Any luck stopping a flare without oral pred?

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thatfield
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Date Joined Jul 2008
Total Posts : 823
   Posted 2/9/2009 10:55 AM (GMT -6)   
Hi,
 
I am just starting to flare again.  I noticed a few signs last week but was hoping it would not turn into an actual flare.  I am sure now though that is it the beginning of one.  I had two really bad and long flares in the last two years.  With the second one I tired every drug you can think of and nothing even slowed it down...I am actually sure that my first flare never completely went away and just lead right into the second one...  It ended up that I finally had to be on oral pred for three months.  It worked for me and I was so happy for the relief but I really would like to avoid it this time if possible.  Now I have learned to recognize the symptoms and have learned to be more pro-active.  I have caught this flare early.  I am hoping that this time Canasa, cort enemas and increasing my regular Lialida and probiotics will kick me back into remission. 
 
Has anyone had any luck with getting out of a flare without oral pred?  Has anyone noticed a difference when you catch the flare earlier?
 
Thanks!

Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 2/9/2009 11:26 AM (GMT -6)   
My answers to your Qs are Yes & Yes. I've only had to take Prednisone for one 3-month period in my 30 yr history with left-sided UC. All other flares were successfully treated with steroid retention enemas (early yrs) or mesalamine (recent yrs). Try not to panic over what, hopefully, will not happen, think positively, and apply what you've learned since diagnosis to help yourself get back in control of UC as soon as possible. / Old Hat (original Colazal is my best med to-date for maintaining remission)

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 2/9/2009 3:10 PM (GMT -6)   
Thanks Old Hat - it makes me feel much better to know that it is possible!
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 2/9/2009 3:54 PM (GMT -6)   
I'm relatively new to UC (a little over 2 years) but I have never had any success without pred. Like you, I hope to find an answer though!
33 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 2/9/2009 4:08 PM (GMT -6)   
JM21204, Looks like you and I were diagnosed at around the same time, I am 33 also. I gave birth to my precious daughter in August 2006 and starting having symptoms almost right away. However, I thought it was pregnancy related and did not go to the doctor for it until the end of November.

How many flares have you had since you were diagnosed?
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16728
   Posted 2/9/2009 4:08 PM (GMT -6)   
I was doing really well with just Asacol and Canasa but lately Ive been starting to flare up a bit again. It seems to help but I don't remain in remission. I think that is partly due to the fact that I drink a bit too much and eat horrible foods though. I am going to try to eat healthier and reduce my alcohol consumption.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/9/2009 4:47 PM (GMT -6)   
I have never had any luck stopping a flare with Prednisone.

I've had three flareups. All of them went away, not from Prednisone though. The first one went away by itself. The second one from fecal transplantation, and the third one from Probiotics and diet.

I did take Prednisone once for three months. I couldn't taper below 25mgs without the bleeding coming back.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 2/9/2009 4:58 PM (GMT -6)   
I've never used pred. I recently started 6mp and I have hopes for that. I used Lialda which you mentioned you were using. It never did a good job for me. Maybe you could investigate a different type of mesalamine like asacol or the new one, apriso.

I hope you are able to nip it in the bud and you feel better soon.
UC diagnosed 10/05, first symptoms 1983
6mp * asacol 12/daily * rowasa pm * cortifoam am 
 Culturelle Probiotic - prilosec - metamucil capsules
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/9/2009 8:54 PM (GMT -6)   
No, I always try to put it off taking prednisone as long as possible, but eventually give in to it when it just becomes too difficult to manage.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 2/9/2009 11:16 PM (GMT -6)   
That was my experience too Peety.  I am not sure if it would just be best to go ahead and start the pred this time before going through all the worsening syptoms that I am afraid are coming...I am going to try the cort enemas for a week and see if that helps...wish me luck!
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/10/2009 6:01 AM (GMT -6)   
Have you people tried Vitamin E enema and vitamin E orally. One has to take the natural vitamin E formulations and not synthetic. I have posted the manner of taking the enema as suggested by one of our esteemed members, who is now 82 years old and had found this cure 20 years back. He is hale and hearty. Mr. Sheldon recommends this to everyone and so do I. Thousand have got cured of UC with this. Another option could be to try Sallaki/Bosenwalia. That also helps to get rid of UC as well as Pred. Try altnernate medicine. Another important aspect, the steroid based enemas, be it hydrocortisone or cortfoam or for that matter any other are equally bad and have similar side effects, like the oral steroids, if enemas are taken for quite a long. Try Turmeric enema. One can also eat home grown fresh Turmeric. It does help in healing a lot and increases the immunity too. I have tried all of them and as my family has a history of UC. Four of us (three brothers and one sister) suffer from UC. So lot of experience in side effect of steroid as well as surgery. So friends take care. Avoid steroids at the earliest - if not then have it strictly under medical supervision.  Cheers and good health to you all.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery

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