New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/16/2009 2:50 PM (GMT -6)   
How many infussions of remicade did it take before you could notice that it is helping?
Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


pant pooper
Regular Member


Date Joined Dec 2008
Total Posts : 27
   Posted 2/16/2009 7:26 PM (GMT -6)   
I got almost results right away 2nd infusion? and after a year they have stopped working for me. I also got a sinus infection that took months to get rid of, and then I got a staph infection, with huge zits all over my body that also has taken months to get rid of, so at first I thought remicade was a god send and it was and now I'm not so sure, besr of luck

Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 2/16/2009 9:52 PM (GMT -6)   
First infusion was like liquid gold and worked...for a short time. We are now on our 5th, and think we have turned a corner. As the 4th wore off, my daughter flared a -new, and now the infusion stopped it. We are at about the 3 month mark, and get 10 mg per kilo every 8 weeks. Back to 2-3 BM's, little /no blood and no pain. Also on other drugs, see tag lines.
So far so good, as nothing else really stopped the nastiness of this disease.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 12:32 PM (GMT -6)
There are a total of 2,973,266 posts in 326,072 threads.
View Active Threads


Who's Online
This forum has 160951 registered members. Please welcome our newest member, siageorgeee.
447 Guest(s), 16 Registered Member(s) are currently online.  Details
Froggy88, Balladeer, Spring, Confused2910, Michael_T, KBmom, opugirl, samster, Sherrine, Tristan1974, IllinoisMom, phillyroll05, OriolCarol, LJohn23, CAdogsRus, iPoop