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Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 2/9/2009 10:04 AM (GMT -6)   
I have been told that coffee is really really bad for CU?
But for some reason I just can't stop drinking it. I must be a darn addict !?!?
 
Is it something to avoid? It is according to anti-fungal diets I can see

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/9/2009 10:13 AM (GMT -6)   
Coffee is a known bowel irritant. The caffeine in coffee is bad for the digestive system. Caffeine speeds up every system in the body, including the colon, which can lead to diarrhea. De-caffeinated coffee does away with the caffeine, but it still contains acids that can increase stomach acid production.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 2/9/2009 10:20 AM (GMT -6)   
There were times when I was in a flare that coffee caused me discomfort so I switched to chicory; same robust flavor but without the stimulant. However, I never gave up coffee completely and don't think you need to worry about it unless it causes you discomfort.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mythmoon
Regular Member


Date Joined Jan 2009
Total Posts : 135
   Posted 2/9/2009 10:33 AM (GMT -6)   
I can't drink it. Instant horribleness...So I drink tea and Caflib instead.
21 yr/old Uni student. Vancouver, BC
Imuran 150 mgs/day

Prednisone 7.5 mgs/day
Diagnosed UC Sept. 2007
Cal-Mag, CoQ10, L-glutamine and Iron supps. Also now trying probiotics Bio-K (acidophilus)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/9/2009 10:49 AM (GMT -6)   

I think caffeine in any form can cause problems with digestion and bowels.  We are all different how we process it.  My husband could drink a gallon with no problems - all I need is two cups.  I drink one every morning - with my doctors ok but might feel better without it - yes, I am addicted.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
   Posted 2/9/2009 11:59 AM (GMT -6)   

Hi Qvist,

I have Ice Coffee from time to time. I never used to be a coffee drinking but then I started drinking Ice Coffee and when ever I drink it, It seems to bind me up so I have to opposit problem with coffee. I think Its good for my colitis. But if I drink lets say soda it hates me haha.

So I think it depends on the person.

:-)


~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Pentasa 2x4 a day
Lexapro ~ 20 mgs daily for sanity  :-)
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 2/9/2009 12:14 PM (GMT -6)   
I only had a problem with it right after I woke up. If I waited a half hour or so I'd be fine drinking it. If you don't want to stop drinking it I know Folgers makes grounds that are easier to digest. No food/drink is "bad" for UC, its all about what bothers you and what doesn't. I'm a complete moron in the morning without my coffee so I never gave it up!
Sam
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 2/9/2009 12:18 PM (GMT -6)   
I have no problems drinking coffee at all and drink tons of it everyday. Although I have kept away from fully caffeinated coffee and drink brewed 1/2 caff and instant decaf. In times of flares, I do not drink brewed coffee. It makes me nauseous for some reason.

Scarlett, 38 yo., TX
Pancolitis since 3/1997
Meds
6 x Asacol a day
75 50 mg 6-MP
Align (probiotic)
Flintstones Complete Vitamins


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 2/9/2009 2:05 PM (GMT -6)   
When I was flaring, I could not drink coffee. It was not a matter of "I know it's bad for me, so I must force myself to stay away". Instead, I was completely turned off by it, could hardly make myself have a sip if there was a cup in front of me.

Now that I am off my flare, I can drink it again... my morning cup does seem to trigger my daily bm, but that's not a bad thing since when not flaring I have to fight against constipation.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds:  Asacol 800 mg (1 pill x 4 daily), Ferrous Sulfate



pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/9/2009 2:20 PM (GMT -6)   
Coffee is a natural bowel stimulator, you could try decaff, caffeine is considered a possible IBD symptom exacerbator.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/9/2009 2:28 PM (GMT -6)   
ack2009 said...
... my morning cup does seem to trigger my daily bm, but that's not a bad thing since when not flaring I have to fight against constipation.

Even non-UCers sometimes use the morning cup for that very purpose.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 2/9/2009 5:49 PM (GMT -6)   
I use Dunkin Donuts brand coffee grounds... I drink decaff ( 1-2 cups a day ) during the week...
One the weekend I splurge and have Regular caff coffee still dunkin donuts brand.... ( maybe 3 cups )
On this limited caffine I don't notice any problems.... but I do watch my coffee intake and limit the caffine.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 2/9/2009 5:56 PM (GMT -6)   
When flaring, i have to stay away from Coffee completely.  But when not flaring, i am able to drink 1 cup of coffee in the morning..i have also found that drinking Organic Coffee makes a big difference and to me the little extra price is worth it :)

First Diagnosed with Microscopic Colitis 10/07
Diagnosed with UC instead 3/2008
10mg Prednisone
50mg Imuran
75mg 6-MP
Calcium + Vit D
Probiotics
Entocort 9mg daily
800mg Asacol 3X daily
Bentyl
Lomotil
Dicyclomine
Prevacid
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/9/2009 7:04 PM (GMT -6)   
I love my morning coffee, and drink one mug cup with extra cream and splenda.
If I'm feeing bad, though, I drink tea.

I won't drink Starbucks, it's too strong and will upset my stomach.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Sweetpea17
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 2/9/2009 7:18 PM (GMT -6)   
I love coffee always have. But I have never been a big drinker because even before I got UC either while I was drinking it or like 10 mins after I was done I would be running to the bathroom. Now with UC it really isnt any better.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/9/2009 7:27 PM (GMT -6)   
Oh, I always have breakfast and coffee before I shower and get dressed...to give me time to let it sprint through, because it will...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/10/2009 10:00 AM (GMT -6)   
Yes coffee does cause flare ups. It is experience which is saying so.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 2/10/2009 10:28 AM (GMT -6)   
Don't drink it for a few days and see if your symptoms change at all.  It definitely effects me.  But you should know that its not only the caffeine that causes the problems - its the acidity of coffee that can also cause trigger a reaction.  And if you're particularly sensitive or flaring hard, hot drinks should probably be avoided altogether.  Hope that helps.  :-)

DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Spinach/Sunflower Seed Diet
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Remission
 
 
 
 


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 2/10/2009 12:21 PM (GMT -6)   
I heard that if you add cream to your coffee that the cream acts as a coating for your intestinal wall and that it helps protect it from most of the acid and caffeine of the coffee.

Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Canasa
Multi-Vitamins
Calcium with Vit. D Tablets


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/10/2009 12:45 PM (GMT -6)   

If you are a heavy coffee drinker - DON'T stop it cold turkey - slowly - can cause terrible withdrawal symptoms - as headaches, etc.  Worth giving up for a while to find out if it is a trigger.  We are all different.  I am fine with one (perhaps 1/2 more) - after that it affects me.  Trial and error!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/10/2009 2:22 PM (GMT -6)   
I rely on my morning coffee to get me going. I sometimes have constipation now so the first cup usually does it for me - but it makes me have D. I would much rather have the D then constipation any day - provided it isn't the white knuckle type D. I have always been a huge coffee drinker and I LOVE my coffee. Even if it does stimulate the bowel, for me I just don't care. I figure since this is the one thing I truly love and I have sacrificed so much already that I am not about to give it up. But everyone is different on much they like it, addicted to it, etc. Trial and error indeed :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/10/2009 2:29 PM (GMT -6)   
That reminds me, after I had an outpatient surgery in the early a.m., they told me right after that I should have some coffee if I usually drink it, so that I would avoid the headache during recovery.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/10/2009 2:36 PM (GMT -6)   
Most definately Peety! When I had a D&C a couple years ago, I wasn't able to have coffee that morning of the surgery. But I had a whopper of a headache so I asked the nurse for something after she hooked up the IV. She nodded at me and asked, "You're a coffee drinker aren't you?" lol I guess she hears that alot. Maybe that is why I like my coffee so much! Because it helps my headaches :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 2/10/2009 4:08 PM (GMT -6)   
I love coffee (but Starbucks or anything that tastes like it..bleh!).
I do drink it in the morning and whenever, but with food.

It will stimulate the sigmoid to "download" whatever is in there, and if you're flaring, it can trigger a bm.

If I'm flaring, I don't drink as much in one sitting.

I do like that it helps with a morning bm...but I pretty much have my bms in the morning anyway (habit)...but depending on how much or what I'm eating in a given day or the day before, I may have another one in the evening.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 2/10/2009 4:48 PM (GMT -6)   
I've been on remicade for about a year and I can just now tolerate coffee.
 
Try hot tea instead
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade

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