Asacol question

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snwbunny17
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 2/17/2009 8:40 AM (GMT -6)   
Hi everyone,
I just wanted to ask a quick question about Asacol. I'm taking 12 pills a day along with 30 mg of prendisone and cortcol enema's. I recently ran out of the ascaol 2 days ago and my mail order pharmacy hasn't delivered the new meds yet. i was wondering if it was wise to stop "cold turkey"? last night i had the most unbearable joint pain in my knees where i couldn't sleep. they actually still hurt to move now. i was wondering if not taking the asacol would cause that or would it be another side effect of prendisone?

thank you for your help!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 2/17/2009 9:09 AM (GMT -6)   

I would be nervous to stop. Last time I wasn't on Asacol, I had horrible cramping and D.

Why don't you call your doctor and get him/her to call in a prescription to the local pharmacy. There is a coupon for 60 pills on Proctor and Gamble's website. I used it the other day, 60 pills for free.


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


jone bone
Regular Member


Date Joined Feb 2009
Total Posts : 24
   Posted 2/17/2009 10:05 AM (GMT -6)   
Asacol is a strange fish. I once had all my Asacol stolen in Costa Rica and went almost two weeks with no problems (I even had some booze). However, I switched to Pentasa for a few days when I ran out about eight months ago and although I got more within a week, I have been in a flare up ever since. I would try to slowly ween off the prednisone before stopping Asacol. And I think cold turkey is a bad idea as well. The shock to you body is hard on it.

IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 2/17/2009 10:12 AM (GMT -6)   
I went cold turkey from my Asacol once and had 2 panic attacks in one week.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 3 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)
- Canasa 1000mg @night. Started Oct. 23, 2008
- Niferex-150 Forte 1 capsule 2x Daily


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/17/2009 11:17 AM (GMT -6)   
i was on 12 a day and them started 6-MP...the Asacol was increasing the effects of the 6-MP on my liver so my doc had me stop Asacol flat ASAP...I have been taking Asacol for years...in the past week since I have stopped I have been feeling worse...more bleeding etc. so I have a call in to the doc today to see what we can do.

Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 2/17/2009 12:39 PM (GMT -6)   
I don't take as many as you, but the two times I tried to quit taking them after about the 3rd or 4th day my symptoms started to get worse, this last time has been bad. My sister has it worse than me and she quit taking Asacol after about 6 months or so, now she only takes it once in a while when she has a flair up. I have read where some people get joint pain from Asacol, I haven't noticed it myself.

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 2/17/2009 1:00 PM (GMT -6)   

Asacol shouldn't cause any kind of withdrawal symptoms like those you get by stopping something like Prednisone cold turkey; however, stopping it means you're not getting the meds you need, so you may see an increase in symptoms. 

Indiana - Do you think you had the panic attacks because you were stressed/nervous about stopping meds cold turkey? 


DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Spinach/Sunflower Seed Diet
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Remission
 
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/17/2009 6:25 PM (GMT -6)   
I was off it for about a week, same reason, thought I had more, then Rx needed renewed, mail order wait...

I noticed a little more D, but no urgency and it wasn't bad enough to seek out the doc for samples or a small scrip to pick up locally while I waited.

The prednisone is quite likely affecting your sleep, which makes you notice your aches and pains at night more, is my guess. I hope you feel better soon.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 

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