uc and hair loss

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New Member

Date Joined Feb 2009
Total Posts : 17
   Posted 2/9/2009 8:05 AM (GMT -6)   
I was just wondering if uc causes hair loss? I'v had uc for 10months and my hair has thinned so much and it falls out alot.. am I over egzagerating about hair loss due to uc?

Forum Moderator

Date Joined Dec 2008
Total Posts : 16724
   Posted 2/9/2009 8:39 AM (GMT -6)   
I think it's the drugs more than the UC. I started losing some hair when I started taking Asacol.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)

Regular Member

Date Joined Dec 2008
Total Posts : 254
   Posted 2/9/2009 8:41 AM (GMT -6)   
I had hair loss about 3 months after my first diagnosis which was by far the sickest I had ever been. My doctor said sometimes when you go through a serious trauma or illness you can have hair loss soon after, which is what we attributed it towards. It has not happened again.
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 2/9/2009 8:56 AM (GMT -6)   
     I had thin hair to begin with but it has gotten much worse.  You can actually see bald spots on the sides...not attractive in a woman.  I had a very bad flare last year lasting seven months.  I think it is a combination of the flare and the 6MP.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 2/9/2009 9:53 AM (GMT -6)   
Agree it's more the drugs than the disease itself. I had some hair loss with asacol, but extreme hair loss with 6mp. I also developed bald spots and I have extremely thick hair.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.

Regular Member

Date Joined Jun 2008
Total Posts : 205
   Posted 2/9/2009 6:49 PM (GMT -6)   
princesa said...
Agree it's more the drugs than the disease itself. I had some hair loss with asacol, but extreme hair loss with 6mp. I also developed bald spots and I have extremely thick hair.

Same here. Had serious hair loss when taking Azathioprine. Hair grow back after quitting Aza. But no problem with Salofalk (Asacol).
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 2/9/2009 8:41 PM (GMT -6)   
I have very fine hair. I seem to be losing a lot lately. I go through periods in which I lose more hair than usual. But my hair also just grew longer recently; so perhaps it just looks like I'm losing more hair. Or perhaps I'm losing more hair, because my hair is longer. It's hard to tell. Anyway, I just got over a flare not that long ago.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Regular Member

Date Joined Feb 2008
Total Posts : 55
   Posted 2/9/2009 10:56 PM (GMT -6)   
me too... i got HIV when i started taking Asacol....

HIV = Hair Is Vanishing :)
Diagnosed with UC on 2007. Undergone Fistulotomy on 2005. Taking Generic Asacol 400mg 3X a day... "HEALTH IS WEALTH"

New Member

Date Joined Feb 2009
Total Posts : 1
   Posted 2/11/2009 2:41 AM (GMT -6)   
Hi, newbie here.
When I was on Pred the first time (15 years old), my hair grew like CRAZY. It's already thick and it got like, crazy thicker. Anyway, they tapered me off of it really fast, and my hair came out in wads. My stylist said I lost about 40%. The second time I went on Pred, I experienced hair loss, but not as much because hey tapered me off more slowly.
So I think it's more because of the meds than the disease. It's been five years and those are the only two instances I have had with hair loss.

Regular Member

Date Joined Apr 2007
Total Posts : 116
   Posted 2/11/2009 11:56 AM (GMT -6)   
I lost a ton of hair on prednisone.  Once I was off it grew back just as thick as before.  Agreed that various meds can be the culprit here.
-Lialda (4 pills/day), canasa, Align probiotic, kefir, multivitamin, calcium with vitamin d, iron

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 2/11/2009 1:33 PM (GMT -6)   
If you are in a serious flare and are losing nutrition, you might be losing hair. This is what happened to me.
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Entocort 3 in the morning

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 2/11/2009 1:45 PM (GMT -6)   
When I had my first flare and was super sick I lost a lot of hair, I wasn't on any meds at the time.
31 yr old female
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any more meds for now. Trying a holistic approach.

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