Thank you Supersaw and Peety. It helps to know that others are dealing with this issue. I haven't told the GI nurse practitioner about
the joint pain but I'm really worried that they'll just tell me to take Tyenol and use a hot pad. I'm ready to go back on the pred so I can have some semblance of a life. I know pred is not a long term solution but the GI NP isn't ready to try the immunmodulators yet, maybe another round of pred will give us more info. If I can't heal without pred maybe that's an indication that we need to try something else. If I taper much slower this time perhaps I can reach remission. That would be heaven.
Thanks for your support. It means a lot.
Distal UC (25cm), Nov 2008
Colonoscopy Nov. 2 08: Pathology showed inflammatory changes throughout colon, but ulcerations, friable tissue, etc. last 25cm of colon Lialda
(Nov 08) 3.6g; (Dec 08), 4.8g/daily
Canasa supp. 1g (for 3 weeks, from Nov. 5),
Prednisone 40 mg/daily 4 week taper (Nov. 17 ‘08), Back up to 15mg Dec. 20, taper 2.5mg/wk. Off Pred Jan 27…knock on wood.Rowasa
: 4g/bedtime Dec. 20 ‘08, 4g/bed time Jan 19 ‘09Procotofoam
: 1 application/bedtime, Jan 20 ‘09
Current UC meds are underlined.
My mother (UC for 20+ years) has been in remission for quite some time (at least a few years). :)
One of my cousins has Chron's dz. :(
I love Cottonelle wet/flushable wipes!