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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 2/11/2009 4:24 PM (GMT -6)   
Just wanted to share...... I just had my FOURTH bowel movement of the day!! Since last year, I'd have four BM's within the first hour of waking up and would have had at least 10 by this time of day! Best of all, it was kind of urgent and there was some burning in my stomach but I was actually able to ignore it for a few minutes while I finished what I needed to do at my computer instead of throwing my stuff down and bolting for the toilet.
I also haven't noticed any blood except for a little pink on the TP in the past two days, as opposed to the copious amounts that had been coloring my water red. I really hope this is a sign for good things to come with Remicade. I go for my second infusion next Thursday.
 
I can't share this with anyone else without people thinking I'm a weirdo, so I just had to get it out where I know people would understand
  yeah
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg
First Remicade infusion 2/5/09


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 2/11/2009 4:39 PM (GMT -6)   
Great news! Hope this is just the first of many good days to come!
41, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 1 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories (tapering) and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, and Trazodone 75 mg for sleep/anxiety (clonazepam as needed)
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/11/2009 5:03 PM (GMT -6)   
Yahoo EK! That's great news. The hardest part for me after getting to remission was to make my brain realize that the urgency wasn't "horrible" urgency anymore. It was a strange feeling. Good luck and keep us updated on how things are going.

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/11/2009 5:29 PM (GMT -6)   
Yay!
When I share such stuff with my husband, he just says "that's great, Pretty Lady" because he can tell I'm happy not because he follows what I'm saying.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 2/11/2009 5:49 PM (GMT -6)   
I share it with my parents as well mainly because they ask- my mom gets more specific and doesn't mind details, but my dad always throws it in after asking me about my day, my finances, my dog, and then "And how is your.. other stuff going?" Haha.
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg
First Remicade infusion 2/5/09


VerM
Regular Member


Date Joined Feb 2009
Total Posts : 101
   Posted 2/11/2009 5:57 PM (GMT -6)   
LoL so funny that I know exactly what everyone here is talking about.... great to hear people are having success. Who would have thought bowel movements would make people so happy or sad. It's true though that can start me off in a good or horribly bad mood.
I will not be passive.  I will fight until I win.  -VerM


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 2/11/2009 6:52 PM (GMT -6)   
That's great!!
31 yr old female
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any meds for now. May be on 6mp soon?


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16287
   Posted 2/11/2009 7:03 PM (GMT -6)   
I am so happy you finally have some hope. tongue
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/11/2009 7:14 PM (GMT -6)   

Great news edie!  I have been having a little success with prednisone - after trying everything else and getting worse - it is finally nice to get some better, huh?  Hope it continues for both of us.

As for talking about it with family and friends - I have a sister who will isten - not sure she wants to but will.  We only get to talk on the phone so maybe that is easier, I don't know.  My husband is supportive but never asks questions - I am sure after 47 years he knows when I am doing good or not!!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/12/2009 9:06 AM (GMT -6)   
Yay for you! I hope the trend continues.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/12/2009 9:47 AM (GMT -6)   

So great that we can share all details here on the forum.  Only you guys would understand after being on prednisone for 6 days I had the flashlight in the toilet looking at a normal bm and seeing NOT EVEN ONE SPECK of blood this morning!  How exciting (but only to those who understand). Told my husband of all these years and he said "that is good" and went on to watch his news program!!  hee hee

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


pant pooper
Regular Member


Date Joined Dec 2008
Total Posts : 27
   Posted 2/12/2009 1:41 PM (GMT -6)   
The strange thing is that the sickness becomes the normal and its not until you feel good again that you realize how sick you really are or were.

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/12/2009 3:09 PM (GMT -6)   

I sure know what you mean.  IN the last year I have always taken Imodium when going out because I knew I would have urgency, D, etc. if I didn't.  Now because of winter weather have been home mostly taking the prednisone and not really needing Imodium but feel I will probably want to take it although I may not need it - yikes - hard decision and anxious about it.  You are right - when we feel better it is great after "living with" the DD so long as it was - day to day! Just hope this continues and soon I can adjust to going out relaxed and enjoy my day more.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/12/2009 5:35 PM (GMT -6)   
That is awesome news!  I'm so happy it is working for you so quickly!  I found by my third infusion I was completely in remission.  Hope it's the same for you - or SOONER of course!

KTM


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 2/12/2009 6:45 PM (GMT -6)   
That's great. Your post reminds me of sitting at my PC with my headset on and getting that urge. LOL, I jumped up and ended up with the cord wrapped around my leg tearing the cord out of my headset and utterly destroying it. The things we never tell, lol.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 2/12/2009 10:13 PM (GMT -6)   
That's great. I hope things keep getting better!
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 

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