Joint/back pain with UC?

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ticklengiggle
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 2/9/2009 11:50 AM (GMT -6)   
When I started tapering below 15 mg of pred I noticed that my lower back was stiff and achy. Now that I am off of the pred (tapered off about two weeks ago) I've noticed an increase in my stiffness, aching/pain and other joints in my body like my knees are stiff and painful. I think my ribs are kind of achy too. I feel like an old woman but I'm a young and, until recently due to UC flare, active 34 year old. My intestinal symptoms aren't terrible but they aren't absent either: abdomen pain, intermittent diarrhea, not much mucus or blood though so that's good.
I compare my current situation with my symptoms when they've been really bad or with other UCers who are really sick and I feel bad about complaining.
I just want to know if anybody else has had these symptoms and what have you done about it? Does it mean that my UC isn't under adequate control? I'm not really confident that my UC is under control or headed for remission.
Thanks for your support.
I love this forum!
Distal UC (25cm), Nov 2008
Colonoscopy Nov. 2 08: Pathology showed inflammatory changes throughout colon, but ulcerations, friable tissue, etc. last 25cm of colon
Lialda (Nov 08) 3.6g; (Dec 08), 4.8g/daily
Canasa supp. 1g (for 3 weeks, from Nov. 5),
Prednisone 40 mg/daily 4 week taper (Nov. 17 ‘08), Back up to 15mg Dec. 20, taper 2.5mg/wk. Off Pred Jan 27…knock on wood.
Rowasa: 4g/bedtime Dec. 20 ‘08, 4g/bed time Jan 19 ‘09
Procotofoam: 1 application/bedtime, Jan 20 ‘09
Current UC meds are underlined.

My mother (UC for 20+ years) has been in remission for quite some time (at least a few years). :)
One of my cousins has Chron's dz. :(

I love Cottonelle wet/flushable wipes!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/9/2009 9:01 PM (GMT -6)   
I also once experienced stiff ribs, took Voltarin for the temporary arthritis and it went away.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


ticklengiggle
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 2/10/2009 1:01 AM (GMT -6)   
Thank you Supersaw and Peety. It helps to know that others are dealing with this issue. I haven't told the GI nurse practitioner about the joint pain but I'm really worried that they'll just tell me to take Tyenol and use a hot pad. I'm ready to go back on the pred so I can have some semblance of a life. I know pred is not a long term solution but the GI NP isn't ready to try the immunmodulators yet, maybe another round of pred will give us more info. If I can't heal without pred maybe that's an indication that we need to try something else. If I taper much slower this time perhaps I can reach remission. That would be heaven.

Thanks for your support. It means a lot.


Distal UC (25cm), Nov 2008
Colonoscopy Nov. 2 08: Pathology showed inflammatory changes throughout colon, but ulcerations, friable tissue, etc. last 25cm of colon
Lialda (Nov 08) 3.6g; (Dec 08), 4.8g/daily
Canasa supp. 1g (for 3 weeks, from Nov. 5),
Prednisone 40 mg/daily 4 week taper (Nov. 17 ‘08), Back up to 15mg Dec. 20, taper 2.5mg/wk. Off Pred Jan 27…knock on wood.
Rowasa: 4g/bedtime Dec. 20 ‘08, 4g/bed time Jan 19 ‘09
Procotofoam: 1 application/bedtime, Jan 20 ‘09
Current UC meds are underlined.

My mother (UC for 20+ years) has been in remission for quite some time (at least a few years). :)
One of my cousins has Chron's dz. :(

I love Cottonelle wet/flushable wipes!


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 2/10/2009 1:06 AM (GMT -6)   
I just posted right above you about the SAME issue :). I just went back to 50 mg of pred today. If it doesnt work ill be going to humira. The joint pain can sure be brutal... almost like its not even in any way related to UC? I never had it this bad before. I am hoping spring comes soon because my flares in the past have always cleared up then anyways.

Good luck :)
Vin
History: UC/Chrons since age 22, now 27.  Several huge flares since then.  Entire colon diseased at some point from cecum to rectum.  Also had previous inflammation in terminal ileum.
Currently: flare -9/19/08 - now|Panic Disorder - 6/25/08 - now|Lyme Disease - 12/09/08 - now|Dysplastic Nevus Syndrome - 6 recent mod dysplasia moles excised, and many more to shave biopsy.
Drugs: prednisone 30 mg|6mp 75 mg|lialda 4.8 mg|Paxil 50 mg|Klonopin .25 mg (tapering through water titration)|Trazodone 50 mg|
 
 
 
 


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 2/10/2009 6:42 AM (GMT -6)   
Vin said...
I just posted right above you about the SAME issue :). I just went back to 50 mg of pred today. If it doesnt work ill be going to humira. The joint pain can sure be brutal... almost like its not even in any way related to UC? I never had it this bad before. I am hoping spring comes soon because my flares in the past have always cleared up then anyways.

Good luck :)
Vin


At that level of pred I had horrible joint pain. UC causes me arthritis issues and pred is a whole separate category. If it is pred related it will go away as your dose gets lower. Try some tylenol for now.
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/10/2009 11:41 AM (GMT -6)   
Vin,
Maybe your pain isn't related to UC, because doesn't Lyme disease cause joint pain? It nearly killed a young acquaintance of mine, she was in a wheelchair before they finally figured out what she had.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/10/2009 12:06 PM (GMT -6)   
Hey friends - don't worry these are quite common side effects of steroids. One you are off steroids, you have to learn to build your stamina. Go for walks, yoga, deep breathing exercise. Steroids make you stronger and temporarily builds up your stamina, but is bad in the long run. That is the reason why people who go on diet supplements provided by Gyms suffer from these problems, once the stop supplements, as most of them are steriod based. Try to avoid steroids or the urge to have them, even if you feel the pain, as the more you take them, the more dependent you will become and ruin your immune system. Good luck and good health to you all. Let me tell you, it may be difficult, but not impossible to kick the habbit of steriods.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 2/17/2009 11:37 PM (GMT -6)   
I'm not on prednisone thank goodness but I do notice my joints bother me sometimes, and I do notice stiffness a good deal of the time, but one other thing I've noticed lately is how tight the muscles are in my calves. They are staying that way. I don't guess that is any symptom of UC, and that in itself is annoying enough.


Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 

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