Hi Please do not loose heart. Don't worry. The difficult period would pass and your brother would be fine very soon. Our Prayers are always with your brother. Well I have myself faced this situation, or rather 100 times worst than this. I was operated on November 9, 2005 after all medications failed and a J Pouch was created. It was a two stage surgery. Can you believe from November 9, 2005 till December 3, I was in hospital undergoing all sorts of complications, right from ileo getting choked, my respiratory canal getting choked, blocakages and what not. After discharge from the hospital, I was reporting to hospital for dressing everyday from Dec 3, 2005 till March 5, 2006. In between I had all sorts of complications, but I never lost hope. The incision would not heal and the tissues did not form. My abdomen burst and remained open throughout this period, plus the pouch (outer) would fall because of all sorts of skin allergies. I was only on liquid diet.
Finally I was operated for second stage - takedown or closure of ileum and start of J pouch on 13th March 2006. I thought my pain and agony is over. However, I faced the worst. After discharge from hospital on 19th March, 2006, within a day or two, my intestines/abdominal wall burst open from the closure site. and the faeces started flowing out from abdominal wall instead of anal opening. Anyway I did not loose hope and I had good wishes from friends like you. The doctors ripped open the stiches and fixed a pouch again so that the muck does not land inside the abdomin. This again lasted for quite some time.
But believe me you, God is great and this problem also passed and the wound healed and closed on its own. So have faith, be positive, I am sure your son would be fine. Since this surgery is a major one, there are ups and down in this surgery and particularly because of his tender age. He needs your support and if you loose strength than who is going to give him support.
Always keep in mind that "Problems in the world would go on increasing, one should become stronger to deal with them.
"If by chance, one becomes sick and patient, one thing he should not loose is patience.
Cheers. Things would be fine. We will pray for his speedy recovery.
In case you need any further clarification on this issue, feel free to get back.
Be positive. HE will be all right. Why do you feel you are alone. We all are here on this forum to lend shoulder to each other. It is a big family.
45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery