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coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/16/2009 3:50 PM (GMT -6)   
How many infussions of remicade did it take before you could notice that it is helping?
Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


pant pooper
Regular Member


Date Joined Dec 2008
Total Posts : 27
   Posted 2/16/2009 8:26 PM (GMT -6)   
I got almost results right away 2nd infusion? and after a year they have stopped working for me. I also got a sinus infection that took months to get rid of, and then I got a staph infection, with huge zits all over my body that also has taken months to get rid of, so at first I thought remicade was a god send and it was and now I'm not so sure, besr of luck

Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 2/16/2009 10:52 PM (GMT -6)   
First infusion was like liquid gold and worked...for a short time. We are now on our 5th, and think we have turned a corner. As the 4th wore off, my daughter flared a -new, and now the infusion stopped it. We are at about the 3 month mark, and get 10 mg per kilo every 8 weeks. Back to 2-3 BM's, little /no blood and no pain. Also on other drugs, see tag lines.
So far so good, as nothing else really stopped the nastiness of this disease.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.

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