LONEYLANE~!!!!!

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Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/18/2009 11:27 AM (GMT -6)   
HEY GIRL... We have got to get together.. I have had so much going on in my life and my U/C is no where NEAR under control right now.. Only thing coming out of me last night was blood and clots... GROSSSSSSSS!!!!! .. I've been going through verything from marital problems, to marital problems to marital problems.. ugh... I swear I have tried hanging in there but I don't know if I can much longer... It has really effected my U/C to the point where now I'm on Lialda 2x 2 a day in addition to everything else and that's not even helping so the next step is PRED... I'm so terrified as I've never been on pred before and have heard all the horror stories about it and I remember back when my husband went on it, I ended up having to move out because it made him so MEAN.. and I don't mean just a little bit mean......
 
  My doctor I'm sure will start me on it today or tomorrow... I'm just so nervous about it..
 
  Anyways, I need my healingwell buddies, you and Starrnrr if she's still around, I haven't heard from her in so long but remember how much fun we had going out to breakfast that time and we could all talk and totally "GET IT" ya know?
 
  I'm seriously at my wit's end and he won't go to counseling.. he says it's a waste of money and we need to fix things on our own... YA.. RIGHT...  why does he say that when we can't fix things over the last 4 years??  Doen't make sense and sounds like a copout to me... But here I sit, dwelling in it all.... not knowing what to do...
 
   Oh, forgot to add, I'm also doing Rowasa at night every nigt and canasa in the am and after every BM.. Trying to do everything but not getting anywhere...
 
 


Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of January 9, 2009:  Flaring for the last 3 months with blood, mucus and my stomach is so bulging out!  Meds are Lialda 2 pills 2x a day Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... Ambien at night for sleep... geez..
 
               http://www.myspace.com/77016897         

Post Edited (Susiebuddy) : 2/18/2009 9:32:37 AM (GMT-7)


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/18/2009 8:51 PM (GMT -6)   
bump....
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of January 9, 2009:  Flaring for the last 3 months with blood, mucus and my stomach is so bulging out!  Meds are Lialda 2 pills 2x a day, Rowasa nightly, Canasa every am and after every BM... Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... Ambien at night for sleep... geez..
 
               http://www.myspace.com/77016897         


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/19/2009 9:25 AM (GMT -6)   
Hey Susie! Sorry; I must have missed this yesterday! Wow, I'm sorry things are not going well for you right now. Marital problems are the pits and I can tell you that's the truth! Susie, I think you've run the extra mile trying to make things work out and maybe it's time to take a serious look at your health and well being? I haven't heard from Sherree in a while; but it would be good to get together and chat. Is there anything I can do to help? Are you still doing the hay business?

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/22/2009 5:28 PM (GMT -6)   
Hey Carol...

Sorry it took me a bit to get back to you... I've been feeling pretty lousy and have not been online much.. I've been in this darn flare for quite some time now and did have a couple of periods of what I thought was remission, but they didn't last long... Since going on Lialda, I had 2 weeks where I was feeling pretty darn good actually,... my energy was back to normal and I was having normal poopies... something I haven't had in a long time.. almost forgot what a normal poopie was like.. LOL... Well that lasted about 2 weeks and now I'm bleeding even with the Lialda and Rowasa nightly.. I called my GI last week and he has me scheduled for a Flex-Sig on Thursday.. he's waiting till then to put me on Pred because he wants to see what he's up against in there first.. I just hope I can make it till then... argh... Overall I'm not feeling TOO bad, I can eat most of the time and don't have a lot of nausea, but the pain and bloating are sure a bummer and sometimes I do lose my appetite and don't really want to eat much.. I really thought the Lialda was going to do it for me.. I am suprised it only lasted 2 weeks... weird...

Yes, I'm still doing the hay business although right now it's not my busy time of year so I'm pretty much NOT doing it right now... It will pick up in April or May, as soon as my growers get their first crops in for the season.. Last summer I ended up getting so busy I had to hire a couple of young bucks to help me deliver and stack it all... I've heard from them a few times in the last month or so and they are anxious for this year to start.. it's nice to have guys that actually WANT to work these days.. lol...

I don't know if there's anything you can do right now to help besides listening to my complaining hiney-hole, but the offer means a great deal to me :)

I'll probably be around more now that I'm back in a bad flare.. the worst I've had since my diagnosis 4 years ago.... wowie..

Keep in touch~~~!!!!!
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of January 9, 2009:  Flaring for the last 3 months with blood, mucus and my stomach is so bulging out!  Meds are Lialda 2 pills 2x a day, Rowasa nightly, Canasa every am and after every BM... Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... Ambien at night for sleep... geez..
 
               http://www.myspace.com/77016897         


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 2/23/2009 1:56 AM (GMT -6)   
bump
Diagnosed with U/C January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of January 9, 2009:  Flaring for the last 3 months with blood, mucus and my stomach is so bulging out!  Meds are Lialda 2 pills 2x a day, Rowasa nightly, Canasa every am and after every BM... Culturelle 1x a day, plus an occasional Xanax if I feel stressed out.... Ambien at night for sleep... geez..
 
               http://www.myspace.com/77016897         


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 2/23/2009 9:22 AM (GMT -6)   

Hey, things have been busy for me, and I apologize for not getting back to you! We had Mom's 80th birthday this weekend, so I was running around trying to get things together for her party. On Saturday, we took her to get her hair colored and styled and then went on to do pedicures -- a real blast. That night we had a nice big family party for her. Yesterday I was sooo tired.

I'm glad to know that your hay business will be starting again soon. Maybe that will help take the stress off of things. I too am being scheduled for a flex sig, yuck; hate those things.


Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 

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