My guess is as good as yours! I had a rigid sigmoidoscopy to diagnose the proctitis. Then after a year of complaining the meds weren't working and being sent away with more medication each time...the specialist nurse ended up getting involved and was really annoyed that I had not had ANYTHING 'internal' done since the diagnosis (and that even then it was only a rigid sigmoidoscopy). She put me on a course of oral prednisolone and then sent me for a flexi sigmoidoscopy 4 weeks ago which showed a small amount of inflammation further up, but nothing worth worrying about
. It was 2 weeks after this that the consultant who originally diagnosed me told me I needed to go into hospital.
The doctor at the hospital was also incredibly shocked I had never had a colonoscopy especially having complained of continued bleeding etc for a year. and my GP was also exactly the same and said the whole thing has been dealt with very badly. I have read about/spoken to plenty of people from the UK who seem to have been treated the same as you...diagnosed with a colonoscopy etc etc...
So all thats to say I think the way this has been dealt with is not because its way its done here in the UK but because my consultant hasn't dealt with it properly - very frustrating.
So you reckon it might not even be Colitis that I have?!
22 year old female, from the UK
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
Waiting for Colonoscopy as no medication has worked effectively as of yet
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.