extra-intestinal or random symptoms?

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bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 2/11/2009 7:15 AM (GMT -6)   
Has anyone gotten random bruises? Last week, I had one on my knee and two on my shin; and this week, I have one on my arm. I don't remember bumping into anything or hurting myself, so I'm not sure why they are there. I told my GI's nurse about it, and she said it shouldn't be a problem but to keep an eye on it.
 
I also still have acne and hair loss even though I stopped the steroid rectal meds over a month ago. The last couple of weeks I've been having pain on knees that go away once I use a heating pad. And I have some sort of back pain and runny nose almost everyday. Whenever I have skin problems, they're usually just dry patches; but now they're bright red dry patches. I'm still getting cold sores and the "time of the month" had me vomiting. And I'm still exhausted all the time even though I'm supposed to be in remission (although I have IBS symptoms).
 
What is going on with my body? I know things could be a lot worse, but will it ever get better? Or will problems keep adding up?
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


Lonie
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Date Joined Feb 2005
Total Posts : 6448
   Posted 2/11/2009 8:30 AM (GMT -6)   
Hi ComedyDork; it might just be the Remicade. When I first started my infusions, I bruised pretty easily. I started using B-12 with Biotin supplement and it helped with the easy bruising plus it helped thicken my hair and nails! Whoo-hoo, double duty there... also B-12 gives you a bit of extra energy.

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 2/11/2009 11:41 AM (GMT -6)   
When I was on the steroid enemas I would literally have 20 bruises up and down my legs. I showed them to my GI and did a blood count but everything came out good so he said just to keep any eye on it. Now that I am not on them, I still bruise easily just not to that extreme. I still get random bruises that I have no idea how they got there. But I agree that your might be having these weird things from the Remicade. Have you mentioned all this to your GI yet?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers -Celebrex and Tylonel Arthritis
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Mamas Boys
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Date Joined Oct 2005
Total Posts : 1460
   Posted 2/11/2009 11:56 AM (GMT -6)   
I also bruise very easily.  As Loneylane said I think it is from the meds.  The skin patches are probably some sort of psoriosis or eczema that comes along with UC for many people.  I used to get them in various places on my arms and legs - now it's just on my scalp - YUCK!  Try getting some cream from the dermotologist and it will go away.  The rest of your stuff just sounds like withdrawal symptoms.  Definitely keep an eye on it - but I don't think I'd be too concerned.

KTM


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/11/2009 12:48 PM (GMT -6)   
It's more likely the meds than the disease, IMHO.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/11/2009 5:24 PM (GMT -6)   
I've always been an easy bruiser, honestly if you stare at me too long I'll bruise LOL...and that was even before IBD.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/11/2009 7:25 PM (GMT -6)   
Now that I'm thinking about it - I think I always was too.  Just a little worse now.  It could also have to do with your skin tone.  I'm very fair so I will bruise easier and & it will show more.

KTM


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 2/12/2009 10:07 PM (GMT -6)   
(Disclaimer: I changed my name!)
 
The thing is that I rarely ever used to get bruises and acne. I just want my old body back!
 
Question about B12--does it thicken hair just on the head or all over the body? (I know I don't need more facial hair! Heh)
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 2/12/2009 10:34 PM (GMT -6)   
I've got weird dry patches too. I just use cetaphil on them when they get really bad.
I'm an easier bruiser too. I bet you if I looked at my shins I'd have at least four bruises.
Are you really run down and stressed out? Stress can do some really weird things to your body, so maybe that's contributing?
I hope you feel better :)
Sam(antha)
20 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"Life is what happens when you are busy making other plans"
John Lennon


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/13/2009 7:21 AM (GMT -6)   
*Scratches head* Umm Bookworm21, what was your ID name before you changed it?! LOL I'm confused.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 2/13/2009 8:23 AM (GMT -6)   
     Best to get a CBC done to be on the safe side.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 2/13/2009 8:23 AM (GMT -6)   
Red, I was ComedyDork before. Sorry for the confusion!
 
I'm not anymore stressed than I normally am (I'm a worrier by nature). I'll have to look into the Cetaphil and B12.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/13/2009 9:01 AM (GMT -6)   
LOL Ok, I KNEW it was someone that was familiar too me but I have a hard time remembering which post is from whom because we have soooo many posts.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4226
   Posted 2/14/2009 11:36 PM (GMT -6)   
I bruise really easily too. That started happening before the UC though. I've been having some weird knee pain the past two weeks. It hurts when I go to my exercise classes, and it's not a "good" hurt.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops; Ortho Tri-Cyclen


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 2/15/2009 7:50 PM (GMT -6)   
Sara, I've been having the same pains. I've found that using a heating pad on them helps.

I'm seeing a dermatologist next month, so hopefully he'll help with all the skin issues. I'm really worried about the female issues though; the first two days I can't go to class and can only be on a liquid diet. I know my doctor is just going to offer bc pills and I don't want to go on those since that's what triggered my last flare. argh!

Red, I have a question for you: I think in another thread you said that you had endo ablation. Were you glad that you did it? Did you have any complications? (My mom may need to get it)
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


murf28
Regular Member


Date Joined Jan 2003
Total Posts : 78
   Posted 2/15/2009 9:33 PM (GMT -6)   
You should check with your GI doc.  Remicade can cause your platelets to drop, which in turn causes bruising.  This has happened to me a couple of times during the course of my Remicade treatment, and one of the reasons I really want to quit using it.  You will definately want to get a CBC.
 
murf

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/16/2009 7:40 AM (GMT -6)   
Yep, 100% satisfied that I had the endo ablation. It's been 1 year and 4 months since I had a period. I did have an adverse reaction to the pain meds which sent me to the ER but the procedure itself was painless and the recovery just a bit uncomfortable for the first 48 hours. Then after that I was feeling a lot better.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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