Being newly diagnosed with UC myself last fall, I find there is a bit of a learning curve involved during the first while. It's hard trying to decipher what is going on with your body, when to ask for help and when to wait. I've decided that learning about
the disease is important, but gathering information that your body gives you is absolutely essential. The other important factor is a collaborative relationship with your GI doc, he/she should listen to your input about
your particular experience with your body. Ultimately, it's your body; no one can tell you what's going on better than you (even if its not in the medical vernacular).
I'm realizing that time is my friend, as more time passes, I have more experience with this disease and how to help my body heal. This is probably true for all newly diagnosed UCer's (or any disease for that matter).
In the end, a balance between patience, informed decision-making and self-advocacy probably go a long way to sanity. :D
Good luck with your healing process.
Distal UC (25cm), Nov 2008
Colonoscopy Nov. 2 08: Pathology showed inflammatory changes throughout colon, but ulcerations, friable tissue, etc. last 25cm of colon Lialda
3.6g (Nov 08); 4.8g/daily
Canasa supp. 1g (for 3 weeks, from Nov. 5),
Prednisone 40 mg/daily 4 week taper (Nov. 17 ‘08), Back up to 15mg Dec. 20, taper 2.5mg/wk. Off Pred Jan 27…knock on wood.
4g/bedtime Dec. 20 ‘08, 4g/bed time Jan 19 ‘09
Procotofoam: 1 application/bedtime, Jan 20 ‘09
Prednisone: 30mg taper, started Feb 10, 09.
Prilosec OTC generic: 1 pill every night (the pred upsets my stomach).
Other current meds/supplements: Sertraline, Yasmin, Vit E, Omega 3 FA, Krill Oil, Mupirocin (bacterial rhinitis), Maxalt MLT (migraine), phenergan (nausea).
My mother (UC for 20+ years) has been in remission for quite some time (at least a few years). :)
One of my cousins has Chron's dz. :(
I love Cottonelle moist flushable wipes!