New Member...HAVING A FLARE!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Nightwing
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/9/2009 2:43 PM (GMT -6)   
Hello,
 
I'm a member of the US Air Force and I'm stationed in the UK.  I've been in the military for the last 15 1/2 years.  I was diagnosed with UC in May, 2007 (and just now decided to seek out support--don't ask, I live in Europe).
 
Anyway, my first symptoms of UC began in March of 2007 (painful, twisting pains with urgency and bloody stools).  After a colonscopy I was properly diagnosed with UC (pancolitis) mostly on my sigmoid side.  I had to face a military medical board to determine suitability to continue serving our nation.  The judges ruled in my favor and I could stay in the AF.
 
I moved from Germany to England in February of 2008 and had been symptom-free since May of 07 (4x Mesalamine twice a day with folic acid supplements).  I was fine until June of 2008.  I suffered quite a devastating amount of stress and I flared for a month.  I was put on 4x Mesalamine three times a day with Mesalamine (Rowasa) enema at bedtime.  The flare went away.
 
In late December, I flared again, but it started out slowly with diarrhea and gas then moved into slow, slight abdominal twinges with increased trips to the bathroom.  After having 11 bowel movements in a day, I moved into bloody stools again (bright red) in the middle of last week.  I was hospitalized last Wednesday for observation (fear of sepsis or ruptured colon).  Blood came back negative for this (including normal white blood cell count).  I was released on Thursday after being bedridden for the better part of a day.  I appeared clear of blood in my stool.  Friday was also good--however the weekend was a relapse to more bloody stools.  Today (Monday) was touch-and-go. 
 
I'm now on this:
 
Mesalamine (4x, 400mg) 3 times a day
Folic Acid 2 times a day
Cipro (antibiotic)
Steroid enema (nightly)
Mesalamine enema (nightly--but haven't touched it since I can't do two)
 
...
 
I know NOTHING about prevention, but I know stress is what is kicking off my flares.  I exercise 3-4 times/week.  I do what I can to relieve stress, but I feel it still finds a way to settle in my gut.
 
I enjoy caffeine...it's my only vice.
I don't drink much alcohol.  Probably only one beer/month.
I live in Europe...the health care is not up to the US standard for Gastroenterology.  Even they admit this.
The military lacks the manpower, availability, and locality to provide for my medical needs.
 
What can I do?  I'm reading about probiotics right now and if they can help me.  I'm in my most elongated flare ever. 
 
Any suggestions?

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 2/9/2009 3:23 PM (GMT -6)   

I think probiotics help me a lot.

I was diagnosed around the same time you were... I was doing pretty well all of 07 and most of 08 but around august things went downhill. I am still trying to get a handle on my UC too. I would try some probiotics and also maybe try to figure out if you eat anything that causes problems. I have a lot of problems with creams and corn. Some people can't tolerate red meats or wheat. It is all about figuring out what works for you. I haven't had too much luck with diet but I know that if I start eating everything, my gut will go completely awry. There are some diets you can look at online, people swear by the SCD diet or the low residue diet. We also have some people here who do well on a spinach sunflower diet... I am willing to give anything a shot!

Best of luck


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


Nightwing
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/9/2009 3:28 PM (GMT -6)   
Thanks.  I got a bunch of probiotics in the mail from a friend, but haven't wanted to touch them since I feared conflict with Mesalamine.
 
Yeah, I'm ignorant.

VIEW IMAGE

Diagnosed with UC (pancolitis) in May 2007.

Mesalamine 400mg (4x) three times a day.
Folic Acid
Steroid enema every night (when flaring)
 
"Let us renew our faith and our hope...we have every right to dream heroic dreams."
-Ronald Reagan


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/9/2009 6:16 PM (GMT -6)   
I hope the probiotics help. If you can't gert relief from the mesalamine you should probably consider prednisone.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/9/2009 6:39 PM (GMT -6)   

Probiotics helped me a lot also.  As a note - cipro causes me to be worse - more bleeding.  Check that out - not sure why they gave it to you.  Some antibiotics work against UC and others for! If you have an infection maybe you could try another antibiotic. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Nightwing
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/10/2009 12:53 AM (GMT -6)   
kops2da said...

Probiotics helped me a lot also.  As a note - cipro causes me to be worse - more bleeding.  Check that out - not sure why they gave it to you.  Some antibiotics work against UC and others for! If you have an infection maybe you could try another antibiotic. 

ElaineNY


That's what I was thinking about the cipro, too.  If it kills flora, then it kills good flora in the gut, and could exacerbate the problem.  Well, I'm taking the probiotics and eating yogurt in my breakfast, too.

I appreciate the replies, folks.  I'm all alone out here in the physical sense.  This helps quite a bit.


VIEW IMAGE

Diagnosed with UC (pancolitis) in May 2007.

Mesalamine 400mg (4x) three times a day.
Folic Acid
Steroid enema every night (when flaring)
 
"Let us renew our faith and our hope...we have every right to dream heroic dreams."
-Ronald Reagan

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 8:12 PM (GMT -6)
There are a total of 2,974,322 posts in 326,171 threads.
View Active Threads


Who's Online
This forum has 161238 registered members. Please welcome our newest member, sperrybethann.
401 Guest(s), 9 Registered Member(s) are currently online.  Details
HappyRick, rapidspider, rocketphd, mattamx, Solaris719, Fl Drifter, C_G_K, tomobrain, sperrybethann