this morning but the same amount of pain. I was told some people see results in two weeks, some it takes a few infusions. I'm hoping by my next infusion (2/19) I will see great results, but I know I shouldn't get my hopes up too high.
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg
First Remicade infusion 2/5/09


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/6/2009 2:23 PM (GMT -6)   
Hey EK, glad to hear that the joint pain is easing up a bit. It's probably the Remi taking effect; I can remember my doc saying that Remi helps with RA plus Ankolysing Spondilitis which goes hand in hand with UC...lucky us!

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/6/2009 6:08 PM (GMT -6)   
I noticed a big difference within a few days, although it did take me quite a while to achieve a good remission -- like more than a year. But the each infusion I noticed a bigger difference and after the 2nd infusion I was able to start tapering off the Prednisone. THAT took me almost another year, but without the Remicade I was unable to get off the Pred at all. I think my experience was a lot slower than most people's, but my GI figured as long as I was getting any more relief at all we should keep trying it. I am really glad I did because when it finally kicked in with a good remission last summer, a few months after I got completely off the Prednisone as well, I really felt like I got my life back.
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

13 Remicade infusions: 1st: 7/21/07; most recent: 1/21/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


dothu
New Member


Date Joined Nov 2008
Total Posts : 16
   Posted 2/6/2009 7:46 PM (GMT -6)   
I too noticed marked improvement within a few days - prior to the 1st treatment I was very sick. I have had 4 treatments and am definately improving but still not in remission - much like MEESH I am still working on getting off the Pred - tapered off once, but had to go back and am in the process again.

Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 2/6/2009 10:37 PM (GMT -6)   
First infusion worked lie alike a charm. then slipped a bit. Second and third were not impactful, still bad. the 4th was very good and lasted 4-6 weeks. Now she is a mess, awaiting her next infusion, but it was great while it lasted!
K
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.

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