Elaine...remember I was hospitalized on IV steriods so they released me on 60mgs of prednisone. I was a mess. I couldn't sleep, I was running around the house cleaning, my heart was racing,etc. Then when I dropped my dose of prednisone my joints would hurt. I am extremely emotional and depressed and kinda withdrawn.
I am going to go back to rowasa nightly. I refuse to pump anymore steriods into my body! I hate it so much. I had been doing rectal meds for a year straight in 08 after my first major flare with asacol, with a hospital stay, and prednisone and I never really STOPPED bleeding. I never got better. Thats what made me go on 6MP. I did not have a choice. I was hospitalized twice in less than a year. I also was steriod dependent.
I am glad to hear others are experiencing lack of appetite. The good thing is ...I can totally stand to lose the weight. I was at least 25 pounds over weight. I have since lost about 14 pounds...so I am truly not complaining. I was just surprised because the prednisone usually makes me pig out.
I guess I would rather have the blood too....I am not having a lot...but then again I always had blood so I am kinda immune to it. I am going to my GI on Friday for more blood tests and she is going to drop me to 10mgs of prednisone. I just want OFF THE DRUG!
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP (50 mgs)
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone
current meds: 6MP (50mgs), Asacol 12 pills, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12