Flaring Bad-At a Crossroads

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P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 2/12/2009 9:25 AM (GMT -6)   
Well, I started flaring a few days ago. I started with cramps and D, and now I'm having a lot of blood, weakness and body aches. I have a call in to my doctor. I have a feeling he is going to suggest Pred. He pretty much told me so the last time I flared. I know my iron is super low. I just want to go home and sleep, but I've got an importnat meeting today cry
He also mentioned switching me to 6MP but I am terrified of that. I really don't know what to do. I'm afraid of the Pred and the 6MP but I want to get better...whatever that even means!!
Dee-38yrs old wife and mom of 3 boys
UC/PTSD/Panic Disorder/Depression/Fibromyalgia
750mg colozal/.750mg clonazepam, 7mg Lexapro
1,000mg canasa/Fioricet/Nexium 40mg
Triple Strength Fish Oils/Colonoscopies-4
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/12/2009 10:26 AM (GMT -6)   
Hey P-Fit, sorry to hear you are flaring. I know how tiring it can make you feel and it's tough to keep up with life in general when you are feeling so poorly. Have you tried Rowasa enemas? That might help to get the flare under control instead of the Pred. Take care and let us know what the doc says.
Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 2/12/2009 10:32 AM (GMT -6)   
I've never tried those. I will mention it to him when I get a call back. Do they treat a different area than the canasa?

Dee-38yrs old wife and mom of 3 boys
UC/PTSD/Panic Disorder/Depression/Fibromyalgia
750mg colozal/.750mg clonazepam, 5mg Lexapro
1,000mg canasa/Fioricet/Prilosec OTC-2x daily 
Triple Strength Fish Oils/Colonoscopies-4
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/12/2009 10:37 AM (GMT -6)   
A good theory on here is that treating from both ends works very well. Many have had good success with oral meds combined with anal meds especially the enemas. The anal meds get the rectum area.
Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/12/2009 10:55 AM (GMT -6)   

After a good trial with rectal meds, etc. don't be afraid to try prednisone - after all is exhausted certainly - in my opinion!  I tried all mesalamine suppositories, enemas, pills, and then hydrocortisone enemas and Colazal, etc.  Everything made my flare worse and I have not been in remission since diagnosed.

I am on 6th day of prednisone.  Don't know the end result of course - but happy right now.  I feel about 80% better - regular bm (two or three at most in mornings) and today FINALLY - no blood!!  Cramping is only little with some gas but I have IBS also so could be that hotdog!  My doctor is talking 6 MP as a maintenance when I taper from prednisone.  It is scarey but I will tell you right now I feel so great I don't mind trying what I have to.  Many get into remission with 5ASA's and enemas, etc. but I didn't - hope you can.  Being your are 30 years younger than I am is definitely a consideration - future affects of these "tough" drugs!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 2/12/2009 12:27 PM (GMT -6)   
The last time I had a minor flare up, pred straightened me out immediately. Made me wonder why I was so reluctant to use it. I'm of the opinion it can be very helpful in certain cases, if started at a moderate dose and tapered quickly.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 2/12/2009 12:38 PM (GMT -6)   
     Don't be afraid of the 6MP.  I've been on it for five years.  It really hasn't kept me out of flares, but I did see a GI surgeon over the summer and he said in his opinion I would likely be much worse if it weren't for the 6MP.  The UC is confined to my rectum and I have had it for over ten years.  The doctor will put you on 6MP while you are still on prednisone.  It takes anywhere from 3 to 6 months to "kick in".  My mistake was taking myself off all my meds last year prior to flaring.  I've been on Colazal for several years.  The cort enemas work better than Canasa but when I was in the hospital in May I couldn't retain the enemas so they gave me Canasa.  Good luck!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/12/2009 1:09 PM (GMT -6)   
Yes, seems that is what my doctor thinks.  I started on 40 mg. with weekly taper to 20.  I do have a mild to moderate case and not extensive - just did not repond to other medications that I could tolerate.  I think if I could tolerate mesalamine it would have worked fast for me.  ElaineNY

68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/12/2009 1:32 PM (GMT -6)   
P-Fit - Rowasa is the same medication as Canasa in a stronger dose & in liquid form so it reaches higher up in the colon.  When I was flaring badly I would sometimes use Rowasas at night and use the Canasa in the morning.  Treating from both ends really does help you heal faster.

KTM

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