What is remision?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 2/18/2009 7:26 PM (GMT -6)   
Hello,
 
I am new to this forum and new to UC (8/08).  My question probably sounds crazy but what is remission?  Is remission no D, no blood, no pain and no mucous.  I don't have D (I go 1-3 x a day and it is formed) very little mucous, some pain and no blood.  Should all the symptons be gone to be considered in remission?  Thanks
Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sound more than proctitis)

Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/18/2009 9:02 PM (GMT -6)   
In my opinion remission should mean all symptoms are gone and you feel as you did before getting sick....that would be full remission, there are varying degrees of remission though.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


jone bone
Regular Member


Date Joined Feb 2009
Total Posts : 24
   Posted 2/18/2009 9:21 PM (GMT -6)   
But on how much medication constitutes remission? I wonder that as well.

Wisconsin
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/18/2009 10:10 PM (GMT -6)   
Remission is no major problems....less bowels issues than you had before...maybe not perfect but a heck of a lot better than with active UC!

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 2/18/2009 11:30 PM (GMT -6)   
For me, remission is my GI and immune system functioning at 100%, working together and a return of normal mental status, lol. Anything else is just my body functioning somewhat better. Everybody will have a different take on what it is to them.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 2/18/2009 11:56 PM (GMT -6)   
When I can tell my husband it's ok to plan a driving trip from Ohio to Florida, I am in remission.

When I can't go to a restaurant to eat without worrying about leaving said restaurant to make it home, no matter how close it is I am in full flare.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/19/2009 8:17 AM (GMT -6)   
Jone bone, remission while on medication means using only maintenance medications on a maintenance dose including rectal meds. If you are pred, steroid enemas or a higher dose of medication such as 12 of Asacol (which is a treatment dose) then typically that is not remission. When you get your med levels down and have no symptoms then that is considered remission. However, there are always variations of the maintenance dosing. For instance, 9 of Asacol is considered a treatment dose but some people just can not go lower or they flare.

Learntoadapt, for me, remission is the lack of urgency, pain and blood. I used to think that having D is flaring but for me now that is my new normal. But it's the quality of that D. It doesn't hurt and I don't have blood nor frequency. I think that my colon is just plain worn out from having this for so long. I don't have D every day but hardly is ever formed. Soft serve to D is my new normal. Also I don't feel sick or horribly fatigued. That is also my clue that I am in remission.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/19/2009 11:38 AM (GMT -6)   
Red_34, if you don't mind the personal question, how often do you have D in a day? And by lack of urgency, how long do you have to get to the bathroom?

My only real symptoms have been diarrhea and blood. I've never really had pain...just a little bit of cramping when I was at my absolute worst (15-20 urgent BMs/day). Now I'm down to 6-8 BMs a day, some are still really urgent and others aren't so much. I've had a couple of partially formed BMs, but it's mostly still diarrhea.

At this point, I think I'd be happy with 3-4 BMs a day, just so long as they aren't urgent!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/19/2009 12:19 PM (GMT -6)   
I have D about 3 times a day or sometimes less. I still sense the urge to go but I can usually hold it just usually not past a half hour or I start to cramp.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 2/19/2009 5:37 PM (GMT -6)   
Remission? How should I say? I feel good. I can take a 13-hour flight, join a guided tour in Japan, which means getting up at 5:30 and having breakfast at the hotel at 7:30 am. I have 2-5 BMs a day, mostly formed except for the very first one in the morning.
I consider myself in remission, but I still have urgency. When I need to go I need to go, right away. I wear a pad 24x7. When I travel I wear Depends. I bring along babies wipe with me, just in case, and of course some Imodium as well.
I don't have D any more, but some loose stools sometimes, and a little red mucus. I wish I could feel better later. I don't think I can complain.
I take oral and rectal medications. I don't mind taking them so long as they keep me in 'remission'.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 2/19/2009 5:48 PM (GMT -6)   
Thank you for your responses.  They are very helpful.  Ideally I would like to return to no symptoms but I was just wondering if that is possible.  Looks like remission is more preception than medical.

Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sounds like it is more than proctitis)

Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/19/2009 6:48 PM (GMT -6)   
For me remission is being pretty much back to normal. In the bathroom 1-3 times a day with basically no urgency - no cramping, blood, etc. Sometimes if I eat too many fruits & vegies will have some D - but otherwise completely normal. Am able to do all the things I used to do without worrying where the nearest bathroom is.

As for the meds question - I think that maintenance meds are part of what keeps you in remission. You have a condition that needs to be taken care of. The meds do that for you. I think it is unreasonable to assume that remission is only if there are no meds involved. My personal opinion.
Mamas Boys (aka KTM)
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


ticklengiggle
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 2/19/2009 8:40 PM (GMT -6)   
These are great posts. Thanks all!
Distal UC (25cm), Nov 2008
Colonoscopy Nov. 2 08: Pathology showed inflammatory changes throughout colon, but ulcerations, friable tissue, etc. last 25cm of colon
Lialda  3.6g (Nov 08);  4.8g/daily (Dec 08)
Canasa supp. 1g (for 3 weeks, from Nov. 5),
Prednisone 40 mg/daily 4 week taper (Nov. 17 ‘08), Back up to 15mg Dec. 20, taper 2.5mg/wk. Off Pred Jan 27…knock on wood.
Rowasa: 4g/bedtime Dec. 20 ‘08, 4g/bed time Jan 19 ‘09
Procotofoam: 1 application/bedtime, Jan 20 ‘09
Prednisone: 30mg taper, started Feb 10, 09.
Prilosec OTC generic: 1 pill every night (the pred upsets my stomach).
Other current meds/supplements: Sertraline, Yasmin, Vit E, Omega 3 FA, Krill Oil, Mupirocin (bacterial rhinitis), Maxalt MLT (migraine), phenergan (nausea).
 
My mother (UC for 20+ years) has been in remission for quite some time (at least a few years). :)
One of my cousins has Chron's dz. :(

I love Cottonelle moist flushable wipes!


ucisapain
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/19/2009 9:41 PM (GMT -6)   
I asked my doctor this the other day. She said remission should be 1 normal bowel movement a day. I laughed. If I had a normal bowel movement, I would die of shock and not be able to enjoy the moment.

Diagnosed in Feb 2007. Currently having a flare-up, taking 3mg of Salofalk granules, 2 colifoam steroid enemas, 1.5 teaspoon metamucil and lots of Codeine for the pain.

Joma
Regular Member


Date Joined Nov 2008
Total Posts : 222
   Posted 2/21/2009 12:12 PM (GMT -6)   
i am with red 34, remission for me is 1-3 loose stools a day with no blood and very little urgency (urgency usualy only with the first of the day). ucispain, as for your doc saying 1 mornal bowel movement a day - i would laugh too - cant even remember what 'normal' is for me anymore.

reading these posts i realize i am lucky in that no matter how badly i flare i have never had to worry about having an accident. my flares consist of ALOT of blood and some pain but not a huge amount of trips to the bathroom with uncontrollable d. jo

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/21/2009 12:41 PM (GMT -6)   
I am never symptom-free so would not say I have ever achieved remission. I'm also very happy when I am having few episodes of urgency.

But I have not tried some of the new treatments, since I have learned to manage after all this time. Maybe I will, next time I flare.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 

Post Edited (Peety) : 2/21/2009 10:44:28 AM (GMT-7)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/21/2009 3:15 PM (GMT -6)   
     I consider myself in full remission.  I do take meds, not prednisone or the enemas, but Colazal and 6MP for maintenance.  I have one "normal" bowel movement per day.  I may skip a day occasionally, depending on how and what I eat.  I eat anything I like (except crabcakes because I suffered a flare twice after eating them).  No urgency, no bleeding.  Feel like I was 19 again!  Wish I looked it.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 10:16 PM (GMT -6)
There are a total of 3,005,777 posts in 329,263 threads.
View Active Threads


Who's Online
This forum has 161801 registered members. Please welcome our newest member, kissel123.
314 Guest(s), 3 Registered Member(s) are currently online.  Details
scifigal2k, cashlessclay, Healing98