just need to rant for a bit. I had come off pred about
4 weeks ago finally. My flare seemed to be under control and I was getting better. Then all the sudden... joint pain in the ankles/knees/wrist/elbows. Then a few days later, fatigue. Then severe fatigue, then fever.. then stomach goes blammo! Pop in 20 mg of pred..gets better a few days.. then gets worse again. Up to 30 mg of pred... same thing. Now I am up to 50. The past week i was in so much friggin pain in the joints i cant even believe it could be from UC/chrons. But I always seem to get joint pain initially as my first symptom so maybe it is. ITs strange that everything else happens first...and the stomach pain/issues come last. This is the opposite way it used to be.
Anyway, as discussed with my dr... we are trying this 50 mg of pred for a week + cipro/flagyl and battery of tests..then 45mg pred, etc. if at any point my symptoms come back full force(so far on the 50mg they are better), i will be trying humira.
I've read about it, etc. The usual dangerous side effects from anti TNF blockers. My question is...
who has been on humira for a significant amount of time and in remission? Or how long were you able to be one it before it stopped working? I know im heading down surgery road as of this point but i just want a little more time!!!
UC/Chrons since age 22, now 27. Several huge flares since then. Entire colon diseased at some point from cecum to rectum. Also had previous inflammation in terminal ileum.
Currently: flare -9/19/08 - now|Panic Disorder - 6/25/08 - now|Lyme Disease - 12/09/08 - now|Dysplastic Nevus Syndrome - 6 recent mod dysplasia moles excised, and many more to shave biopsy.
Drugs: prednisone 30 mg|6mp 75 mg|lialda 4.8 mg|Paxil 50 mg|Klonopin .25 mg (tapering through water titration)|Trazodone 50 mg|