I started to taper off Entocort enema in mid November last year after using it nightly for 7 weeks. I began with 1 enema in 3 nights for 2 weeks, then 1 enema in 4 nights for 2 weeks, and so on, until I used 1 Entocort enema weekly. On the nights I didn't use it I used Salofalk enema, which is supposed to be a maintenance medication for me.
When I went to 1 Entocort enema weekly I saw blood again in my BM, with some loose stool and left-side pain. It continued for a couple of days and I had to use it nightly again for 1 week. Now I started to taper it off again but I still need it at least twice a week.
My question is: can I go on like this for some time longer, or, should I phone my GI for advice? I have an appointment with her for mid March. Can I wait until then?
I feel much better than one year ago but I'm still not 100%. Urgency is my biggest issue.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.