With your resistance to meds and your family history of colon cancer you should at minimum be researching surgical options. That's probably not what you want to hear but it's best to get educated and know in advance what your choices are so you can be prepared with a decision. Not all CR surgeons do all surgeries so this takes time to get informed.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free