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Ugg, pretty disheartneing

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Ugg, pretty disheartneing  
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Posted 2/8/2009 10:58 AM (GMT -6)
Well, it finally happened. After all this time I thought I would skid by, I finally had an accident and even after reading alll these friggin posts I still didn't prepare myself. Luckily I was close enough to my brother's apartment where I was able to change and stuff like that. I must say it was pretty depressing and feeling like I had just regressed to childhood days. I just has a question. I mean I was starting to see some improvements. I have been in a tapering process and now am on 10 mg of Prednisone from 40mg. i have one week on 5mg and then that will be it. I started seeingg a little more blood in my bm's but not too much. Now that I got this cold the other day things just went haywire and I had almost regressed back to the point right before I was admitted to the hospital. This sucks. I was back in the gym again, hanging out with my ffriends and now this crap, no pun intended, starts up again!! mad
Posted 2/8/2009 12:09 PM (GMT -6)
That all sounds about right for me. Just when I think Im getting a hang on this, Im having an accident. Thats about how it works for me. But some foods seem to upset it. Or for me I just got done with a really bad cold. And some of the meds I take Im not going to do again because they really seem to upset my UC. All I can say is that all of it is one big pain in the butt lol.
Posted 2/8/2009 12:19 PM (GMT -6)
thx, sweetpea17
Posted 2/8/2009 1:11 PM (GMT -6)
Don't sweat it.... I know, it does suck! It's a heavy mental trip, no doubt. The other night I was in my garage, smoking a cigarette.... felt the urge.... next thing you know, there it was! In the pants. And this is no more than a 30 second run to the bathroom- I paused to think about it, & it turned out I really did have to go after all! rolleyes   But it sounds right for you- between tapering pred & having a cold, UC tends to act right up. You may want to stay at that 10mg dose for a couple weeks. Even with the occasional accident, I think I'm doing pretty well these days. I've resigned myself to those accidents, every now & then.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 

Posted 2/8/2009 1:20 PM (GMT -6)

I am sorry this happened to you cry  

I have been having a horrible day today. I've been to the bathroom at least 10x with D and cramps. I am scared to leave the house because I fear I might have an incident.

Don't get down on yourself, it happens to all of us. You will get a handle on this.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)

Posted 2/8/2009 1:34 PM (GMT -6)
Thanks guys. I really do appreciate this. I think now I should prepare myself a little better. Apparently my super hero powers don't work ;)

[sicklygirl] hope yyou feel better.

- A
Posted 2/8/2009 3:32 PM (GMT -6)
so sorry please call your GI and let them know you're bleeding. Please feel better.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*

Posted 2/8/2009 3:33 PM (GMT -6)
Can you get a call into the doctor and request rectal meds to help the rectal inflammation/urgency?

You could also add a fibre supplement to hopefully help bulk up stools.

I had urgency this past recent flare..in the mornings and evenings (depending on what/how much I ate) If I wasn't home I would have had a hard time clenching my butt cheeks. I didn't have any urgency when I was out, however, thankfully. But I was home during the worst of it.

I've never totally pooed my pants yet, but have had slight accidents just before the sit down...but I'm "afeared" to do so.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Posted 2/8/2009 6:42 PM (GMT -6)
I am actually calling my GI tomorrow just to get things in order. Ironically I haven't gone to the b-room in like 6 hours which is a godsend. I can't believe I get excited about how long I can go w/o using the toilet. The excitement is much the same level as it is when I was a kid during christmas time. Thank you all for your responses and words of wisdom.
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