surgery option

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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 2/13/2009 6:20 AM (GMT -6)   
When the option of surgery is given to you...is it possible for them to just take out the infected area of the colon or do they always take out the WHOLE colon?!
22 year old female, from the UK
 
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
Waiting for Colonoscopy as no medication has worked effectively as of yet
 
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.


karliebug
New Member


Date Joined Feb 2009
Total Posts : 10
   Posted 2/13/2009 6:25 AM (GMT -6)   
I think they take out the whole colon because if you only take out one part, you will continue to have UC in whatever is left. By removing the whole colon you essentially cure the disease. At least that is the way I understand it.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 2/13/2009 7:51 AM (GMT -6)   
Thats what I thought...its just when I have mentioned it to a couple of friends they were like "well surely they can just take out the infected part?!" And it got me thinking...! Thanks for your reply :)
22 year old female, from the UK
 
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
Waiting for Colonoscopy as no medication has worked effectively as of yet
 
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.


jone bone
Regular Member


Date Joined Feb 2009
Total Posts : 24
   Posted 2/13/2009 8:13 AM (GMT -6)   
I wonder about this myself. I'll bet some research would be worthwhile. I wonder how they handle surgery in Europe.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 2/13/2009 8:40 AM (GMT -6)   
Yer...I ask because I've been told by my GP that its an option I may have to take in the near future. However I've never read or spoken to anyone who hasn't had the whole colon out.

22 year old female, from the UK
 
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
Waiting for Colonoscopy as no medication has worked effectively as of yet
 
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 2/13/2009 9:05 AM (GMT -6)   
If any doctor or surgeon tells a UC patient that they can have only a part of the colon removed RUN TO ANOTHER DOCTOR FOR A SECOND OPINION! UC affects the colon and the rectum and both organs must go! Some people have kept their rectums (poor recommendation) and only had to continue with UC meds after surgery. What's the point of having surgery if you are going to continue to be ill? Many of those people returned for additional surgery to remove the rectum.

Your GP does not know much about UC or about surgery for UC. This too is not uncommon. I have met many doctors since my surgery who have no idea what a jpouch is.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 2/13/2009 9:49 AM (GMT -6)   

Hi suebear...sorry I don't think I explained myself very well...my GP suggested 'surgery' but never went into any detail as it was only mentioned in passing. She is fantastic and actually knows her stuff about gastroenterology, so thats very helpful!

I am simply asking this question because friends (people who know nothing about surgery!) happened to say "well can't they just take out part of the colon rather than the whole thing?" And it just got me thinking...but no matter how muh research I've done online etc, I cannot find anywhere that says removing just part of the intestine is common practise.  


22 year old female, from the UK
 
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
Waiting for Colonoscopy as no medication has worked effectively as of yet
 
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 2/13/2009 10:06 AM (GMT -6)   
     I saw a GI surgeon last summer and asked if I could just have my rectum removed as I suffer with ulcerative proctitis.  He told me unfortunately it just doesn't work like that.  If they removed the rectum the UC would most likely manifest itself in another location in the colon.  He did NOT recommend surgery for me because my condition was considered mild/moderate (hate to be a patient with severe UC...OMG) and he told me to just continue with my meds and remission would most likely occur.  He was right but it took a good seven months to achieve remission.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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