How often to have colonoscopy?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 2/13/2009 8:48 PM (GMT -6)   
Well, it is official.  I have UC!  No more hope that the issues were caused by something curable. 
 
GI started me on asacol and rowasa (not looking forward to this) today.  I go back to him Wednesday.  Of course now that I am coherent again I am thinking of questions. 
 
Once diagnosed with UC how often do some of you have colonoscopies to check things out? 

AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 2/13/2009 9:19 PM (GMT -6)   
I had my first colonoscopy last year, my GI said I will have my next one in a year. So every 2 years as long as things are stable I guess.
31 yr old female
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any meds for now. May be on 6mp soon?


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 2/13/2009 10:29 PM (GMT -6)   
My doctor insist on a yearly colonoscopy. So I am now on year 28 (before that they did not do them).
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/13/2009 10:33 PM (GMT -6)   
Every two years, mostly to nab the polyps out of there (because they have some risk of becoming cancerous). My doctor agrees with me that it works best all the way around if I wait until I'm not flaring, because they do irritate things.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/14/2009 7:08 AM (GMT -6)   
I had my initial scope 16 years ago, another one 8 years later and now that I am past the 10 year mark, I go in every 2 years. I have, however, had sigmoidoscopies every year until my 10 year mark. The frequency of scopes depends on a few factors such as the severity, family history of colon cancer and any previous negative findings.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 2/14/2009 10:52 AM (GMT -6)   
      My GI doctor likes me to have yearly colonoscopies.  I was gonna skip last year but wound up in the hospital and had to have one anyway :>(.  I never had any polyps but suffered with UC for ten years.  He used to have me come in for a sigmoidoscope at least once or twice a year but ever since he had to abort one because my blood pressure shot up to 210/110 while in the process....he hasn't suggested another..lol.  Probably scared the BeJesus out of him.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 2/14/2009 11:15 AM (GMT -6)   
My doctor insists on one a year
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Entocort 3 in the morning


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/14/2009 11:20 AM (GMT -6)   
Risan1808 said...
Well, it is official. I have UC! No more hope that the issues were caused by something curable.


It's not curable, because as long as you have a colon, it can get inflamed. But that doesn't mean, it isn't possible to get your UC into remission and keep it there for the rest of your life.

Risan1808 said...
Once diagnosed with UC how often do some of you have colonoscopies to check things out?


It really depends on your UC.

I would think that if you don't have polps, if you've already had a colonoscopy done since your last flare up, if you don't flared often, if your flareups are short-lived, if you haven't had UC for long, ... , then you don't need to get a colonoscopy as often as someone else who...
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 2/14/2009 11:45 AM (GMT -6)   
I had the first one for diagnosis and another one at the one year mark. After that, about every three years depending on symptoms.

I've hit the 20 year mark, but my UC has pretty much been controlled with minimal flares .... the last c-scope was totally unremarkable as per the report...nadda regarding precancer with minimal inflammation 2 inches at the rectum. With that I had a sigh of a relief.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 2/14/2009 1:48 PM (GMT -6)   
My GI told me every 5 years as long as I'm polyp free. I've had UC for 11 years now. I was symptom free for 10 years tho. My first serious flare was last summer. I've been unable to get out of it permanently since then. I'm actually going to request that I have one done soon just to rule anything out. We'll go from there.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 3 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)
- Canasa 1000mg @night. Started Oct. 23, 2008
- Niferex-150 Forte 1 capsule 2x Daily


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 2/14/2009 7:55 PM (GMT -6)   
Since I have been in remission for quite a while, my gi told me that I don't need another one til my 10 year mark which is in 2017. :)
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 2/15/2009 8:09 AM (GMT -6)   
      Sweetie....I see you are allergic to Remicade but on Humira?  I thought they were similar.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 2/15/2009 9:08 AM (GMT -6)   
They are similar in some ways but they are different in others. They both has the same TN blocker, but I guess they have different ingredients. My doctor switched me to humira because I stopped responding to Remicade. I guess it's easier to switch someone to something that isn't FDA approved when you aren't responding to a different treatment.

I have had a hard time finding the right information to find the difference in both drugs, but Humira is working for me. I gotta be thankful for that.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/15/2009 6:13 PM (GMT -6)   
My first one, at age 44 was the one at which I was diagnosed. I had my second in October, which was two and half years later, my GI and I both wanted to see how the Remicade was doing. I believe the protocol calls for yearly colonoscopies after you've had UC for eight years, the time at which the risk of colon cancer from UC increases. No harm doing them more frequently though if you and your GI agree. We all know it's not as bad as you think it's going to be before you've had your first one. Not exactly something to look forward to by any means, but considering how useful it is to detect and treat precancers in the colon, well worth the discomfort and inconvenience.
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

13 Remicade infusions: 1st: 7/21/07; most recent: 1/21/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 2/15/2009 9:57 PM (GMT -6)   
My GI said every ten years unless something in my flares or symptoms change..
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 2/16/2009 12:13 AM (GMT -6)   
every ten years for UC (for those having flares) seems unreasonable.

Maybe every 5...but not 10. A lot can change in 10 years, especially for those with colonic inflammation , even at a low simmer.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/16/2009 9:30 AM (GMT -6)   
I think he said every 5 years as long as all is well.  I just had one on Jan 29 and the one before that was about 4 years prior.  Had some flex sigs in between to check things out when I was flaring - but now that I'm in remission - next one in about 5 years unless something changes.

Mamas Boys (aka KTM)
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid
Status: Remission!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 8:50 AM (GMT -6)
There are a total of 2,973,181 posts in 326,066 threads.
View Active Threads


Who's Online
This forum has 160948 registered members. Please welcome our newest member, joyis.
461 Guest(s), 9 Registered Member(s) are currently online.  Details
Chris Topher, Melody16, C_G_K, Bull101, Sherrine, Tudpock18, onceitfreeze66, fiddlecanoe, straydog